Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\nO maior problema que tive foi explicar a minha Distrofia Muscular \u00e0s pessoas (fam\u00edlia, amigos e desconhecidos) e n\u00e3o as fazer acreditar completamente em mim. S\u00f3 pensavam que eu estava cansada porque era pregui\u00e7osa.<\/p>\n
Passei uma noite no hospital com fortes c\u00e3ibras na perna que n\u00e3o conseguia acalmar. N\u00e3o consegui andar corretamente durante 3 semanas e continuei a ter de trabalhar com dores. Sempre tive problemas com escadas e em carregar coisas pesadas durante longos per\u00edodos de tempo.<\/p>\n
Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\nO meu maior feito foi ter casado em fevereiro com a minha mulher Rebecca. Ela tornou-se a minha for\u00e7a e motiva\u00e7\u00e3o para continuar a trabalhar. Sou uma segunda gera\u00e7\u00e3o de camionistas na Austr\u00e1lia e \u00e9 algo de que me orgulho muito! No entanto, o meu trabalho pode, por vezes, tornar-se bastante f\u00edsico e isso afecta-me. A minha mulher, Rebecca, ajuda-me em tudo isto. Ela \u00e9 a minha mulher maravilha.<\/p>\n
Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\nAprendi a ouvir as pessoas sobre a sua doen\u00e7a. Fiz muitos amigos fant\u00e1sticos no Facebook, com quem mantenho contacto. Ou\u00e7o as suas preocupa\u00e7\u00f5es e problemas e pe\u00e7o-lhes tamb\u00e9m conselhos. Acima de tudo, aprendi que n\u00e3o faz mal pedir ajuda quando preciso, em vez de tentar fazer tudo sozinha.<\/p>\n
O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\nQuero que o mundo saiba que a Distrofia Muscular das Cinturas dos Membros existe!!! \u00c9 incr\u00edvel a quantidade de vezes que tive de explicar a minha doen\u00e7a \u00e0s pessoas e elas quase n\u00e3o acreditaram em mim. Elas n\u00e3o compreendem que a minha LGMD n\u00e3o pode ser corrigida ou curada indo ao gin\u00e1sio. N\u00e3o existem curas ou tratamentos para a LGMD. N\u00e3o temos controlo sobre a nossa doen\u00e7a, \u00e9 uma parte de n\u00f3s....uma parte com a qual lutamos, mas \u00e9 o que faz de n\u00f3s quem somos.<\/p>\n
Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\nO meu objetivo pessoal, para al\u00e9m de ter uma fam\u00edlia.... , seria voltar a jogar basquetebol. Adorava-o quando era crian\u00e7a. Voltaria definitivamente ao campo e correria o m\u00e1ximo de tempo poss\u00edvel.<\/p>\n
<\/p>\n
Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"
05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1196,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\n
INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2016-05-14T17:19:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Dave\",\"datePublished\":\"2016-05-14T17:19:56+00:00\",\"dateModified\":\"2016-05-14T17:19:56+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\"},\"wordCount\":553,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Australia\",\"Calpainopathy\",\"LGMD2A\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2A\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\",\"url\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\",\"name\":\"INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2016-05-14T17:19:56+00:00\",\"dateModified\":\"2016-05-14T17:19:56+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Dave\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","og_locale":"pt_PT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation","og_description":"05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2016-05-14T17:19:56+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Dave","datePublished":"2016-05-14T17:19:56+00:00","dateModified":"2016-05-14T17:19:56+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/"},"wordCount":553,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage"},"thumbnailUrl":"","keywords":["Australia","Calpainopathy","LGMD2A"],"articleSection":["Individuals with LGMD - Interviews","LGMD2A"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","url":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","name":"INDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage"},"thumbnailUrl":"","datePublished":"2016-05-14T17:19:56+00:00","dateModified":"2016-05-14T17:19:56+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/fr\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Dave"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1195","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=1195"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1195\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=1195"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=1195"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=1195"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
![\"LGMD2A](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/05\/LGMD2A-Dave-H.png\")
<\/a><\/p>\n