{"id":1692,"date":"2018-02-13T09:31:28","date_gmt":"2018-02-13T15:31:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1692"},"modified":"2018-02-13T09:31:28","modified_gmt":"2018-02-13T15:31:28","slug":"younis","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Younis"},"content":{"rendered":"

NOME<\/strong>: Younis\u00a0 IDADE<\/strong>: 14 anos de idade<\/span>
\n PA\u00cdS<\/strong>: S\u00edria<\/span>
\n SUB-TIPO LGMD<\/strong>: LGMD 2C\"\"<\/a><\/span><\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/strong><\/span><\/p>\n

Foi-me diagnosticado aos 7 anos.<\/span><\/p>\n

Quais foram os seus primeiros sintomas:<\/strong><\/span><\/p>\n

Os sintomas come\u00e7aram a aparecer quando eu tinha 5 anos de idade. Quando era crian\u00e7a, andava sobre os dedos dos p\u00e9s.<\/span><\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/span><\/p>\n

Sim, o meu irm\u00e3o mais velho e dois dos meus tios (irm\u00e3os da minha m\u00e3e) tamb\u00e9m foram diagnosticados com LGMD2C. (O meu irm\u00e3o mais velho emigrou para a Alemanha).<\/span><\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/span><\/p>\n

Para mim, neste momento, os maiores desafios s\u00e3o correr, subir escadas e ir \u00e0 casa de banho de forma independente.<\/span><\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/span><\/p>\n

N\u00e3o sei qual seria a minha maior conquista, mas orgulho-me de ainda conseguir andar e de ser bastante independente. No entanto, um dos desafios mais dif\u00edceis que tive de ultrapassar na vida foi concluir os meus estudos apesar das \"circunst\u00e2ncias de guerra e desloca\u00e7\u00e3o\" na S\u00edria.<\/span><\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE?<\/strong><\/span><\/p>\n

A LGMD ensinou-me a ser paciente. Tamb\u00e9m me ensinou a ser mais consciente e aberta.<\/span><\/p>\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD:<\/strong><\/span><\/p>\n

Quero que o mundo saiba mais sobre esta doen\u00e7a e todos os diferentes tipos de LGMD. Al\u00e9m disso, quero que as pessoas saibam que \u00e9 vital que haja mais investiga\u00e7\u00e3o centrada na LGMD para ajudar a encontrar uma cura e um tratamento para estas doen\u00e7as. Espero que os cientistas encontrem uma cura para esta doen\u00e7a. Tamb\u00e9m quero que as pessoas tomem medidas para a prevenir.<\/span><\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER:<\/strong><\/span><\/p>\n

Se a LGMD fosse curada amanh\u00e3, a primeira coisa que eu faria seria correr rapidamente e depois jogar futebol com os meus amigos.<\/span><\/p>\n

 <\/p>\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, por favor visite o nosso website em<\/span> https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* Por favor, GOSTEI, COMENTEI e PARTILHEI esta publica\u00e7\u00e3o para ajudar a aumentar a sensibiliza\u00e7\u00e3o para a LGMD!<\/span><\/p>","protected":false},"excerpt":{"rendered":"

NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1690,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[89],"class_list":["post-1692","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Younis - 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