{"id":606,"date":"2015-04-25T15:46:38","date_gmt":"2015-04-25T20:46:38","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=606"},"modified":"2015-04-25T15:46:38","modified_gmt":"2015-04-25T20:46:38","slug":"audrey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/","title":{"rendered":"OSOBA Z LGMD: Audrey"},"content":{"rendered":"

04\/25\/2015<\/p>\n

NAZWA<\/strong>: Audrey\"LGMD2i<\/a><\/p>\n

WIEK<\/strong>: 42 Yrs. Wiek<\/p>\n

KRAJ<\/strong>: Stany Zjednoczone<\/p>\n

Podtyp LGMD<\/strong>: LGMD2i<\/p>\n

W JAKIM WIEKU ZOSTA\u0141E\u015a ZDIAGNOZOWANY?<\/strong>:
\nLGMD zdiagnozowano u mnie w wieku 37 lat. Przed diagnoz\u0105 nigdy o niej nie s\u0142ysza\u0142em.<\/p>\n

JAKIE BY\u0141Y PIERWSZE OBJAWY<\/strong>:<\/p>\n

Po dwudziestce zauwa\u017cy\u0142em, \u017ce mam problemy z wchodzeniem po schodach, podnoszeniem si\u0119 z pod\u0142ogi i unoszeniem n\u00f3g. Niestety, nie zdawa\u0142em sobie sprawy z tego, jak nienormalnie s\u0142aby si\u0119 sta\u0142em. My\u015bla\u0142em, \u017ce po prostu nie jestem w formie lub nie jestem skoordynowany. Kiedy potrzebowa\u0142em fizjoterapii z powodu b\u00f3lu barku, lekarz odes\u0142a\u0142 mnie z powrotem do mojego lekarza, poniewa\u017c uzna\u0142a, \u017ce co\u015b jest powa\u017cnie nie tak.<\/p>\n

CZY MASZ INNYCH CZ\u0141ONK\u00d3W RODZINY, KT\u00d3RZY CHORUJ\u0104 NA LGMD?<\/strong>:<\/p>\n

Moja starsza siostra r\u00f3wnie\u017c ma LGMD2i, ale jej post\u0119p jest wolniejszy.<\/p>\n

CO UWA\u017bASZ ZA NAJWI\u0118KSZE WYZWANIE W \u017bYCIU Z LGMD?<\/strong>:<\/p>\n

Moim najwi\u0119kszym wyzwaniem by\u0142o przyj\u0119cie pomocy bez poczucia bycia ci\u0119\u017carem dla innych. Nadal jestem w stanie chodzi\u0107, ale potrzebuj\u0119 du\u017co pomocy od mojej rodziny w codziennym \u017cyciu. Jestem szcz\u0119\u015bciar\u0105, \u017ce mam tak wspania\u0142y rodzinny system wsparcia. Czasami nie mog\u0119 uwierzy\u0107, jakie mam szcz\u0119\u015bcie!<\/p>\n

JAKIE JEST TWOJE NAJWI\u0118KSZE OSI\u0104GNI\u0118CIE?<\/strong>:<\/p>\n

Ostatnie 23 lata sp\u0119dzi\u0142am jako matka moich 3 c\u00f3rek. Macierzy\u0144stwo jest z pewno\u015bci\u0105 moim najwi\u0119kszym osi\u0105gni\u0119ciem.<\/p>\n

JAK CHOROBA ALZHEIMERA WP\u0141YN\u0118\u0141A NA TO, \u017bE STA\u0141E\u015a SI\u0118 OSOB\u0104, KT\u00d3R\u0104 JESTE\u015a DZISIAJ?<\/strong>:<\/p>\n

LGMD pozwoli\u0142o mi po prostu zaakceptowa\u0107 to, co oferuje \u017cycie. W obliczu tej diagnozy i niepewnej przysz\u0142o\u015bci odkry\u0142am, \u017ce nadal jestem w porz\u0105dku... Mog\u0119 to zrobi\u0107 i wszystko b\u0119dzie dobrze!<\/p>\n

CO CHCIA\u0141BY\u015a, ABY \u015aWIAT DOWIEDZIA\u0141 SI\u0118 O LGMD?<\/strong>:<\/p>\n

My\u015bl\u0119, \u017ce by\u0142oby wspaniale umie\u015bci\u0107 LGMD na radarze wi\u0119kszej liczby os\u00f3b. Wi\u0119kszo\u015b\u0107 lekarzy, z kt\u00f3rymi mia\u0142em do czynienia, nie s\u0142ysza\u0142a o tej chorobie.<\/p>\n

GDYBY JUTRO MO\u017bNA BY\u0141O \"WYLECZY\u0106\" CHOROB\u0118 ALZHEIMERA, CO BY\u0141OBY PIERWSZ\u0104 RZECZ\u0104, KT\u00d3R\u0104 CHCIA\u0141BY\u015a ZROBI\u0106?<\/strong>:<\/p>\n

Gdybym jutro zosta\u0142 wyleczony, pobieg\u0142bym. Bieg\u0142bym tak daleko, jak tylko m\u00f3g\u0142bym, a potem wspina\u0142bym si\u0119 po schodach. Pomaga\u0142bym ka\u017cdej osobie, kt\u00f3ra co\u015b upu\u015bci\u0142a, podnie\u015b\u0107 to. Sadzi\u0142bym i piel\u0119gnowa\u0142 pi\u0119kny ogr\u00f3d. Nigdy nie bra\u0142bym tych n\u00f3g za pewnik!<\/p>","protected":false},"excerpt":{"rendered":"

04\/25\/2015 NAME: \u00a0Audrey AGE: 42 Yrs. Old COUNTRY: United States […]<\/p>","protected":false},"author":1,"featured_media":607,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-606","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Audrey<\/title>\n<meta name=\"description\" content=\"Audrey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/25\/audrey\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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