{"id":2303,"date":"2018-10-08T09:01:34","date_gmt":"2018-10-08T14:01:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2303"},"modified":"2018-10-08T09:01:34","modified_gmt":"2018-10-08T14:01:34","slug":"dan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Dan"},"content":{"rendered":"

LGMD \"Entrevista em destaque\"<\/strong><\/p>\n

Nome<\/strong>: Dan \u00a0Idade<\/strong>: 40 Anos. Antigo\u00a0\u00a0\"\"<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2i<\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado aos 30 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

O meu primeiro sintoma foi a fraqueza nas pernas. Lembro-me de ter pisado um rolo de alcatifa e de ter ca\u00eddo porque a minha perna cedeu. Caminhava com um andar invulgar. E n\u00e3o era capaz de me sentar sem agarrar nas pernas para me levantar.<\/p>\n

Tem outros familiares que sofrem de LGMD: <\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

Definitivamente, as escadas s\u00e3o o meu maior desafio neste momento. De facto, qualquer degrau com um espelho mais alto do que 3\u2033 \u00e9 extremamente dif\u00edcil ou imposs\u00edvel. No in\u00edcio, compensava a fraqueza das minhas pernas usando os bra\u00e7os no corrim\u00e3o para subir as escadas, mas nos \u00faltimos anos, a for\u00e7a dos meus bra\u00e7os ficou comprometida.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Tenho muitos pequenos triunfos que alcancei. Um deles foi conseguir atravessar a ponte de Brooklyn em Nova Iorque. Mas a minha maior realiza\u00e7\u00e3o seria aceitar e abra\u00e7ar a minha doen\u00e7a (LGMD). Ao faz\u00ea-lo, abri muitas mais portas e possibilidades na minha vida. Aprendi que a minha doen\u00e7a n\u00e3o define quem eu sou como pessoa.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje? <\/strong><\/p>\n

A LGMD ensinou-me muitas coisas na minha vida, mas a maior delas \u00e9 a paci\u00eancia. Sempre fui uma pessoa paciente, mas aprendi que as coisas n\u00e3o acontecem no meu tempo, acontecem quando estou pronta para elas.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

    \n
  1. A Distrofia Muscular da Cinta dos Membros n\u00e3o \u00e9 uma pe\u00e7a de vestu\u00e1rio.<\/li>\n
  2. Que a LGMD \u00e9 simplesmente um teste, todos n\u00f3s estamos a passar por algum tipo de teste na vida, o meu \u00e9 a LGMD. \u00c9 uma quest\u00e3o de \"escolha\" sobre a forma como vou reagir e o que vou fazer. N\u00e3o tenho o direito de fazer menos do que qualquer outra pessoa. Sim, eu tenho Distrofia Muscular das Cinturas dos Membros, mas ela nunca me ter\u00e1 a mim.<\/li>\n<\/ol>\n

    Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

    Eu iria correr!<\/p>\n

    Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

    LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. Old\u00a0\u00a0 Country: […]<\/p>","protected":false},"author":1,"featured_media":2302,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-2303","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2018\/10\/08\/dan\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dan - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight interview\u201d Name:\u00a0 Dan \u00a0Age:\u00a0 40 Yrs. 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