{"id":1064,"date":"2015-12-04T10:35:14","date_gmt":"2015-12-04T16:35:14","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1064"},"modified":"2015-12-04T10:35:14","modified_gmt":"2015-12-04T16:35:14","slug":"robert","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/12\/04\/robert\/","title":{"rendered":"INDIVIDUAL WITH LGMD:  Robert"},"content":{"rendered":"<p><strong>12\/4\/2015:<\/strong><\/p>\n<p><strong>NOME:<\/strong>\u00a0 Robert\u00a0 \u00a0<strong>Idade<\/strong>: 71 yrs. old<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/12\/Unknown-Robert-P.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1065 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/12\/Unknown-Robert-P-300x169.png\" alt=\"Unknown -Robert P\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>PA\u00cdS<\/strong>: Canad\u00e1<\/p>\n<p><strong>LGMD Sub-tipo<\/strong>: Unknown<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>Com que idade foi diagnosticado<\/strong>:<\/p>\n<p>I was diagnosed when I was 42 yrs. old.<\/p>\n<p><strong>Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n<p>I did not walk until I was 24 months old.\u00a0 As a child I could not run like others but it was believed at the time to be caused by asthma.\u00a0 I have never been physically strong.<\/p>\n<p><strong>Tem outros familiares que sofrem de LGMD?<\/strong><strong>: \u00a0<\/strong><\/p>\n<p>Thankfully, no.\u00a0 I am the only person in my family diagnosed with LGMD.<\/p>\n<p><strong>Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n<p>One of the greatest challenges is the high cost of aids to keep one going with a reasonably good quality of life.<\/p>\n<p><strong>Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n<p>My greatest accomplishment is \u00a0the friendships I have developed.<strong> \u00a0<\/strong><\/p>\n<p><strong>Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><strong>:\u00a0 <\/strong><\/p>\n<p>I believe living with LGMD has taught me patience, organization, empathy for others, and humor.<\/p>\n<p><strong>O que quer que o mundo saiba sobre a LGMD<\/strong><strong>:\u00a0 <\/strong><\/p>\n<p>As my disability has progressed and more help is required to keep me active, I have realized that you cannot be poor and have a good quality of life when you are afflicted with a debilitating condition like LGMD, without a lot of assistance, both financial and physical.\u00a0 \u00a0Not everyone is as fortunate as I to work a full career and be able to plan for retirement.\u00a0 Please help to find a treatment or cure.<\/p>\n<p><strong>Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n<p>I want to go for a walk along the roads and in the fields and forest around my home community. \u00a0\u00a0\u00a0I have not done that in over 50 years \u2026.. and I miss it.\u00a0 Also, I would like to take my wife dancing; we have not been able to do that since the year we met (1986) and I think she misses it.<\/p>\n<p>Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"<p>12\/4\/2015: NAME:\u00a0 Robert\u00a0 \u00a0Age: 71 yrs. old COUNTRY: Canada LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1065,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[38,20,47],"class_list":["post-1064","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-canada","tag-united-kingdom","tag-unknown-sub-type"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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