{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"OSOBA Z LGMD: Heather"},"content":{"rendered":"

\"<\/p>\n

Nazwa<\/strong>: Heather<\/p>\n

Wiek<\/strong>60 lat<\/p>\n

Kraj<\/strong>: USA<\/p>\n

Podtyp LGMD<\/strong>: LGMD2A\/R1 spokrewniona z kalpain\u0105 3<\/p>\n

W jakim wieku zosta\u0142e\u015b zdiagnozowany?<\/strong>?<\/p>\n

Zdiagnozowano mnie w wieku 30 lat.<\/p>\n

Jakie by\u0142y Twoje pierwsze SYMPTOMY?<\/strong><\/p>\n

Moje pierwsze objawy obejmowa\u0142y ch\u00f3d z boku na bok, trudno\u015bci z chodzeniem po schodach i upadki.<\/p>\n

Czy masz innych cz\u0142onk\u00f3w rodziny cierpi\u0105cych na LGMD?<\/strong><\/p>\n

Nie, jestem jedyn\u0105 osob\u0105 w mojej rodzinie cierpi\u0105c\u0105 na LGMD.<\/p>\n

Co uwa\u017casz za najwi\u0119ksze wyzwanie w \u017cyciu z LGMD?<\/strong>?<\/p>\n

Najwi\u0119kszym wyzwaniem dla mnie jest utrzymanie jak najwi\u0119kszej niezale\u017cno\u015bci bez pomocy. Jak dot\u0105d udawa\u0142o mi si\u0119 to.<\/p>\n

Jakie jest twoje najwi\u0119ksze osi\u0105gni\u0119cie?<\/strong><\/p>\n

Moje najwi\u0119ksze osi\u0105gni\u0119cia to dw\u00f3jka dzieci, dalsze samodzielne \u017cycie i prowadzenie furgonetki na w\u00f3zku inwalidzkim.<\/p>\n

Jak LGMD wp\u0142yn\u0119\u0142o na to, \u017ce sta\u0142e\u015b si\u0119 osob\u0105, kt\u00f3r\u0105 jeste\u015b dzisiaj?<\/strong><\/p>\n

LGMD wp\u0142yn\u0119\u0142o na mnie, czyni\u0105c mnie bardziej niezale\u017cn\u0105 i pozytywn\u0105 osob\u0105.<\/p>\n

Co chcia\u0142by\u015b, aby \u015bwiat dowiedzia\u0142 si\u0119 o LGMD?<\/strong>?<\/p>\n

Chc\u0119, aby \u015bwiat dowiedzia\u0142 si\u0119, \u017ce mo\u017cna prowadzi\u0107 szcz\u0119\u015bliwy, \"normalny\" tryb \u017cycia, je\u015bli tylko si\u0119 do tego przy\u0142o\u017cy, nawet je\u015bli porusza si\u0119 na w\u00f3zku inwalidzkim. Chc\u0119 r\u00f3wnie\u017c, aby \u015bwiat wiedzia\u0142, \u017ce nie pozwoli\u0142em, aby choroba LGMD mnie pokona\u0142a. \u017byj\u0119 pe\u0142ni\u0105 \u017cycia ka\u017cdego dnia z u\u015bmiechem na twarzy.<\/p>\n

Gdyby jutro mo\u017cna by\u0142o \"wyleczy\u0107\" chorob\u0119 LGMD, co by\u0142oby pierwsz\u0105 rzecz\u0105, kt\u00f3r\u0105 chcia\u0142by\u015b zrobi\u0107?<\/strong>?<\/p>\n

Gdybym jutro wyzdrowia\u0142, pierwsz\u0105 rzecz\u0105, jak\u0105 bym zrobi\u0142, by\u0142oby przebiegni\u0119cie maratonu z moim synem i c\u00f3rk\u0105. Oni s\u0105 moim \u015bwiatem!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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