{"id":1403,"date":"2017-01-28T09:30:12","date_gmt":"2017-01-28T15:30:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1403"},"modified":"2017-01-28T09:30:12","modified_gmt":"2017-01-28T15:30:12","slug":"brenda","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Brenda"},"content":{"rendered":"

LGMD \"Entrevista em destaque\"<\/p>\n

Nome<\/strong>: Brenda\u00a0 Idade<\/strong>: 55 anos de idade\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2A - tamb\u00e9m conhecida como Calpainopatia<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado quando tinha 50 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Os meus primeiros sintomas inclu\u00edam: quedas, queda do pulso, uma marcha invulgar quando andava com as ancas para a frente, c\u00e3ibras nas pernas e uma r\u00e1pida perda de peso.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

Nenhum outro membro da fam\u00edlia tem LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

O maior desafio de viver com a LGMD \u00e9 o facto de eu parecer normal e a doen\u00e7a ser para sempre.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Algumas das minhas maiores realiza\u00e7\u00f5es incluem: esquiar nos Alpes, fazer caiaque no mar na costa do Atl\u00e2ntico, fazer caiaque no mar no Lago Champlain e andar de patins no Estado de Vermont. Para al\u00e9m disso, criei uma filha saud\u00e1vel de 17 anos e estou casada h\u00e1 25 anos com um marido excecional que me ama muito, aconte\u00e7a o que acontecer! Tamb\u00e9m mantive um emprego como Diretora de Recrea\u00e7\u00e3o do \u00fanico Resort de 5 estrelas de Vermont durante 22 anos.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Tenho uma atitude positiva e mantenho-me saud\u00e1vel e feliz, aconte\u00e7a o que acontecer.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

Quero dizer a toda a gente que continuo a ser a mesma Brenda que costumava dan\u00e7ar sempre que podia e dar cambalhotas e fazer flex\u00f5es de costas na praia de Gay Head Cliffs em Martha's Vineyard. A que foi a primeira a fazer slalom em esquis aqu\u00e1ticos, a primeira a fazer downhill, cross-country e telemark ski e a primeira a esquiar nos Alpes na Europa. O primeiro a esquiar na parede do Monte Washington, Tuckerman's Ravine. O primeiro a esquiar todas as pistas de diamante negro e duplo diamante negro na est\u00e2ncia de esqui de Killington, em Vermont, incluindo todas as pistas de madeira, durante 30 anos. Nunca deixarei que esta doen\u00e7a me rotule ou me leve a um estado de cama. O Dr. Anthony Amato disse \"Boa Vida Longa\" antes dos 50 anos, quando me foi diagnosticada a doen\u00e7a. Quero que o mundo saiba que uma pessoa com uma defici\u00eancia \u00e9 igual a si!<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Dan\u00e7ar com o meu marido sem cansa\u00e7o. Esquiar nos trilhos de neve com curvas perfeitas. Caminhar numa praia de areia sem fadiga. Voltar a caminhar a um bom ritmo sem dores nas articula\u00e7\u00f5es ou queda do pulso. Andar de bicicleta com as senhoras e ser capaz de as acompanhar. Andar de bicicleta com pneus gordos na neve.<\/p>\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Brenda\u00a0 Age:\u00a0 55 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1404,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1403","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Brenda - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Brenda - 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