{"id":158,"date":"2015-02-06T22:26:15","date_gmt":"2015-02-07T04:26:15","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=158"},"modified":"2015-02-06T22:26:15","modified_gmt":"2015-02-07T04:26:15","slug":"jose-antonio","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Jos\u00e9 Ant\u00f3nio"},"content":{"rendered":"

02\/06\/2015:\"LGMD2B<\/a><\/p>\n

NOME<\/strong>: Jos\u00e9 Ant\u00f3nio<\/p>\n

IDADE:<\/strong> 48<\/p>\n

PA\u00cdS:<\/strong> M\u00e9xico<\/p>\n

LGMD Sub-tipo:<\/strong> LGMD 2B\/Disferlinopatia<\/p>\n

Com que idade foi diagnosticado:<\/strong> aos 46 anos<\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS:<\/strong>
\nComecei a sentir fraqueza muscular aos 30 anos. Descobriram-me que tinha um problema card\u00edaco na aorta e o cardiologista pensou que a minha fraqueza muscular se devia a isso. Fiz uma EMG e os resultados foram bons, mas estava sempre a cair, a bater em coisas, a n\u00e3o ter for\u00e7a nas pernas para subir escadas ou nos bra\u00e7os para levantar objectos pesados. Penso que o sintoma mais alarmante foi quando descobri que n\u00e3o conseguia saltar, e a\u00ed percebi que algo estava errado.<\/p>\n

TEM OUTROS MEMBROS DA FAM\u00cdLIA QUE TENHAM LGMD: N\u00e3o <\/strong>
\nQUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM LGMD:<\/strong>
\nTudo! Depois de me ajudarem a sair da cama, tenho de me sentar numa cadeira especial para ir \u00e0 casa de banho e depois t\u00eam de me levantar para eu poder ir para uma cadeira de rodas. Fa\u00e7o fisioterapia de segunda a sexta-feira. O fisioterapeuta levanta-me com um cinto e eu ando com ele cerca de 10 metros v\u00e1rias vezes. Ele faz-me flexionar os bra\u00e7os com pesos de 1 kg, depois levanta-me para o meu ve\u00edculo e leva-me para o meu local de trabalho, onde fico no meu ve\u00edculo. O mais triste \u00e9 que vejo os meus filhos crescerem e n\u00e3o posso ir com eles para desfrutar de coisas simples: praia, cinema, parques, etc. \u00c9 a minha mulher que faz isto; \u00e9 muito dedicada a mim e ajuda-me muito.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O:<\/strong>
\nPoder manter-me em contacto com os meus clientes e continuar a trabalhar \u00e0 minha maneira.<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE<\/strong>:
\nAprendi a apreciar as pessoas que me ajudam, a ter paci\u00eancia, a manter a esperan\u00e7a e evitar a depress\u00e3o, a agradecer por tudo, a compreender as pessoas que n\u00e3o est\u00e3o na mesma situa\u00e7\u00e3o que eu e que est\u00e3o numa situa\u00e7\u00e3o dif\u00edcil, a valorizar o que tenho e a ser poupada, a dar mais amor \u00e0 minha fam\u00edlia todos os dias como se fosse o \u00faltimo.
\nO QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD:<\/strong>
\nComo \u00e9 dif\u00edcil realizar pequenas coisas que s\u00e3o insignificantes para as outras pessoas, para que elas conhe\u00e7am estas doen\u00e7as raras e para que haja mais interesse em estudar porque \u00e9 que elas ocorrem e como podem ser evitadas. Tamb\u00e9m o diagn\u00f3stico precoce para que os doentes possam tomar vitaminas para evitar problemas de sa\u00fade, porque quando nos tornamos menos m\u00f3veis o nosso corpo fica mais fraco e o nosso sistema imunit\u00e1rio enfraquece. Por \u00faltimo, e mais importante, encontrar um tratamento ou uma cura para esta doen\u00e7a!<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER:<\/strong>
\nPassear na praia, correr, subir escadas, viajar com os meus filhos sem que eles tenham de se preocupar comigo. Levaria a minha mulher a comer num s\u00edtio bonito e agradecer-lhe-ia todo o amor que tem por mim ao poder ajudar-me e cuidar de mim. Abra\u00e7aria os meus filhos para lhes agradecer todo o apoio que me d\u00e3o todos os dias.<\/p>","protected":false},"excerpt":{"rendered":"

02\/06\/2015: NAME: Jos\u00e9 Antonio AGE: 48 COUNTRY: M\u00e9xico LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":159,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,23,24],"class_list":["post-158","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-lgmd2b","tag-mexico"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Jos\u00e9<\/title>\n<meta name=\"description\" content=\"Jos\u00e9, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/02\/06\/jose-antonio\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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