{"id":1252,"date":"2016-06-24T14:08:02","date_gmt":"2016-06-24T19:08:02","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1252"},"modified":"2016-06-24T14:08:02","modified_gmt":"2016-06-24T19:08:02","slug":"donna-marie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/06\/24\/donna-marie\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Donna-Marie"},"content":{"rendered":"

06\/24\/2016<\/p>\n

LGMD \"Entrevista em destaque\"<\/p>\n

Nome<\/strong>: Donna-Marie \u00a0 \u00a0 \u00a0Idade<\/strong>: 32 anos de idade\"LGMD2i<\/a><\/p>\n

Pa\u00eds<\/strong>: Reino Unido<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2i<\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Comecei a fazer testes aos 12 anos, recebi o diagn\u00f3stico de Distrofia Muscular aos 13 e o subtipo alguns anos mais tarde.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Geralmente, era mais lento do que as outras crian\u00e7as nas aulas de educa\u00e7\u00e3o f\u00edsica. Os meus professores reparavam que eu n\u00e3o conseguia acompanhar o ritmo, mas sabiam que eu era demasiado boa e que tinha de estar a esfor\u00e7ar-me ao m\u00e1ximo!<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

N\u00e3o, sou 100% \u00fanico J<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

O maior desafio para mim \u00e9 a forma como me afecta mentalmente; sei que tenho sorte com a minha LGMD e que podia ter problemas muito maiores, por isso tento n\u00e3o me queixar muito, mas passei alguns anos a querer esconder-me das pessoas que olhavam para mim e para o meu coxear. O meu namorado de h\u00e1 4 anos mudou a minha atitude em rela\u00e7\u00e3o \u00e0 minha defici\u00eancia mais do que alguma vez poderia ter imaginado e, embora j\u00e1 n\u00e3o me importe com o facto de as pessoas olharem para mim, por vezes tenho dificuldades quando sa\u00edmos, pois sinto-me envergonhada por ele quando as pessoas olham para n\u00f3s e sinto que ele devia estar com algu\u00e9m \"normal\" na sua idade.<\/p>\n

Tamb\u00e9m detesto o facto de n\u00e3o poder ir embora durante uma discuss\u00e3o, especialmente se estiver sentada numa cadeira baixa, ha ha!<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Adoraria dizer que a minha maior conquista tem a ver com a minha carreira, mas devo dizer que nesse departamento n\u00e3o tenho muito de que me gabar. Mas considero um feito o facto de conseguir continuar e manter-me positivo. Tenho uma carreira modesta, mas continuo a trabalhar e a socializar. J\u00e1 n\u00e3o tento esconder-me, sentindo-me como o Quas\u00edmodo!<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

A LGMD fez-me sentir grata pelas pessoas fant\u00e1sticas que tenho na minha vida. N\u00e3o poderia desejar uma fam\u00edlia, um parceiro ou amigos melhores.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

Gostaria que o mundo soubesse que a LGMD n\u00e3o afecta o meu c\u00e9rebro nem os meus olhos!<\/strong><\/p>\n

N\u00e3o preciso que falem comigo como se fosse uma crian\u00e7a e consigo ver os empurr\u00f5es, os sussurros e os olhares. <\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

H\u00e1 tantas coisas que poderia enumerar aqui, mas a verdade \u00e9 que acho que a primeira coisa que faria era sair e festejar com todas as bebidas que conseguisse aguentar e n\u00e3o me preocupar com o facto de que, se cair, fico ca\u00eddo! E talvez dan\u00e7ar em alguns bares J<\/p>\n

Mas como essa foi uma resposta bastante disparatada, gostaria de acrescentar que depois iria passar umas f\u00e9rias agrad\u00e1veis com o meu namorado e a minha fam\u00edlia, sem que nenhum deles tivesse de se preocupar se o ch\u00e3o \u00e9 demasiado irregular, se h\u00e1 degraus ou se n\u00e3o consigo andar na praia ou entrar\/sair de uma piscina ou levantar-me de uma cadeira.<\/p>\n

 <\/p>\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/p>","protected":false},"excerpt":{"rendered":"

06\/24\/2016 LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Donna-Marie \u00a0 \u00a0 \u00a0Age: 32 […]<\/p>","protected":false},"author":1,"featured_media":1251,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[61],"class_list":["post-1252","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-kingdom"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Donna-Marie - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/06\/24\/donna-marie\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Donna-Marie - 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