{"id":1560,"date":"2017-09-04T13:37:06","date_gmt":"2017-09-04T18:37:06","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1560"},"modified":"2017-09-04T13:37:06","modified_gmt":"2017-09-04T18:37:06","slug":"felix","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/04\/felix\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Felix"},"content":{"rendered":"

LGMD \"ENTREVISTA EM DESTAQUE\"<\/strong><\/p>\n

Nome<\/strong>: F\u00e9lix\u00a0 Idade<\/strong>: 35 anos de idade\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Brasil<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2A \/ Calpainopatia<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado aos 11 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Os meus primeiros sintomas inclu\u00edam: quedas, cansa\u00e7o, andar nas pontas dos p\u00e9s. Al\u00e9m disso, n\u00e3o conseguia acompanhar o ritmo das outras pessoas da minha idade nas actividades f\u00edsicas.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

Sim, tenho uma irm\u00e3 com LGMD2A<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

O maior desafio foi ter que me adaptar \u00e0s mudan\u00e7as do meu corpo, desenvolvendo formas de defesa contra prov\u00e1veis quedas, t\u00e1ticas ao subir e descer escadas, cuidado para n\u00e3o pisar de leve em alguns obst\u00e1culos, e sempre buscando uma cadeira para apoio - principalmente ao levantar da cadeira e do ch\u00e3o. Estou sempre a tentar ter cuidado com tudo o que me possa fazer cair.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Aprendi a tocar guitarra! Foi um grande desafio porque a dificuldade era enorme - especialmente quando segurava o instrumento e fazia o movimento com os bra\u00e7os para tocar as cordas da guitarra. Isto pode ser muito cansativo mas, mesmo assim, consigo faz\u00ea-lo.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

A vida com a LGMD ensinou-me e ensina-me hoje a lutar e a dar mais valor \u00e0 vida. Sobreviver num mundo t\u00e3o dif\u00edcil exige muito esfor\u00e7o e faz de mim uma pessoa melhor, sobretudo quando lido com os outros. H\u00e1 situa\u00e7\u00f5es em que vivemos que s\u00f3 aqueles que partilham a mesma luta conhecem e compreendem. H\u00e1 um prop\u00f3sito de Deus em todas as vidas deste mundo. Acho que a LGMD talvez me tenha dado um sentimento na vida, o maior desafio que eu poderia ter. Somos advers\u00e1rios, e como todo bom combate, pretendo lutar at\u00e9 o fim - vencendo, \u00e9 claro!<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

O mundo precisa de saber mais sobre a LGMD, uma vez que as pessoas est\u00e3o a viver com esta doen\u00e7a. \u00c9 importante estarmos conscientes de como ajudar a causa. O facto de sabermos isso n\u00e3o nos torna melhores ou piores do que as outras pessoas que t\u00eam limita\u00e7\u00f5es f\u00edsicas. E esperemos que, num futuro pr\u00f3ximo, o mundo saiba a melhor de todas as not\u00edcias - - que existe uma cura para esta doen\u00e7a!<\/p>\n

\u00a0<\/strong><\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Se amanh\u00e3 ficasse curado, glorificaria o nome de Deus. Faria coisas como jogar futebol, subir escadas, sentar-me e levantar-me sem a ajuda de ningu\u00e9m. S\u00e3o estas actividades simples do dia a dia que a maioria das pessoas n\u00e3o presta muita aten\u00e7\u00e3o, mas que s\u00e3o sonhos para aqueles que se deslocam em cadeiras de rodas. Uma cura ser\u00e1 uma vit\u00f3ria \u00e9pica, uma vit\u00f3ria que ser\u00e1 lida nos livros de hist\u00f3ria.<\/p>\n

 <\/p>\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, por favor visite o nosso website em https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

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