{"id":3769,"date":"2020-12-03T09:38:38","date_gmt":"2020-12-03T15:38:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3769"},"modified":"2024-02-09T14:24:25","modified_gmt":"2024-02-09T14:24:25","slug":"individual-with-lgmd-saira","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","title":{"rendered":"OSOBA Z LGMD - Saira"},"content":{"rendered":"

\"\"<\/a><\/strong><\/p>\n

Nazwa<\/strong>: Saira<\/p>\n

Wiek<\/strong>: 29<\/p>\n

Kraj<\/strong>: Hindus mieszkaj\u0105cy w Zjednoczonych Emiratach Arabskich<\/p>\n

Podtyp LGMD<\/strong> (je\u015bli jest znany): LGMD 2B\/R2 Zwi\u0105zane z dysferlin\u0105<\/p>\n

\u00a0<\/strong><\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>:<\/p>\n

Zosta\u0142em zdiagnozowany w wieku 16 lat. Potwierdzenie genetyczne otrzyma\u0142em w lutym 2020 roku.<\/p>\n

Jakie by\u0142y pierwsze objawy?<\/strong>:<\/p>\n

Nag\u0142e upadki i wstawanie z pozycji siedz\u0105cej na ziemi by\u0142y pierwszymi objawami.<\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD? <\/strong><\/p>\n

Nie, \u017caden z cz\u0142onk\u00f3w mojej rodziny nie choruje na LGMD. Jestem jedyn\u0105 osob\u0105, u kt\u00f3rej zdiagnozowano LGMD.<\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong><\/p>\n

Bariery \u015brodowiskowe i dost\u0119pno\u015b\u0107 w\u00f3zk\u00f3w inwalidzkich. Mo\u017cliwo\u015bci zatrudnienia bez pi\u0119tna zwi\u0105zanego z moimi umiej\u0119tno\u015bciami. Brak neurolog\u00f3w zainteresowanych LGMD i szybk\u0105 reakcj\u0105 na diagnoz\u0119. Post\u0119p LGMD i spos\u00f3b radzenia sobie z ci\u0105g\u0142ymi wyzwaniami zwi\u0105zanymi z chorob\u0105. Niewiele lub brak wskaz\u00f3wek dotycz\u0105cych rodzaj\u00f3w sprz\u0119tu, kt\u00f3ry m\u00f3g\u0142by by\u0107 pomocny w codziennych czynno\u015bciach.<\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong>:<\/p>\n

Rozpocz\u0119cie nowej pracy w firmie w Zjednoczonych Emiratach Arabskich i umo\u017cliwienie mi pracy z domu w ramach dost\u0119pnych udogodnie\u0144. Teraz codziennie pracuj\u0119 w Inclusive, aby wywrze\u0107 globalny wp\u0142yw i uczyni\u0107 ten \u015bwiat bardziej dost\u0119pnym online i offline.<\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj: <\/strong><\/p>\n

Da\u0142o mi to nowe spojrzenie na \u017cycie i pozwoli\u0142o doceni\u0107 m\u00f3j czas i obecne umiej\u0119tno\u015bci.<\/p>\n

By\u0107 mo\u017ce nie jestem w stanie zrobi\u0107 wszystkiego fizycznie, tak jak inna osoba, ale to nie znaczy, \u017ce nie mam nic do wniesienia w wywieranie wp\u0142ywu na \u015bwiat, kt\u00f3ry wszyscy dzielimy w r\u00f3wnym stopniu.<\/p>\n

LGMD nauczy\u0142o mnie by\u0107 wdzi\u0119cznym mojej rodzinie bardziej ni\u017c wcze\u015bniej, dzi\u0119ki ich ci\u0105g\u0142emu wsparciu.<\/p>\n

To sprawi\u0142o, \u017ce \u017cyj\u0119 i kocham ka\u017cd\u0105 chwil\u0119 jeszcze bardziej.<\/p>\n

Poniewa\u017c jest to choroba zwyrodnieniowa, post\u0119puje, rzeczy, kt\u00f3re mog\u0119 zrobi\u0107 dzisiaj, mog\u0105 nie by\u0107 rzeczami, kt\u00f3re mog\u0119 zrobi\u0107 w nadchodz\u0105cym roku. Dlatego staram si\u0119 cieszy\u0107 ka\u017cdym ruchem fizycznym, kt\u00f3ry mog\u0119 wykona\u0107 dzisiaj, w\u0142a\u015bnie teraz. Pocz\u0105wszy od czesania w\u0142os\u00f3w po zrobienie sobie fili\u017canki herbaty, doceniam to.<\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>:<\/p>\n

Chc\u0119, aby \u015bwiat wiedzia\u0142, \u017ce jest to rzadka choroba. Mo\u017ce przytrafi\u0107 si\u0119 ka\u017cdemu. To mo\u017cesz by\u0107 Ty, kt\u00f3ry to czytasz, lub kto\u015b, kogo nie znasz, a kto mo\u017ce z ni\u0105 \u017cy\u0107. Ale ludzie \u017cyj\u0105 z t\u0105 wyniszczaj\u0105c\u0105 mi\u0119\u015bnie chorob\u0105, kt\u00f3ra czeka na wyleczenie. Mog\u0119 poda\u0107 przyk\u0142ad pandemii i tego, jak naukowcy na ca\u0142ym \u015bwiecie \u015bcigaj\u0105 si\u0119, aby znale\u017a\u0107 szczepionk\u0119. Podczas gdy w przypadku LGMD badania trwaj\u0105 od dziesi\u0119cioleci bez rezultat\u00f3w, brak funduszy lub brak wsparcia ze strony rz\u0105du to tylko niekt\u00f3re z powod\u00f3w. Pocz\u0105wszy od objaw\u00f3w, poprzez diagnoz\u0119, a\u017c do dnia, w kt\u00f3rym zaakceptowa\u0142am LGMD i zacz\u0119\u0142am z ni\u0105 \u017cy\u0107, by\u0142a to samotna podr\u00f3\u017c. Wsparcie mojego m\u0119\u017ca, rodziny i przyjaci\u00f3\u0142 jest czym\u015b, co dodaje mi odwagi ka\u017cdego dnia. Brak specjalist\u00f3w, brak odpowiedniej wiedzy na ten temat to co\u015b, z czym spotykam si\u0119 podczas ka\u017cdej wizyty u lekarza. Potrzebujemy empatii w \u015brodowisku bez barier. Jeszcze wczoraj chodzi\u0142am, a dzi\u015b potrzebuj\u0119 w\u00f3zka inwalidzkiego. Usprawiedliwienie mojego stanu by\u0142oby \u0142atwiejsze, gdyby ludzie wiedzieli o LGMD.<\/p>\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>:<\/p>\n

Pytanie, na kt\u00f3re odpowiadam, jest hipotetyczne. Chcia\u0142bym odpowiedzie\u0107 na nie tak, jakby by\u0142o praktyczne i czekam na ten dzie\u0144 z pozytywnym nastawieniem i nadziej\u0105.<\/p>\n

Ten dzie\u0144 mo\u017ce by\u0107 odleg\u0142y, a mo\u017ce by\u0107 wkr\u00f3tce. Chcia\u0142bym pa\u015b\u0107 na kolana i modli\u0107 si\u0119 tak, jak chc\u0119, zgodnie z moimi przekonaniami religijnymi. Chcia\u0142bym ta\u0144czy\u0107 i je\u017adzi\u0107 na \u0142y\u017cwach, czego nie mog\u0119 ju\u017c robi\u0107, poniewa\u017c \u017cyj\u0119 z LGMD. Chcia\u0142abym prowadzi\u0107 samoch\u00f3d. Chcia\u0142bym zn\u00f3w sta\u0107 si\u0119 niezale\u017cny.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":3836,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3769","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-12-03T15:38:38+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD – Saira\",\"datePublished\":\"2020-12-03T15:38:38+00:00\",\"dateModified\":\"2024-02-09T14:24:25+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\"},\"wordCount\":921,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\",\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"pl-PL\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\",\"url\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\",\"name\":\"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\",\"datePublished\":\"2020-12-03T15:38:38+00:00\",\"dateModified\":\"2024-02-09T14:24:25+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#breadcrumb\"},\"inLanguage\":\"pl-PL\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png\",\"width\":1280,\"height\":720,\"caption\":\"Lgmd2b Saira S\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD – Saira\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pl-PL\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pl-PL\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","og_locale":"pl_PL","og_type":"article","og_title":"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2020-12-03T15:38:38+00:00","article_modified_time":"2024-02-09T14:24:25+00:00","og_image":[{"width":1280,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"5 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD – Saira","datePublished":"2020-12-03T15:38:38+00:00","dateModified":"2024-02-09T14:24:25+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/"},"wordCount":921,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png","articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"pl-PL"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/","name":"INDIVIDUAL WITH LGMD - Saira - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png","datePublished":"2020-12-03T15:38:38+00:00","dateModified":"2024-02-09T14:24:25+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#breadcrumb"},"inLanguage":"pl-PL","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/"]}]},{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD2B-Saira-S.png","width":1280,"height":720,"caption":"Lgmd2b Saira S"},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/12\/03\/individual-with-lgmd-saira\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD – Saira"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pl-PL"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pl-PL","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/3769","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/comments?post=3769"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/3769\/revisions"}],"predecessor-version":[{"id":7470,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/posts\/3769\/revisions\/7470"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/media\/3836"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/media?parent=3769"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/categories?post=3769"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pl\/wp-json\/wp\/v2\/tags?post=3769"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}