{"id":3156,"date":"2019-11-21T20:23:42","date_gmt":"2019-11-22T02:23:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3156"},"modified":"2019-11-21T20:23:42","modified_gmt":"2019-11-22T02:23:42","slug":"patrick","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Patrick"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"ENTREVISTA EM DESTAQUE\"<\/h2>\n\n\n\n

NOME<\/strong>: Patrick   IDADE<\/strong>:\n46 anos de idade<\/p>\n\n\n\n

PA\u00cdS<\/strong>: EUA<\/p>\n\n\n\n

LGMD Sub-tipo<\/strong>: LGMD 2E\/R4 Relacionado com o sarcoglicano de B\u00e8ta<\/p>\n\n\n\n

Com que idade lhe foi\ndiagnosticado<\/strong>:<\/p>\n\n\n\n

Eu tinha 12 anos e o ano era 1985. Inicialmente, foi-me diagnosticada Distrofia Muscular de Becker\nBecker!<\/p>\n\n\n\n

Quais foram os seus primeiros sintomas<\/strong>:\n<\/p>\n\n\n\n

Os meus primeiros sintomas foram dificuldade em correr nas aulas de gin\u00e1stica, falta de ar a subir\nsubir escadas, andar e correr nas pontas dos p\u00e9s.<\/p>\n\n\n\n

Tem outros familiares\nmembros da fam\u00edlia que tenham LGMD: <\/strong><\/p>\n\n\n\n

N<\/strong>o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n\n\n\n

Quais s\u00e3o, na sua opini\u00e3o, os\nmaiores desafios em viver com LGMD<\/strong>:<\/p>\n\n\n\n

Um dos maiores desafios \u00e9 viver com o conhecimento de que esta\ndoen\u00e7a \u00e9 progressiva e n\u00e3o saber durante quanto tempo terei fun\u00e7\u00f5es e\ncapacidades. \u00c9 especialmente por isso que aproveito ao m\u00e1ximo o dia a dia!<\/p>\n\n\n\n

Qual \u00e9 a sua maior\nrealiza\u00e7\u00e3o<\/strong>:<\/p>\n\n\n\n

Eu tenho muitas! A principal delas \u00e9 ter conhecido a minha mulher Vanessa, e agora criar 2\ne ter sido professor de m\u00fasica a tempo inteiro durante os \u00faltimos 25 anos numa\nescola secund\u00e1ria.<\/p>\n\n\n\n

Como \u00e9 que a LGMD o influenciou\npara se tornar a pessoa que \u00e9 hoje:<\/strong><\/p>\n\n\n\n

Mostrou-me que a vida \u00e9 preciosa e que todos n\u00f3s precisamos de ter tempo para\nrespirar e procurar o melhor em todas as pessoas e em todas as nossas rela\u00e7\u00f5es. I\naprendi a ter paci\u00eancia e a n\u00e3o me preocupar com as coisas pequenas. Todos os problemas podem ser\nresolvidos e melhorados se as pessoas trabalharem em conjunto!<\/p>\n\n\n\n

O que \u00e9 que quer que o mundo\nsaiba sobre a LGMD<\/strong>:<\/p>\n\n\n\n

Que as pessoas com LGMD, e com qualquer doen\u00e7a cr\u00f3nica, t\u00eam dias bons e maus, tal como toda a gente\ncomo toda a gente, e que estamos a levar uma vida feliz e plena. Somos\npositivos e trabalhamos muito.<\/p>\n\n\n\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3\namanh\u00e3, qual seria a primeira coisa que gostaria de fazer<\/strong>:<\/p>\n\n\n\n

Sou um percussionista e baterista de cora\u00e7\u00e3o. Com o passar dos anos, perdi a maior parte da capacidade de tocar. Quando estiver curado, juntar-me-ei a uma banda e tocarei rock, como fazia na minha juventude! Ha-ha! Paz para todos v\u00f3s.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]<\/p>","protected":false},"author":1,"featured_media":3157,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,62],"tags":[],"class_list":["post-3156","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2e"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Patrick - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “SPOTLIGHT INTERVIEW” NAME: Patrick   AGE: 46 yrs. old COUNTRY: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2019-11-22T02:23:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Patrick\",\"datePublished\":\"2019-11-22T02:23:42+00:00\",\"dateModified\":\"2019-11-22T02:23:42+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/\"},\"wordCount\":338,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/es\/individuals-with-lgmd-interviews\/2019\/11\/21\/patrick\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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