{"id":413,"date":"2015-01-12T22:03:55","date_gmt":"2015-01-13T04:03:55","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=141"},"modified":"2015-01-12T22:03:55","modified_gmt":"2015-01-13T04:03:55","slug":"irina","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Irina"},"content":{"rendered":"

01\/12\/2015:<\/p>\n

NAZWA<\/strong>: Irina\u00a0 \"LGMD2A<\/a> <\/span><\/p>\n

WIEK<\/strong>: 18
\n<\/span><\/p>\n

KRAJ:<\/strong> Francja
\n<\/span><\/p>\n

Podtyp LGMD:<\/strong> LGMD 2A \/ Calpainopathy<\/span><\/p>\n

W JAKIM WIEKU ZOSTA\u0141E\u015a ZDIAGNOZOWANY?<\/strong> When I was 14 years old.<\/p>\n

JAKIE BY\u0141Y PIERWSZE OBJAWY:<\/strong>
\nThe first symptom that I experienced was having difficulty running.<\/p>\n

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD: No. <\/strong>
\n CO JEST DLA CIEBIE NAJWI\u0118KSZYM WYZWANIEM W \u017bYCIU Z LGMD?<\/strong>
\nStairs\u2026there are just so many of them! Also, not knowing if people feel sympathy or just pity.<\/p>\n

JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE?<\/strong>
\nI was able to get to the top of the Cathedral Santa Maria del Fiore famously known as \u201cThe Duomo\u201d in Italy. It has 465 grueling steps to the top! But better than that, the greatest accomplishment of mine is to stay happy and keep smiling no matter what.<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ:<\/strong>
\nKnowing that I have LGMD has made me grow up or to be more mature for my age. I have become calm and relaxed by not letting the little things bother me. I also find that I worry less \u2013 only about what is important. I don\u2019t have time to worry about trifles.<\/p>\n

CO CHCIA\u0141BY\u015a, ABY \u015aWIAT DOWIEDZIA\u0141 SI\u0118 O LGMD?<\/strong>:
\nI want people to know that the disease of LGMD exists! That just because someone has trouble running \u2013 don\u2019t call them lazy. Also, if a girl uses a walking stick it is probably because she needs it – it is not about looking good!<\/p>\n

GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106?<\/strong>:
\nTo run after the bus that I just missed!<\/p>","protected":false},"excerpt":{"rendered":"

01\/12\/2015: NAME: Irina\u00a0 AGE: 18 COUNTRY: France LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,18,15],"class_list":["post-413","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-france","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Irina<\/title>\n<meta name=\"description\" content=\"Irina, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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