{"id":1073,"date":"2016-01-07T14:39:41","date_gmt":"2016-01-07T20:39:41","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1073"},"modified":"2016-01-07T14:39:41","modified_gmt":"2016-01-07T20:39:41","slug":"janet","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/01\/07\/janet\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Janet"},"content":{"rendered":"

LGMD \"ENTREVISTA EM DESTAQUE\" -\u00a0<\/strong>01\/07\/2016<\/p>\n

NOME<\/strong>: Janet \u00a0\u00a0IDADE<\/strong>: 33 anos de idade\"LGMD2B<\/a><\/p>\n

PA\u00cdS<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

COM QUE IDADE FOI DIAGNOSTICADO: <\/strong><\/p>\n

Inicialmente foi-me diagnosticada erradamente Polimiosite aos 17 anos e anos mais tarde, aos 28 anos, foi-me diagnosticada LGMD2B.<\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS<\/strong>:<\/p>\n

Comecei a ter dificuldade em subir escadas, correr, dan\u00e7ar e n\u00e3o conseguia jogar futebol, nem praticar qualquer outro desporto.<\/p>\n

TEM OUTROS FAMILIARES QUE SOFREM DE LGMD<\/strong>:<\/p>\n

At\u00e9 mim, n\u00e3o h\u00e1 historial familiar de LGMD.<\/p>\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM A LGMD?<\/strong>:<\/p>\n

Perder a minha independ\u00eancia tem sido muito dif\u00edcil. J\u00e1 n\u00e3o sou capaz de caminhar longas dist\u00e2ncias. Agora preciso de uma cadeira el\u00e9ctrica para me deslocar. N\u00e3o consigo tomar conta dos meus dois filhos, de 2 anos e 3 meses, de forma aut\u00f3noma. Preciso de algu\u00e9m que me ajude a tomar conta deles.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O<\/strong>:<\/p>\n

O meu maior feito foi aceitar a minha doen\u00e7a. Preparei-me mentalmente para a minha transi\u00e7\u00e3o para uma cadeira el\u00e9ctrica, onde agora as coisas podem ser um pouco mais f\u00e1ceis quando estou fora de casa.<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE NA PESSOA QUE \u00c9 HOJE?<\/strong>:<\/p>\n

Tornei-me uma pessoa muito mais forte. Apesar dos obst\u00e1culos que surgem com a minha doen\u00e7a, a vida continua e eu fiz e farei o melhor que puder para mim e para a minha fam\u00edlia.<\/p>\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD<\/strong>:<\/p>\n

\u00c9 uma doen\u00e7a rara, mas existe e \u00e9 importante aumentar a consciencializa\u00e7\u00e3o para ajudar a encontrar tratamentos e uma cura.<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER?<\/strong>:<\/p>\n

Corria em dire\u00e7\u00e3o aos meus filhos e levantava-os no ar!<\/p>\n

 <\/p>\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0–\u00a001\/07\/2016 NAME: Janet \u00a0\u00a0AGE: \u00a033 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1074,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,16],"class_list":["post-1073","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Janet - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/01\/07\/janet\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Janet - 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