{"id":417,"date":"2015-02-18T14:59:09","date_gmt":"2015-02-18T20:59:09","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=282"},"modified":"2015-02-18T14:59:09","modified_gmt":"2015-02-18T20:59:09","slug":"282","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","title":{"rendered":"OSOBA Z LGMD: Suzanne"},"content":{"rendered":"

\u00a002\/18\/2015:<\/span><\/p>\n

NAZWISKO: Suzanne \"LGMD2B<\/a><\/span><\/p>\n

WIEK: 45
\n<\/span><\/p>\n

KRAJ: Anglia
\n<\/span><\/p>\n

Podtyp LGMD: LGMD2B - Wariant Miyoshi
\n
\nW JAKIM WIEKU ZOSTA\u0141E\u015a ZDIAGNOZOWANY?
\nZosta\u0142em prawid\u0142owo zdiagnozowany w wieku oko\u0142o 29 lat.<\/span><\/span><\/p>\n

JAKIE BY\u0141Y PIERWSZE OBJAWY:
\nNie mog\u0142em stan\u0105\u0107 na palcach.<\/p>\n

CZY MA PAN\/PANI INNYCH CZ\u0141ONK\u00d3W RODZINY, KT\u00d3RZY CHORUJ\u0104 NA LGMD: Nie<\/p>\n

CO JEST DLA CIEBIE NAJWI\u0118KSZYM WYZWANIEM W \u017bYCIU Z LGMD?
\nNajwi\u0119kszym wyzwaniem jest znalezienie energii do robienia wszystkiego, co chc\u0119. Uwa\u017cam, \u017ce nawet wstanie z krzes\u0142a to ci\u0119\u017cka praca.<\/p>\n

JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE?
\nMoim najwi\u0119kszym osi\u0105gni\u0119ciem jest \u015blub i dw\u00f3jka wspania\u0142ych dzieci. Nauczy\u0142em si\u0119 r\u00f3wnie\u017c p\u0142ywa\u0107 \u0142odzi\u0105 z Sailability i je\u017adzi\u0142em na \u0142y\u017cwach na w\u00f3zku inwalidzkim!<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ:
\nPomog\u0142o mi to u\u015bwiadomi\u0107 sobie, co jest naprawd\u0119 wa\u017cne w \u017cyciu, takie jak rodzina i przyjaciele, i doceni\u0107 to, co mam, poniewa\u017c zawsze s\u0105 ludzie w gorszej sytuacji ni\u017c ty.<\/p>\n

CO CHCIA\u0141BY\u015a, ABY \u015aWIAT WIEDZIA\u0141 O LGMD: Obecnie nie ma metod leczenia ani lekarstwa na LGMD 2B Miyoshi. Fundacja Jain pomaga obecnie w badaniach klinicznych i badaniach, aby dowiedzie\u0107 si\u0119 wi\u0119cej o chorobie i spr\u00f3bowa\u0107 znale\u017a\u0107 metody leczenia lub lekarstwo!<\/p>\n

GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106:
\nPrzytuli\u0142abym moje dzieci, pobieg\u0142abym ulic\u0105 i wzi\u0119\u0142a lekcje ta\u0144ca.<\/p>","protected":false},"excerpt":{"rendered":"

\u00a002\/18\/2015: NAME: Suzanne AGE: 45 COUNTRY: England LGMD Sub-Type: LGMD2B […]<\/p>","protected":false},"author":1,"featured_media":283,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[26,23,27],"class_list":["post-417","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-england","tag-lgmd2b","tag-miyoshi-variant"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Suzanne<\/title>\n<meta name=\"description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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