{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"OSOBA Z LGMD: Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"WYWIAD W \u015aWIETLE REFLEKTOR\u00d3W\" <\/strong><\/p>\n\n\n\n

Nazwa<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Wiek<\/strong>23 lata<\/p>\n\n\n\n

Kraj<\/strong>: USA   <\/p>\n\n\n\n

Podtyp LGMD<\/strong>: LGMD 2B\/R2 zwi\u0105zane z dysferlin\u0105<\/p>\n\n\n\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n\n\n\n

Kiedy mia\u0142em dwa lata, b\u0142\u0119dnie zdiagnozowano u mnie miopati\u0119 mi\u0119\u015bniow\u0105. Dwie dekady p\u00f3\u017aniej dok\u0142adnie zdiagnozowano u mnie LGMD.                                 <\/p>\n\n\n\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n\n\n\n

Moimi pierwszymi objawami by\u0142o op\u00f3\u017anienie mowy, s\u0142abe chodzenie i niemo\u017cno\u015b\u0107 usiedzenia w miejscu.<\/p>\n\n\n\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong>:<\/strong><\/p>\n\n\n\n

Nie, jestem jedyn\u0105 osob\u0105 w mojej rodzinie z LGMD.<\/p>\n\n\n\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>:<\/p>\n\n\n\n

Jest wiele wyzwa\u0144, z kt\u00f3rych najwi\u0119kszym jest dla mnie chodzenie po schodach.<\/p>\n\n\n\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n\n\n\n

Moim najwi\u0119kszym osi\u0105gni\u0119ciem by\u0142oby stworzenie i zarejestrowanie mojej organizacji non-profit, kt\u00f3ra nazywa si\u0119 Deletethewordcant. Zamierzam te\u017c zdoby\u0107 tytu\u0142 magistra psychologii.<\/p>\n\n\n\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj?<\/strong>:<\/strong><\/p>\n\n\n\n

Wp\u0142yn\u0119\u0142o to na mnie, poniewa\u017c musia\u0142em by\u0107 silniejszy i twardszy w szkole, prze\u015bladowaniach, codziennych czynno\u015bciach i wielu innych.<\/p>\n\n\n\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n\n\n\n

\u015awiat powinien wiedzie\u0107, \u017ce bez wzgl\u0119du na to, czy masz LGMD, czy nie, zawsze wierz w siebie. Z niekt\u00f3rymi rzeczami mo\u017cesz mie\u0107 trudno\u015bci lub mo\u017ce to zaj\u0105\u0107 wi\u0119cej czasu, ale nigdy si\u0119 nie poddawaj. Zawsze m\u00f3w MOG\u0118!<\/p>\n\n\n\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/p>\n\n\n\n

Gdybym jutro wyzdrowia\u0142, wspi\u0105\u0142bym si\u0119 na najwy\u017cszy szczyt g\u00f3rski.<\/p>\n\n\n\n

Aby przeczyta\u0107 wi\u0119cej wywiad\u00f3w \"LGMD Spotlight Interviews\" lub zg\u0142osi\u0107 si\u0119 do udzia\u0142u w nadchodz\u0105cym wywiadzie, odwied\u017a nasz\u0105 stron\u0119 internetow\u0105: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d  Name: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age:\u00a0 23 yrs. old Country:  […]<\/p>","protected":false},"author":1,"featured_media":3333,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3332","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Eric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Eric - 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