{"id":3220,"date":"2020-02-26T12:54:04","date_gmt":"2020-02-26T18:54:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3220"},"modified":"2024-02-09T14:24:40","modified_gmt":"2024-02-09T14:24:40","slug":"chuck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Chuck"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Entrevista em destaque\"<\/h2>\n\n\n\n

Nome<\/strong>: Chuck\n                 Idade<\/strong>: 63 anos de idade<\/p>\n\n\n\n

Pa\u00eds<\/strong>: Canad\u00e1<\/p>\n\n\n\n

LGMD Sub-tipo<\/strong>: LGMD\n2L\/R12 Relacionado com a anoctamina 5<\/p>\n\n\n\n

Com que idade foi diagnosticado<\/strong>?  <\/p>\n\n\n\n

 Foi-me diagnosticado aos\naos 50 anos de idade.<\/p>\n\n\n\n

Quais foram os seus primeiros SINTOMAS?<\/strong>   <\/p>\n\n\n\n

Quando fui para o hospital devido a um AVC, os m\u00e9dicos\nnotaram que todos os m\u00fasculos das minhas costas tinham desaparecido e que os ossos estavam salientes.<\/p>\n\n\n\n

Tem outros familiares que sofrem de LGMD?   <\/strong><\/p>\n\n\n\n

N\u00e3o, sou a \u00fanica pessoa com LGMD na minha fam\u00edlia.<\/p>\n\n\n\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios\nem viver com a LGMD<\/strong>?  <\/p>\n\n\n\n

O maior desafio \u00e9 ver-me enfraquecer e ter de fazer menos\nactividades.<\/strong><\/p>\n\n\n\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o?<\/strong>   <\/p>\n\n\n\n

Para al\u00e9m dos meus netos, eu era um especialista em revestimentos e desenhei um\num guia de medi\u00e7\u00e3o para a instala\u00e7\u00e3o de D.Y.I. que \u00e9 agora o padr\u00e3o para a Am\u00e9rica do Norte.\nAm\u00e9rica do Norte. Al\u00e9m disso, um expositor de tapumes e telhas\nque desenhei e constru\u00ed foi instalado em todos os Home Depot da Am\u00e9rica do Norte.\nAm\u00e9rica do Norte.  <\/p>\n\n\n\n

Com as minhas mesas, angariava dinheiro e sensibilizava para a\nmesas. Todos os anos, costumo angariar cerca de\n$12.000,00<\/p>\n\n\n\n

Fui tamb\u00e9m presidente da sec\u00e7\u00e3o de Londres, Ont\u00e1rio, da\nDistrofia Muscular durante 4 anos. <\/p>\n\n\n\n

Como \u00e9 que a LGMD o influenciou a tornar-se a\npessoa que \u00e9s hoje?   <\/strong><\/p>\n\n\n\n

N\u00e3o podendo participar nas coisas que costumava fazer, tive de me reinventar.\nfazer, tive de me reinventar. Vi uma utilidade\nvi uma utilidade para as minhas capacidades de design e marketing e agora angario $12.000 todos os anos para a MDC.\ne sensibilizar para a doen\u00e7a de Alzheimer e considero isso muito gratificante. \n<\/p>\n\n\n\n

O que quer que o mundo saiba sobre a LGMD<\/strong>?<\/p>\n\n\n\n

Que ataca os m\u00fasculos das pernas 1st<\/sup>. Que se trata de uma doen\u00e7a muscular heredit\u00e1ria. <\/p>\n\n\n\n

Que descobri como muitos s\u00edtios s\u00e3o inacess\u00edveis para mim\npara mim porque t\u00eam degraus.<\/p>\n\n\n\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a\nseria a primeira coisa que gostaria de fazer?<\/strong><\/p>\n\n\n\n

Se me curasse amanh\u00e3, marcava uma viagem de mergulho \u00e0\nAustr\u00e1lia.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]<\/p>","protected":false},"author":1,"featured_media":3221,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-3220","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-26T18:54:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Chuck\",\"datePublished\":\"2020-02-26T18:54:04+00:00\",\"dateModified\":\"2024-02-09T14:24:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"wordCount\":378,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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