{"id":1591,"date":"2017-09-27T13:12:40","date_gmt":"2017-09-27T18:12:40","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1591"},"modified":"2017-09-27T13:12:40","modified_gmt":"2017-09-27T18:12:40","slug":"becky","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Becky"},"content":{"rendered":"

LGMD \"Entrevista em destaque\" \u00a0<\/strong><\/p>\n

Nome<\/strong>: Becky \u00a0\u00a0Idade<\/strong>: 35 anos de idade\"\"<\/a><\/p>\n

Pa\u00eds:<\/strong> EUA<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

COM QUE IDADE FOI DIAGNOSTICADO: <\/strong><\/p>\n

Foi-me diagnosticada em 2009, com 27 anos.<\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS: <\/strong><\/p>\n

Os meus primeiros sintomas foram a dificuldade em subir degraus, levantar-me do ch\u00e3o ou levantar-me de um assento\/casa de banho.<\/p>\n

TEM OUTROS FAMILIARES QUE SOFREM DE LGMD: <\/strong><\/p>\n

Nenhum outro membro da fam\u00edlia tem LGMD.<\/p>\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM LGMD: <\/strong><\/p>\n

O maior desafio para mim \u00e9 a parte mental de compreender as minhas limita\u00e7\u00f5es. Saber que a minha vida n\u00e3o \u00e9 como eu alguma vez imaginei que seria. Saber as coisas que eu e o meu marido tivemos de mudar para enfrentar e lidar com esta doen\u00e7a em constante progress\u00e3o.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O: <\/strong><\/p>\n

Penso que a minha maior realiza\u00e7\u00e3o depois de me ter sido diagnosticada esta doen\u00e7a \u00e9 o meu casamento. Cas\u00e1mo-nos dois meses antes de eu come\u00e7ar a fazer todos os exames para determinar o que estava errado. Na doen\u00e7a e na sa\u00fade chegou muito mais cedo do que alguma vez poder\u00edamos ter imaginado, mas hoje somos mais fortes por causa disso.<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE? <\/strong><\/p>\n

Esta doen\u00e7a \u00e9 uma mudan\u00e7a de vida. Apesar de estar dependente da minha fam\u00edlia e dos meus amigos, continuo a ser bastante independente. Conduzo com comandos manuais, sou engenhoso nas formas que encontro para continuar a fazer as coisas por mim pr\u00f3prio e, de certa forma, apesar de os meus m\u00fasculos estarem mais fracos, estou mais forte. Isto n\u00e3o aconteceu de uma s\u00f3 vez. Demorou algum tempo a perceber que sou uma pessoa forte, apesar de os meus m\u00fasculos estarem fracos.<\/p>\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD: <\/strong><\/p>\n

Quero que o mundo saiba e compreenda que esta doen\u00e7a \u00e9 t\u00e3o dif\u00edcil. Por vezes, o meu c\u00e9rebro n\u00e3o se lembra que n\u00e3o posso fazer uma coisa e come\u00e7o a faz\u00ea-la para depois me aperceber que n\u00e3o consigo. Quero que saibam que, a partir do momento em que algu\u00e9m com LGMD acorda, tem de pensar imediatamente em como vai enfrentar o dia. O mundo deve saber que esta doen\u00e7a, embora um pouco invis\u00edvel, \u00e9 real e extremamente dif\u00edcil de lidar. Que o facto de algu\u00e9m andar por a\u00ed com esta doen\u00e7a n\u00e3o significa que esteja bem ou curado. Temos de continuar a viver as nossas vidas, mesmo que por detr\u00e1s do nosso sorriso estejamos exaustos ou a sofrer. O mundo tamb\u00e9m deve saber que HAVER\u00c1 UMA CURA. H\u00e1 tantas pessoas a trabalhar neste sentido e os progressos feitos nos poucos anos em que me foi diagnosticada a doen\u00e7a foram enormes.<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER: <\/strong><\/p>\n

Esta lista \u00e9 LONGA....mas, primeiro, eu corria. As minhas pernas j\u00e1 n\u00e3o se mexiam assim h\u00e1 muito tempo.<\/p>\n

 <\/p>\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1590,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-1591","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-09-27T18:12:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Becky\",\"datePublished\":\"2017-09-27T18:12:40+00:00\",\"dateModified\":\"2017-09-27T18:12:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"},\"wordCount\":519,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2B; United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\",\"name\":\"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2017-09-27T18:12:40+00:00\",\"dateModified\":\"2017-09-27T18:12:40+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Becky\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","og_locale":"pt_PT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","og_description":"LGMD \u201cSpotlight Interview\u201d \u00a0 Name: Becky \u00a0\u00a0Age:\u00a0 35 yrs. old […]","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2017-09-27T18:12:40+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Becky","datePublished":"2017-09-27T18:12:40+00:00","dateModified":"2017-09-27T18:12:40+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"},"wordCount":519,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2B; United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","url":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/","name":"INDIVIDUAL WITH LGMD: Becky - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage"},"thumbnailUrl":"","datePublished":"2017-09-27T18:12:40+00:00","dateModified":"2017-09-27T18:12:40+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2017\/09\/27\/becky\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Becky"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1591","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=1591"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1591\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=1591"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=1591"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=1591"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}