{"id":2254,"date":"2018-09-18T21:34:38","date_gmt":"2018-09-19T02:34:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2254"},"modified":"2018-09-18T21:34:38","modified_gmt":"2018-09-19T02:34:38","slug":"aric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/","title":{"rendered":"OSOBA Z LGMD: Aric"},"content":{"rendered":"

LGMD \"Wywiad w centrum uwagi\"<\/strong><\/span><\/p>\n

Nazwa<\/strong><\/span>:\u00a0 Aric \u00a0\u00a0Wiek<\/strong>22 lata\"\"<\/a><\/span><\/p>\n

Kraj<\/strong>: Stany Zjednoczone<\/span><\/p>\n

LPodtyp GMD<\/strong>: LGMD2B<\/span><\/p>\n

 <\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/span><\/p>\n

Zdiagnozowano mnie w wieku 21 lat.<\/span><\/p>\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/span><\/p>\n

Moimi pierwszymi objawami by\u0142a niemo\u017cno\u015b\u0107 wchodzenia po schodach lub stania na palcach.<\/span><\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong><\/span><\/p>\n

Ja nie.<\/span><\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/span><\/p>\n

W moim normalnym dniu mam problemy z chodzeniem po schodach i wysiadaniem z samochodu - rzeczy, o kt\u00f3rych wi\u0119kszo\u015b\u0107 ludzi nigdy by nie pomy\u015bla\u0142a. My\u015bl\u0119, \u017ce to najwi\u0119ksze wyzwanie - pom\u00f3c ludziom lepiej zrozumie\u0107, przez co przechodz\u0105 osoby takie jak ja. Trudno jest opisa\u0107, dlaczego nie mog\u0119 wykonywa\u0107 zwyk\u0142ych codziennych czynno\u015bci tak jak kiedy\u015b.<\/span><\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/span><\/p>\n

W ci\u0105gu ostatnich kilku lat, gdy ucz\u0119szcza\u0142em do liceum, osi\u0105ga\u0142em sukcesy w sporcie i w nauce. Na kilku stanowiskach, na kt\u00f3rych pracowa\u0142em, osi\u0105gn\u0105\u0142em cele, do kt\u00f3rych \u017cadna inna m\u0142oda osoba nigdy si\u0119 nie zbli\u017cy\u0142a. Szczerze m\u00f3wi\u0105c, uwa\u017cam, \u017ce moim najwi\u0119kszym osi\u0105gni\u0119ciem jest to, \u017ce nie podda\u0142em si\u0119 w walce, kt\u00f3r\u0105 obecnie prowadz\u0119. Ta straszna choroba mo\u017ce naprawd\u0119 zabra\u0107 tak wiele z jednej osoby, a si\u0142a i przes\u0142anie, kt\u00f3re musz\u0119 sobie codziennie powtarza\u0107, aby wsta\u0107 z \u0142\u00f3\u017cka, jest moim najwi\u0119kszym osi\u0105gni\u0119ciem. B\u0119d\u0119 nadal walczy\u0107 o lepsze \u017cycie dla mnie i dla innych os\u00f3b \u017cyj\u0105cych ze stwardnieniem rozsianym, wci\u0105\u017c jestem bardzo m\u0142oda i wierz\u0119, \u017ce mog\u0119 teraz co\u015b zmieni\u0107 na tym \u015bwiecie.<\/span><\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj:<\/strong><\/span><\/p>\n

LGMD zmieni\u0142o mnie w silniejsz\u0105 osob\u0119, a ironia w tym stwierdzeniu jest troch\u0119 zabawna. Ka\u017cdy dzie\u0144 traktuj\u0119 jak b\u0142ogos\u0142awie\u0144stwo, niedawno za\u0142o\u017cy\u0142am w\u0142asn\u0105 dru\u017cyn\u0119 na lokalne wydarzenie MD, a obecnie pracuj\u0119 nad w\u0142asnym wydarzeniem! Chc\u0119 po prostu stworzy\u0107 lepsze miejsce i da\u0107 nadziej\u0119 ka\u017cdemu dziecku i doros\u0142emu, kt\u00f3ry przez to przechodzi.<\/span><\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/span><\/p>\n

Chc\u0119 tylko, by \u015bwiat wiedzia\u0142, przez jakie zmagania przechodzimy, jak trudne mo\u017ce by\u0107 kontynuowanie codziennego \u017cycia. Chc\u0119, \u017ceby \u015bwiat o tym wiedzia\u0142.<\/span><\/p>\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/span><\/p>\n

Gdybym jutro zosta\u0142 wyleczony, szczerze m\u00f3wi\u0105c, po prostu zacz\u0105\u0142bym biega\u0107, zaprosi\u0142bym ca\u0142\u0105 rodzin\u0119 i przyjaci\u00f3\u0142 i po prostu pobiegliby\u015bmy tak daleko, jak to tylko mo\u017cliwe, jak Forest Gump. \u015amialiby\u015bmy si\u0119 i p\u0142akali przez ca\u0142\u0105 drog\u0119. \u015awiat na pewno dowiedzia\u0142by si\u0119, \u017ce jestem <\/span>wyleczony cz\u0142owieku!<\/span><\/p>\n

 <\/p>\n

Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105 <\/span>o godz: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Aric \u00a0\u00a0Age:\u00a0 22 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2253,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-2254","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Aric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/09\/18\/aric\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Aric - 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