{"id":2266,"date":"2018-09-24T12:51:12","date_gmt":"2018-09-24T17:51:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2266"},"modified":"2018-09-24T12:51:12","modified_gmt":"2018-09-24T17:51:12","slug":"rodrigo","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/09\/24\/rodrigo\/","title":{"rendered":"Indiv\u00edduo com LGMD: Rodrigo"},"content":{"rendered":"

LGMD \"ENTREVISTA EM DESTAQUE\"<\/strong><\/span><\/p>\n

Nome<\/strong><\/span>:\u00a0 Rodrigo\u00a0 Idade<\/strong>: 29 anos\u00a0\u00a0\"\"<\/a><\/span><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/span><\/p>\n

LGMD Sub-tipo:\u00a0 <\/strong>LGMD2B \/ <\/span>Myoshi Miopatia<\/span><\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/span><\/p>\n

Foi-me diagnosticada a doen\u00e7a LGMD2B aos 24 anos de idade.<\/span><\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/span><\/p>\n

Os meus sintomas apareceram por volta dos 17 anos de idade.<\/span><\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/span><\/p>\n

Tenho dois irm\u00e3os que apresentam sintomas mas n\u00e3o foram diagnosticados.<\/span><\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/span><\/p>\n

A mobilidade \u00e9 o meu maior desafio.<\/span><\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/span><\/p>\n

A minha maior realiza\u00e7\u00e3o \u00e9 permitir que o meu talento art\u00edstico venha \u00e0 luz do dia.<\/span><\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/span><\/p>\n

A LGMD influenciou-me muito para me tornar a pessoa que sou hoje. Permitiu-me ver a vida de uma forma completamente diferente. Obrigou-me a esfor\u00e7ar-me constantemente, mesmo nas tarefas mais pequenas, o que, por sua vez, me tornou resiliente e persistente. Tamb\u00e9m me deu empatia e posso simpatizar com aqueles que tamb\u00e9m est\u00e3o a lutar. A LGMD fez-me apreciar todos os aspectos da vida e descartar o comportamento materialista.<\/span><\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/span><\/p>\n

O mundo, antes de mais, precisa de saber que existimos. A Distrofia Muscular das Cinturas dos Membros pode e vai ser curada, mas n\u00e3o h\u00e1 pessoas suficientes que a conhe\u00e7am para se preocuparem com ela. \u00c9 bom que afecte uma pequena percentagem da popula\u00e7\u00e3o, mas n\u00f3s somos um grupo relativamente grande de pessoas que querem continuar a ter sucesso na vida. Tamb\u00e9m estamos a procurar a felicidade, mas precisamos de muito mais ajuda dos outros. O mundo precisa de saber que ainda estamos a contribuir com o que podemos. Lutamos, mesmo sem conseguir p\u00f4r um peda\u00e7o de p\u00e3o na boca, mas aceit\u00e1mos estes desafios e sermos fortes tornou-se a nossa \u00fanica forma de vida.<\/span><\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/span><\/p>\n

Eu tomaria o caminho mais r\u00e1pido para a recupera\u00e7\u00e3o. Arrancava a correr como o Forest Gump. Diria a toda a gente no meu caminho o quanto me agradava voltar a andar, numa tentativa de promover a auto-consciencializa\u00e7\u00e3o da sa\u00fade em geral e de chamar a aten\u00e7\u00e3o para o quanto damos por garantido. Cada passo que uma pessoa saud\u00e1vel d\u00e1 como garantido, uma pessoa com Distrofia Muscular gostaria de poder dar.<\/span><\/p>\n

 <\/p>\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, visite o nosso site em https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/span><\/p>\n

 <\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

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