{"id":2357,"date":"2018-12-11T14:39:46","date_gmt":"2018-12-11T20:39:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2357"},"modified":"2018-12-11T14:39:46","modified_gmt":"2018-12-11T20:39:46","slug":"individual-with-lgmd-melissa","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/12\/11\/individual-with-lgmd-melissa\/","title":{"rendered":"OSOBA Z LGMD: Melissa"},"content":{"rendered":"

LGMD \"WYWIAD W \u015aWIETLE REFLEKTOR\u00d3W\"<\/strong><\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

Nazwa<\/strong>: Melissa Wiek<\/strong>: 32 lata<\/p>\n\n\n\n

Kraj<\/strong>: Stany Zjednoczone<\/p>\n\n\n\n

Podtyp LGMD<\/strong>: LGMD2A (posta\u0107 kalpainopatii) <\/p>\n\n\n\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n\n\n\n

Zdiagnozowano mnie w wieku 26 lat.<\/p>\n\n\n\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n\n\n\n

Kiedy mia\u0142em 5 lat, mia\u0142em problemy z bieganiem, mia\u0142em powi\u0119kszone mi\u0119\u015bnie n\u00f3g, cz\u0119sto si\u0119 potyka\u0142em i mia\u0142em trudno\u015bci ze wstawaniem z pod\u0142ogi.<\/p>\n\n\n\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong><\/p>\n\n\n\n

Nie, jestem jedyn\u0105 osob\u0105 w mojej rodzinie z diagnoz\u0105\nLGMD2A<\/p>\n\n\n\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie\nw \u017cyciu z LGMD<\/strong>:<\/p>\n\n\n\n

Najwi\u0119ksze wyzwania dla mnie to brak mo\u017cliwo\u015bci pomagania innym, utrata si\u0142, brak mo\u017cliwo\u015bci dosi\u0119gni\u0119cia rzeczy na w\u00f3zku inwalidzkim i konieczno\u015b\u0107 polegania na pomocy innych.<\/p>\n\n\n\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n\n\n\n

Moim najwi\u0119kszym osi\u0105gni\u0119ciem jest umiej\u0119tno\u015b\u0107 zachowania pozytywnego nastawienia podczas zmaga\u0144 i to, \u017ce staram si\u0119 szerzy\u0107 \u017cyczliwo\u015b\u0107 przy ka\u017cdej nadarzaj\u0105cej si\u0119 okazji.<\/p>\n\n\n\n

W jaki spos\u00f3b LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119\nosob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj:<\/strong><\/p>\n\n\n\n

\u017bycie z LGMD nauczy\u0142o mnie, jak by\u0107 silnym emocjonalnie\ngdy moje cia\u0142o s\u0142abnie fizycznie.<\/p>\n\n\n\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n\n\n\n

Chc\u0119, aby ludzie wiedzieli, \u017ce stwardnienie rozsiane to nie to samo co SM i \u017ce LGMD nie wp\u0142ywa na m\u00f3j m\u00f3zg.<\/p>\n\n\n\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co\nby\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107<\/strong>:<\/p>\n\n\n\n

Pobieg\u0142bym na najbli\u017csze lotnisko, polecia\u0142 do Nowego Jorku odwiedzi\u0107 brata i zako\u0144czy\u0142 dzie\u0144 relaksuj\u0105c si\u0119 w jacuzzi.<\/p>\n\n\n\n

Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105 pod adresem https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Melissa Age: 32 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2355,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2357","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Melissa - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2018\/12\/11\/individual-with-lgmd-melissa\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Melissa - 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