{"id":2283,"date":"2018-09-29T08:54:12","date_gmt":"2018-09-29T13:54:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2283"},"modified":"2018-09-29T08:54:12","modified_gmt":"2018-09-29T13:54:12","slug":"nicole-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/09\/29\/nicole-2\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Nicole"},"content":{"rendered":"

LGMD \"Entrevista em destaque\"<\/strong><\/p>\n

\u00a0<\/strong>Nome<\/strong>: Nicole \u00a0\u00a0Idade<\/strong>: 24 anos\u00a0\u00a0\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD 2A \/ Calpainopatia<\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado por volta dos 12 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Os meus primeiros sintomas foram andar em bicos de p\u00e9s.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

Mais ningu\u00e9m na minha fam\u00edlia tem LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

Ultimamente, um dos meus maiores desafios \u00e9 manter a energia e a resist\u00eancia ao longo do dia. Tamb\u00e9m tenho tido dificuldade em lidar com os sintomas em constante mudan\u00e7a e em adaptar a minha vida.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

M<\/strong>minha maior realiza\u00e7\u00e3o \u00e9 ter um emprego a tempo inteiro e trabalhar 40 horas por semana (apesar de ser cansativo!).<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

A LGMD influenciou-me a tornar-me uma pessoa mais emp\u00e1tica e compreensiva. Penso que n\u00e3o seria quem sou sem a LGMD e isso deixa-me grata!<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

Embora a LGMD seja uma grande parte da minha vida, n\u00e3o \u00e9 a \u00fanica parte. N\u00e3o tenho vergonha de ter uma defici\u00eancia, mas h\u00e1 muito mais em mim do que isso.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Estou a pensar que gostaria de ir correr J<\/p>\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, por favor visite o nosso website em https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* Por favor, GOSTEI, COMENTEI e PARTILHEI esta publica\u00e7\u00e3o para ajudar a aumentar a sensibiliza\u00e7\u00e3o para a LGMD!<\/p>","protected":false},"excerpt":{"rendered":"

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