{"id":1591,"date":"2017-09-27T13:12:40","date_gmt":"2017-09-27T18:12:40","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1591"},"modified":"2017-09-27T13:12:40","modified_gmt":"2017-09-27T18:12:40","slug":"becky","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","title":{"rendered":"OSOBA Z LGMD: Becky"},"content":{"rendered":"

LGMD \"Wywiad w centrum uwagi\" \u00a0<\/strong><\/p>\n

Nazwa<\/strong>: Becky \u00a0\u00a0Wiek<\/strong>: 35 lat\"\"<\/a><\/p>\n

Kraj:<\/strong> USA<\/p>\n

Podtyp LGMD<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

W JAKIM WIEKU ZOSTA\u0141E\u015a ZDIAGNOZOWANY? <\/strong><\/p>\n

Zdiagnozowano mnie w 2009 roku w wieku 27 lat.<\/p>\n

JAKIE BY\u0141Y PIERWSZE OBJAWY: <\/strong><\/p>\n

Moimi pierwszymi objawami by\u0142y trudno\u015bci z chodzeniem po schodach, wstawaniem z ziemi lub wstawaniem z krzes\u0142a\/toalety.<\/p>\n

CZY MASZ INNYCH CZ\u0141ONK\u00d3W RODZINY, KT\u00d3RZY CHORUJ\u0104 NA LGMD? <\/strong><\/p>\n

\u017baden inny cz\u0142onek rodziny nie cierpi na LGMD.<\/p>\n

CO JEST DLA CIEBIE NAJWI\u0118KSZYM WYZWANIEM W \u017bYCIU Z LGMD? <\/strong><\/p>\n

Najwi\u0119kszym wyzwaniem jest dla mnie mentalna cz\u0119\u015b\u0107 zrozumienia moich ogranicze\u0144. \u015awiadomo\u015b\u0107, \u017ce moje \u017cycie nie jest takie, jak sobie wyobra\u017ca\u0142am. \u015awiadomo\u015b\u0107 rzeczy, kt\u00f3re m\u00f3j m\u0105\u017c i ja musieli\u015bmy zmieni\u0107, aby poradzi\u0107 sobie z t\u0105 stale post\u0119puj\u0105c\u0105 chorob\u0105.<\/p>\n

JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE? <\/strong><\/p>\n

My\u015bl\u0119, \u017ce moim najwi\u0119kszym osi\u0105gni\u0119ciem po zdiagnozowaniu tej choroby jest moje ma\u0142\u017ce\u0144stwo. Pobrali\u015bmy si\u0119 2 miesi\u0105ce przed tym, jak zacz\u0119\u0142am przechodzi\u0107 wszystkie badania maj\u0105ce na celu ustalenie, co mi dolega. W zdrowiu i w chorobie przysz\u0142o o wiele szybciej, ni\u017c mogli\u015bmy sobie kiedykolwiek wyobrazi\u0107, ale dzi\u0119ki temu jeste\u015bmy dzi\u015b silniejsi.<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ: <\/strong><\/p>\n

Ta choroba zmienia \u017cycie. Pomimo tego, jak bardzo jestem zale\u017cny od rodziny i przyjaci\u00f3\u0142, nadal jestem do\u015b\u0107 niezale\u017cny. Prowadz\u0119 samoch\u00f3d za pomoc\u0105 r\u0119cznych urz\u0105dze\u0144 steruj\u0105cych, jestem zaradny w sposobach, kt\u00f3re znajduj\u0119, aby robi\u0107 rzeczy dla siebie i w pewnym sensie, mimo \u017ce moje mi\u0119\u015bnie s\u0105 s\u0142absze, jestem silniejszy. Nie sta\u0142o si\u0119 to od razu. Potrzeba by\u0142o czasu, by zda\u0107 sobie spraw\u0119, \u017ce jestem siln\u0105 osob\u0105, mimo \u017ce moje mi\u0119\u015bnie s\u0105 s\u0142abe.<\/p>\n

CO \u015aWIAT POWINIEN WIEDZIE\u0106 O LGMD? <\/strong><\/p>\n

Chc\u0119, aby \u015bwiat wiedzia\u0142 i rozumia\u0142, \u017ce ta choroba jest tak trudna. Czasami m\u00f3j m\u00f3zg nie pami\u0119ta, \u017ce nie mog\u0119 czego\u015b zrobi\u0107 i zaczynam to robi\u0107 tylko po to, by zda\u0107 sobie spraw\u0119, \u017ce nie mog\u0119. Chc\u0119, aby wiedzieli, \u017ce od momentu obudzenia si\u0119 osoba z LGMD musi natychmiast zastanowi\u0107 si\u0119, jak poradzi sobie z nadchodz\u0105cym dniem. \u015awiat powinien wiedzie\u0107, \u017ce ta choroba, cho\u0107 nieco niewidoczna, jest prawdziwa i niezwykle trudna do pokonania. To, \u017ce kto\u015b cierpi na t\u0119 chorob\u0119, nie oznacza, \u017ce jest zdrowy lub wyleczony. Nadal musimy \u017cy\u0107 swoim \u017cyciem, nawet je\u015bli za u\u015bmiechem kryje si\u0119 wyczerpanie lub b\u00f3l. \u015awiat powinien r\u00f3wnie\u017c wiedzie\u0107, \u017ce B\u0118DZIE LECZENIE. Pracuje nad tym tak wiele os\u00f3b, a post\u0119py poczynione w ci\u0105gu zaledwie kilku kr\u00f3tkich lat, kiedy zdiagnozowano u mnie t\u0119 chorob\u0119, by\u0142y ogromne.<\/p>\n

GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106: <\/strong><\/p>\n

Ta lista jest D\u0141UGA...., ale najpierw bym pobiega\u0142. Moje nogi nie porusza\u0142y si\u0119 w ten spos\u00f3b od tak dawna.<\/p>\n

 <\/p>\n

* * * Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 na ochotnika do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105 pod adresem: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1590,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-1591","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Becky - 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