{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"ENTREVISTA EM DESTAQUE\"<\/strong><\/p>\n\n\n\n

Nome<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0IDADE<\/strong>: 34 anos de idade<\/p>\n\n\n\n

Pa\u00eds<\/strong>: Paquist\u00e3o<\/p>\n\n\n\n

LGMD Sub-tipo<\/strong>:\nDesconhecido<\/p>\n\n\n\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n\n\n\n

Foi-me diagnosticado aos 19 anos de idade<\/p>\n\n\n\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n\n\n\n

Come\u00e7ou a sentir dores e c\u00e3ibras, a andar de um lado para o outro, curvatura da coluna\ncurvatura da coluna ....<\/p>\n\n\n\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n\n\n\n

Sim, duas irm\u00e3s e um irm\u00e3o tamb\u00e9m t\u00eam esta doen\u00e7a<\/p>\n\n\n\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios\nem viver com a LGMD<\/strong>:<\/p>\n\n\n\n

Bem, perder a vida independente \u00e9, na minha opini\u00e3o, o maior\ndesafios na minha vida. O principal \u00e9 o facto de os locais do meu pa\u00eds n\u00e3o serem\nn\u00e3o s\u00e3o muito favor\u00e1veis a cadeiras de rodas e as pessoas pensam sempre que tenho poliomielite. Ainda assim, penso\npenso nos velhos tempos em que costumava fazer muitas coisas que agora n\u00e3o consigo fazer, o que\n\u00e9 muito mau para mim. <\/p>\n\n\n\n

As pessoas n\u00e3o compreendem as suas necessidades e exig\u00eancias no meu\nvida quotidiana. Por isso, temos de as orientar.<\/p>\n\n\n\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n\n\n\n

Do meu ponto de vista, consegui um emprego de sonho que quero ter na minha vida e agora adoro o meu trabalho.\nque quero fazer na minha vida e agora gosto muito do meu trabalho. Comecei a ter sintomas quase\nquase no fim dos meus estudos. Por isso, penso que esta \u00e9 uma das\nrealiza\u00e7\u00e3o na minha vida.<\/p>\n\n\n\n

Como \u00e9 que a LGMD o influenciou a tornar-se a\npessoa que voc\u00ea \u00e9 hoje:<\/strong><\/p>\n\n\n\n

Para ser sincero, isso fez-me mudar muito a minha\nvida inteira. Aprendi muito depois do diagn\u00f3stico desta doen\u00e7a e tenho de a\naceit\u00e1-la. Um dos principais elementos da minha vida agora \u00e9 ter paci\u00eancia. <\/p>\n\n\n\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n\n\n\n

Por favor, tentem compreender a nossa doen\u00e7a em vez de nos julgarem.\nA vida \u00e9 bela e s\u00f3 vivemos uma vez. Por isso, aproveitem cada dia e n\u00e3o se sintam mal\nou em baixo por aquilo que \u00e9s. <\/p>\n\n\n\n

N\u00e3o hesite em fazer perguntas sobre n\u00f3s.<\/p>\n\n\n\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a\nseria a primeira coisa que gostaria de fazer<\/strong>:<\/p>\n\n\n\n

Quero ir ter com os meus familiares diretos para os surpreender\nque posso voltar a andar. <\/p>\n\n\n\n

Para ler mais \"LGMD Spotlight\nEntrevistas\" ou para se voluntariar para ser destaque numa pr\u00f3xima entrevista,\npor favor visite nosso website em: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 \u00a0\u00a0\u00a0 Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE:\u00a0\u00a0 34 years old […]<\/p>","protected":false},"author":1,"featured_media":2723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Hasan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Hasan - 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