{"id":1315,"date":"2016-09-02T08:01:44","date_gmt":"2016-09-02T13:01:44","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1315"},"modified":"2016-09-02T08:01:44","modified_gmt":"2016-09-02T13:01:44","slug":"melanie-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2016\/09\/02\/melanie-2\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Melanie"},"content":{"rendered":"

LGMD Spotlight interview –\u00a0<\/strong>09\/02\/2016<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

Nome<\/strong>:\u00a0 Melanie\u00a0 Idade<\/strong>:\u00a0 29 yrs. old\"LGMD2i<\/a><\/p>\n

Pa\u00eds<\/strong>: \u00a0\u00a0Germany<\/p>\n

LGMD Sub-tipo<\/strong> : \u00a0LGMD2i (heterozygous type)<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

I was diagnosed at the age of 4 by having a muscle biopsy.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

I always fell when I tried to run and to take the stairs.\u00a0 This resulted in many bruises and scars!\u00a0 In addition, I couldn\u2019t get up from the floor by myself.\u00a0\u00a0 These symptoms already showed up around the age of 2.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

The greatest challenge is to make people understand that I\u2019m not too lazy to do everyday tasks but I am too weak to do them on my own.\u00a0 Another challenge for many of us is accepting a wheelchair as your best friend!<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

There are far too many accomplishments!\u00a0 Living a good life with LGMD is an accomplishment in itself!\u00a0 On my blog (www.littlemissturtle.com<\/a>) I write about all of my accomplishments and adventures on wheels.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

I grew up with LGMD.\u00a0 It made me a very strong person.\u00a0 Dealing with a progressive disease that causes muscle weakness and atrophy while being fully conscious\u00a0 about it is a demanding challenge\u00a0 I appreciate every day of my life!\u00a0\u00a0 I stopped working recently to have more time to do all the things I love.\u00a0 LGMD taught me to take things the easy way.\u00a0 Enjoy more, worry less, stay positive and spend as much time as possible with loved ones.\u00a0 That\u2019s my way!<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

LGMD is a rare and tricky disease.\u00a0 It cannot be compared to any other disease like Multiple Sclerosis (MS), etc.\u00a0 It is important to fully listen to a person who has LGMD when he or she asks for assistance \u2013 to avoid hurting him or her in the process.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

I would get up from the bed by myself, dress and then go for the walk of my life!\u00a0 I would walk for as long as my feet would carry me.<\/p>\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight interview –\u00a009\/02\/2016 \u00a0 Name:\u00a0 Melanie\u00a0 Age:\u00a0 29 yrs. 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