{"id":2283,"date":"2018-09-29T08:54:12","date_gmt":"2018-09-29T13:54:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2283"},"modified":"2018-09-29T08:54:12","modified_gmt":"2018-09-29T13:54:12","slug":"nicole-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/09\/29\/nicole-2\/","title":{"rendered":"OSOBA Z LGMD: Nicole"},"content":{"rendered":"

LGMD \"Wywiad w \u015bwietle reflektor\u00f3w\"<\/strong><\/p>\n

\u00a0<\/strong>Nazwa<\/strong>: Nicole \u00a0\u00a0Wiek<\/strong>24 lata\u00a0\u00a0\"\"<\/a><\/p>\n

Kraj<\/strong>: Stany Zjednoczone<\/p>\n

Podtyp LGMD<\/strong>: LGMD 2A \/ kalpainopatia<\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n

Zdiagnozowano mnie w wieku oko\u0142o 12 lat.<\/p>\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n

Moje pierwsze objawy to chodzenie na palcach.<\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong><\/p>\n

Nikt inny w mojej rodzinie nie choruje na LGMD.<\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/p>\n

Ostatnio jednym z moich najwi\u0119kszych wyzwa\u0144 jest utrzymanie energii i wytrzyma\u0142o\u015bci przez ca\u0142y dzie\u0144. Mam r\u00f3wnie\u017c trudno\u015bci z radzeniem sobie z ci\u0105gle zmieniaj\u0105cymi si\u0119 objawami i dostosowaniem swojego \u017cycia.<\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n

M<\/strong>Moim najwi\u0119kszym osi\u0105gni\u0119ciem jest praca na pe\u0142ny etat i 40 godzin tygodniowo (nawet je\u015bli jest to m\u0119cz\u0105ce!).<\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj:<\/strong><\/p>\n

LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142am si\u0119 bardziej empatyczn\u0105 i wyrozumia\u0142\u0105 osob\u0105. My\u015bl\u0119, \u017ce bez LGMD nie by\u0142abym tym, kim jestem i jestem za to wdzi\u0119czna!<\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n

Chocia\u017c choroba LGMD stanowi du\u017c\u0105 cz\u0119\u015b\u0107 mojego \u017cycia, nie jest to jedyna jego cz\u0119\u015b\u0107. Nie wstydz\u0119 si\u0119 swojej niepe\u0142nosprawno\u015bci, ale mam o wiele wi\u0119cej do zaoferowania.<\/p>\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/p>\n

My\u015bl\u0119, \u017ce chcia\u0142bym p\u00f3j\u015b\u0107 pobiega\u0107 J<\/p>\n

* * * Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 na ochotnika do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105 pod adresem https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* * * Prosimy o LIKE, COMMENT i SHARE tego postu, aby pom\u00f3c zwi\u0119kszy\u0107 \u015bwiadomo\u015b\u0107 na temat LGMD!<\/p>","protected":false},"excerpt":{"rendered":"

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