{"id":2303,"date":"2018-10-08T09:01:34","date_gmt":"2018-10-08T14:01:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2303"},"modified":"2018-10-08T09:01:34","modified_gmt":"2018-10-08T14:01:34","slug":"dan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/","title":{"rendered":"OSOBA Z LGMD: Dan"},"content":{"rendered":"

LGMD \"Wywiad w \u015bwietle reflektor\u00f3w\"<\/strong><\/p>\n

Nazwa<\/strong>: Dan \u00a0Wiek<\/strong>: 40 Yrs. Wiek\u00a0\u00a0\"\"<\/a><\/p>\n

Kraj<\/strong>: Stany Zjednoczone<\/p>\n

Podtyp LGMD<\/strong>: LGMD2i<\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n

Zdiagnozowano mnie w wieku 30 lat.<\/p>\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n

Moim pierwszym objawem by\u0142o os\u0142abienie n\u00f3g. Pami\u0119tam, jak nadepn\u0105\u0142em na rolk\u0119 dywanu i upad\u0142em, poniewa\u017c moja noga wysiad\u0142a. Chodzi\u0142em nietypowym chodem. Nie by\u0142em w stanie zrobi\u0107 nawet jednego przysiadu bez chwytania si\u0119 za nogi, by si\u0119 podci\u0105gn\u0105\u0107.<\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD? <\/strong><\/p>\n

Nie, jestem jedyn\u0105 osob\u0105 w mojej rodzinie cierpi\u0105c\u0105 na LGMD.<\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/p>\n

Zdecydowanie schody s\u0105 obecnie moim najwi\u0119kszym wyzwaniem. W rzeczywisto\u015bci ka\u017cdy stopie\u0144 z podstopnic\u0105 wy\u017csz\u0105 ni\u017c 3\u2033 jest albo niezwykle trudny, albo nie do pokonania. Na pocz\u0105tku kompensowa\u0142em s\u0142abo\u015b\u0107 n\u00f3g, u\u017cywaj\u0105c r\u0105k na por\u0119czy, aby wej\u015b\u0107 po schodach, ale w ci\u0105gu ostatnich kilku lat moja si\u0142a ramion zosta\u0142a os\u0142abiona.<\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n

Mam na swoim koncie wiele ma\u0142ych triumf\u00f3w. Jednym z nich by\u0142o przej\u015bcie przez Most Brookli\u0144ski w Nowym Jorku. Moim najwi\u0119kszym osi\u0105gni\u0119ciem jest jednak zaakceptowanie i zaakceptowanie mojej choroby (LGMD), dzi\u0119ki czemu otworzy\u0142em o wiele wi\u0119cej drzwi i mo\u017cliwo\u015bci w moim \u017cyciu. Nauczy\u0142am si\u0119, \u017ce m\u00f3j stan nie definiuje tego, kim jestem jako osoba.<\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj: <\/strong><\/p>\n

LGMD nauczy\u0142o mnie wielu rzeczy w moim \u017cyciu, ale najwi\u0119ksz\u0105 z nich jest cierpliwo\u015b\u0107. Zawsze by\u0142em cierpliw\u0105 osob\u0105, ale nauczy\u0142em si\u0119, \u017ce rzeczy nie dziej\u0105 si\u0119 wed\u0142ug mojego harmonogramu, ale wtedy, gdy jestem na nie gotowy.<\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n

    \n
  1. Dystrofia mi\u0119\u015bniowa obr\u0119czy ko\u0144czyny nie jest ubraniem.<\/li>\n
  2. To, \u017ce LGMD jest po prostu testem, wszyscy przechodzimy przez jaki\u015b rodzaj testu w \u017cyciu, moim jest LGMD. To kwestia \"wyboru\", jak zareaguj\u0119 i co z tym zrobi\u0119. Nie mam prawa robi\u0107 mniej ni\u017c ktokolwiek inny. Tak, mam Dystrofi\u0119 Mi\u0119\u015bniow\u0105 Ko\u0144czyn, ale ona nigdy nie b\u0119dzie mia\u0142a mnie.<\/li>\n<\/ol>\n

    Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/p>\n

    Posz\u0142abym pobiega\u0107!<\/p>\n

    Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

    LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. Old\u00a0\u00a0 Country: […]<\/p>","protected":false},"author":1,"featured_media":2302,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-2303","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. 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