Um dos desafios de viver com uma doen\u00e7a rara como a distrofia muscular da cintura escapular (LGMD) \u00e9 encontrar m\u00e9dicos e outros especialistas em cuidados de sa\u00fade que compreendam bem o processo da doen\u00e7a.<\/p>\n<\/div><\/div><\/div><\/div><\/div>
O G<\/strong>en\u00e9tico R<\/strong>esolu\u00e7\u00e3o e A<\/strong>avalia\u00e7\u00f5es S<\/strong>olving P<\/strong>henotypes in LGMD (GRASP-LGMD<\/strong>) consortium was created in 2018 and includes sites in the United States and abroad. The overarching mission of the GRASP-LGMD consortium is to hasten therapeutic development in the LGMDs. The consortium includes:<\/p><\/div> Calif\u00f3rnia<\/strong>: University of California in Irvine \u2014 Dr. Tahseen Mozaffar MD<\/p>\n<\/div><\/li> Colorado<\/strong>: University of Colorado Health In Aurora – Dr. Stacy Dixon, MD<\/p>\n<\/div><\/li> Fl\u00f3rida<\/strong>: University of Florida in Gainesville \u2013 Dr. Sub Subramony, MD<\/p>\n<\/div><\/li> Indiana<\/strong>: The Community Health Clinic in Shipshewana – Dr. Zineb Ammous, MD<\/p>\n<\/div><\/li> Iowa<\/strong>: University of Iowa in Iowa City \u2014 Dr. Katherine Mathews, MD<\/p>\n<\/div><\/li> Kansas<\/strong>: Kansas University Medical Center in Kansas City \u2014 Dr. Jeffrey Statland, MD<\/p>\n<\/div><\/li> Portugal<\/strong>: Kennedy Krieger Institute in Baltimore \u2014 Dr. Doris Leung, MD<\/p>\n<\/div><\/li> Minnesota<\/strong>: University of Minnesota in Minneapolis \u2014 Dr. Peter Kang, MD<\/p>\n<\/div><\/li> Missouri<\/strong>: Washington University in St. Louis \u2014 Dr. Conrad Weihl, MD, PhD<\/p>\n<\/div><\/li> Carolina do Norte<\/strong>: Atrium Health in Charlotte \u2013 Dr. Urvi Desai, MD<\/p>\n<\/div><\/li> Ohio: Nationwide Children\u2019s Hospital in Columbus \u2014 Lindsay Alfono, PT, DPT, PCS<\/p>\n<\/div><\/li>