{"id":1633,"date":"2017-11-06T10:00:14","date_gmt":"2017-11-06T16:00:14","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1633"},"modified":"2017-11-06T10:00:14","modified_gmt":"2017-11-06T16:00:14","slug":"fred","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Fred"},"content":{"rendered":"

LGMD \"ENTREVISTA EM DESTAQUE\"<\/strong><\/p>\n

Nome<\/strong>: Fred \u00a0\u00a0Idade<\/strong>: 36 anos de idade\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2A \/ Calpainopatia<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado aos 13 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Olhando para tr\u00e1s, sempre fui ligeiramente mais lento do que os outros mi\u00fados, mas n\u00e3o posso dizer que tenha havido um sintoma em que os meus pais ou eu tenhamos reparado. Foi-me diagnosticada por acaso. Tinha ido esquiar com um grupo da igreja e acabei por partir uma perna. Quando fui \u00e0s urg\u00eancias do hospital por causa da perna partida, um m\u00e9dico reparou que eu n\u00e3o era t\u00e3o forte como devia ser naquela idade. O resultado foi uma biopsia muscular. Inicialmente, foi-me diagnosticada a doen\u00e7a de Becker, tudo isto antes dos testes de ADN.<\/p>\n

Tem outros familiares que sofrem de LGMD: <\/strong><\/p>\n

N\u00e3o, eu sou o \u00fanico.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

O maior desafio para mim \u00e9 n\u00e3o conseguir pegar no meu filho de 7 meses sem ajuda. Ter de estar constantemente a defender-me no que diz respeito a esta doen\u00e7a. Nunca me tinha apercebido de como muitas pessoas t\u00eam atitudes \"capacitistas\". O \u00faltimo para mim seria n\u00e3o poder visitar livremente os amigos e a fam\u00edlia.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Tenho tantas realiza\u00e7\u00f5es, mas se pudesse escolher apenas uma, diria que \u00e9 o facto de ter conseguido sair do SSI. Depois do meu diagn\u00f3stico, tinha perdido a esperan\u00e7a de alguma vez ter um emprego, um carro, uma casa, uma fam\u00edlia minha, etc. Hoje, sou despachante da pol\u00edcia estadual, conduzo, tenho uma fam\u00edlia linda, estou atualmente a tentar comprar a minha primeira casa e estou otimista de que, quando chegar a altura e j\u00e1 n\u00e3o puder fazer fisicamente o trabalho que tenho, Deus me dar\u00e1 outra oportunidade.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje? <\/strong><\/p>\n

A LGMD ensinou-me a lutar pelo que quero. Ensinou-me que nunca estou t\u00e3o limitado como posso pensar. Tudo \u00e9 poss\u00edvel.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

A LGMD ainda n\u00e3o foi curada mas, com a sua ajuda, pode s\u00ea-lo.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Pegar no meu filho, dar-lhe um abra\u00e7o apertado, atir\u00e1-lo ao ar e apanh\u00e1-lo.<\/p>\n

 <\/p>\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, por favor visite o nosso website em https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/u><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Fred \u00a0\u00a0Age: 36 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1632,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1633","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Fred \u00a0\u00a0Age: 36 yrs. old Country: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-11-06T16:00:14+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Fred\",\"datePublished\":\"2017-11-06T16:00:14+00:00\",\"dateModified\":\"2017-11-06T16:00:14+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\"},\"wordCount\":439,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2A; Calpainopathy; United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2A\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\",\"url\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\",\"name\":\"INDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2017-11-06T16:00:14+00:00\",\"dateModified\":\"2017-11-06T16:00:14+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Fred\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","og_locale":"pt_PT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation","og_description":"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Fred \u00a0\u00a0Age: 36 yrs. old Country: […]","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2017-11-06T16:00:14+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Fred","datePublished":"2017-11-06T16:00:14+00:00","dateModified":"2017-11-06T16:00:14+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/"},"wordCount":439,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2A; Calpainopathy; United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2A"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","url":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/","name":"INDIVIDUAL WITH LGMD: Fred - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage"},"thumbnailUrl":"","datePublished":"2017-11-06T16:00:14+00:00","dateModified":"2017-11-06T16:00:14+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/11\/06\/fred\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Fred"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1633","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=1633"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/1633\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=1633"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=1633"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=1633"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}