{"id":1915,"date":"2018-04-27T10:04:04","date_gmt":"2018-04-27T15:04:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1915"},"modified":"2018-04-27T10:04:04","modified_gmt":"2018-04-27T15:04:04","slug":"zia","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/","title":{"rendered":"OSOBA Z LGMD: Zia"},"content":{"rendered":"

WYWIAD Z LGMD SPOTLIGHT<\/strong><\/p>\n

Nazwa<\/strong>: Zia \u00a0\u00a0Wiek<\/strong>: 26\"\"<\/a><\/p>\n

Kraj<\/strong>: Australia<\/p>\n

Podtyp LGMD:<\/strong> Dystrofia mi\u0119\u015bniowa obr\u0119czy ko\u0144czyny typu 2i<\/p>\n

 <\/p>\n

W JAKIM WIEKU ZOSTA\u0141E\u015a ZDIAGNOZOWANY?<\/strong>:<\/p>\n

Dystrofi\u0119 mi\u0119\u015bniow\u0105 zdiagnozowano u mnie w wieku dw\u00f3ch lat. Po wielu testach i wizytach lekarskich, w wieku 22 lat zdiagnozowano u mnie dystrofi\u0119 mi\u0119\u015bniow\u0105 typu 2i.<\/p>\n

JAKIE BY\u0141Y PIERWSZE OBJAWY<\/strong>:<\/p>\n

W wieku 1 roku mama zauwa\u017cy\u0142a, \u017ce moja siostra bli\u017aniaczka i ja nie chodzimy, nawet nie raczkujemy prawid\u0142owo, bardziej jak szuranie po pupie. Wtedy nasza mama wiedzia\u0142a, \u017ce co\u015b jest nie tak.<\/p>\n

CZY MASZ INNYCH CZ\u0141ONK\u00d3W RODZINY, KT\u00d3RZY CHORUJ\u0104 NA LGMD?<\/strong><\/p>\n

Tylko moja siostra bli\u017aniaczka Cyanne cierpi na dystrofi\u0119 mi\u0119\u015bniowo-ko\u0144czynow\u0105 typu 2i.<\/p>\n

CO UWA\u017bASZ ZA NAJWI\u0118KSZE WYZWANIE W \u017bYCIU Z LGMD?<\/strong>:<\/p>\n

Ka\u017cdy dzie\u0144 jest dla mnie najwi\u0119kszym wyzwaniem, poniewa\u017c musz\u0119 w pe\u0142ni polega\u0107 na mojej mamie i opiekunach, aby wyci\u0105gn\u0105\u0107 mnie z \u0142\u00f3\u017cka rano i wszystko pomi\u0119dzy, abym m\u00f3g\u0142 \u017cy\u0107 swoim \u017cyciem.<\/p>\n

JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE?<\/strong>:<\/p>\n

Mam wiele osi\u0105gni\u0119\u0107 w swoim \u017cyciu i wiele jeszcze przede mn\u0105! Moim najwi\u0119kszym osi\u0105gni\u0119ciem jest mo\u017cliwo\u015b\u0107 studiowania. Obecnie studiuj\u0119 certyfikat IV w zakresie us\u0142ug prawnych. W 2016 roku otrzyma\u0142am certyfikat IV w zarz\u0105dzaniu ma\u0142\u0105 firm\u0105 i za\u0142o\u017cy\u0142am w\u0142asn\u0105 firm\u0119 zajmuj\u0105c\u0105 si\u0119 edycj\u0105 i korekt\u0105 o nazwie Wondrous Words with Zia. Posiadam r\u00f3wnie\u017c Advanced Diploma in Arts (Professional Writing), Certificate in Professional Editing and Proofreading, a tak\u017ce nagrod\u0119 Society of Editors (SA) Award for Highest Achievement in Editing. Mia\u0142am r\u00f3wnie\u017c przyjemno\u015b\u0107 pracowa\u0107 w bibliotece przez 6 miesi\u0119cy z niesamowitymi lud\u017ami. Jestem r\u00f3wnie\u017c aktywnie zaanga\u017cowany w spo\u0142eczno\u015b\u0107. Ja i oko\u0142o 15 innych os\u00f3b jeste\u015bmy cz\u0119\u015bci\u0105 M\u0142odzie\u017cowego Komitetu Doradczego (YAC). \u015aci\u015ble wsp\u00f3\u0142pracujemy z cz\u0142onkami Rady, uczestniczymy w spotkaniach Rady, wyra\u017camy nasze obawy i opinie dotycz\u0105ce lokalnych m\u0142odych ludzi w Whyalla oraz planujemy i organizujemy wydarzenia.<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ:<\/strong><\/p>\n

Skupiam si\u0119 na tym, co mog\u0119 zrobi\u0107, a nie na tym, czego nie mog\u0119. Moje motto to: \"Robi\u0119 to, co mog\u0119 i kocham to, co mog\u0119 robi\u0107!\".<\/p>\n

CO CHCIA\u0141BY\u015a, ABY \u015aWIAT DOWIEDZIA\u0141 SI\u0118 O LGMD?<\/strong>:<\/p>\n

Chcia\u0142bym, aby \u015bwiat dowiedzia\u0142 si\u0119, \u017ce \u017cycie z LGMD jest trudne. LGMD wp\u0142ywa na<\/p>\n

\u017ce nadal jestem w stanie by\u0107 cz\u0119\u015bci\u0105 codziennego \u017cycia.<\/p>\n

GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106?<\/strong>:<\/p>\n

Po prostu biega\u0142bym i biega\u0142, biega\u0142 i biega\u0142 i... c\u00f3\u017c, my\u015bl\u0119, \u017ce masz zdj\u0119cie lol?<\/p>\n

 <\/p>\n

* * * Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105 https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>\n

* * * Prosimy o LIKE, COMMENT i SHARE tego postu, aby pom\u00f3c zwi\u0119kszy\u0107 \u015bwiadomo\u015b\u0107 na temat LGMD!<\/p>","protected":false},"excerpt":{"rendered":"

LGMD SPOTLIGHT INTERVIEW Name: Zia \u00a0\u00a0Age: 26 Country: Australia LGMD […]<\/p>","protected":false},"author":1,"featured_media":1913,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[96],"class_list":["post-1915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-australia"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Zia - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/04\/27\/zia\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Zia - 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