{"id":3256,"date":"2020-05-07T19:03:28","date_gmt":"2020-05-08T00:03:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3256"},"modified":"2024-02-09T14:24:38","modified_gmt":"2024-02-09T14:24:38","slug":"denise","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Denise"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Entrevista em destaque\"<\/strong><\/p>\n\n\n\n

NOME<\/strong>: Denise                                  IDADE<\/strong>: 49<\/p>\n\n\n\n

PA\u00cdS<\/strong>: Nova Zel\u00e2ndia<\/p>\n\n\n\n

SUB-TIPO LGMD<\/strong>: LGMD 2A\/R1 Relacionado com a calpa\u00edna3<\/p>\n\n\n\n

COM QUE IDADE FOI DIAGNOSTICADO<\/strong>:<\/p>\n\n\n\n

 Foi-me diagnosticada LGMD quando tinha 18 anos e recebi um diagn\u00f3stico confirmado de LGMD 2A\/R1 quando tinha 39 anos.<\/p>\n\n\n\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS<\/strong>:<\/p>\n\n\n\n

Os meus primeiros sintomas foram dificuldades em correr e subir escadas.<\/p>\n\n\n\n

TEM OUTROS FAMILIARES QUE SOFREM DE LGMD<\/strong>:<\/p>\n\n\n\n

N\u00e3o, eu sou o \u00fanico membro da fam\u00edlia com LGMD.<\/p>\n\n\n\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM A LGMD?<\/strong>:<\/p>\n\n\n\n

Os meus maiores desafios t\u00eam sido a perda de for\u00e7a nos bra\u00e7os, o facto de me terem sido retiradas escolhas e a perda de independ\u00eancia, e a necessidade de depender de outras pessoas para fun\u00e7\u00f5es b\u00e1sicas.<\/p>\n\n\n\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O<\/strong>:<\/p>\n\n\n\n

A minha maior realiza\u00e7\u00e3o \u00e9 ter duas filhas lindas (20 e 16 anos).<\/p>\n\n\n\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE<\/strong>:<\/p>\n\n\n\n

Estou a viver uma vida plena apesar desta doen\u00e7a. Continuo a trabalhar a tempo inteiro, a viajar e a fazer tudo o que posso. Tento n\u00e3o deixar que esta doen\u00e7a afecte as coisas que quero alcan\u00e7ar na vida. H\u00e1 sempre uma maneira de o fazer, se formos suficientemente determinados.<\/p>\n\n\n\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD<\/strong>:<\/p>\n\n\n\n

A LGMD \u00e9 uma doen\u00e7a progressiva e debilitante que nos priva das nossas fun\u00e7\u00f5es humanas b\u00e1sicas. As pessoas com esta doen\u00e7a s\u00e3o incrivelmente fortes face a desafios inacredit\u00e1veis.<\/p>\n\n\n\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER<\/strong>:<\/p>\n\n\n\n

Se a minha LGMD fosse curada amanh\u00e3, eu iria nadar para a praia!<\/p>\n\n\n\n

* Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para uma pr\u00f3xima entrevista, visite o nosso site em: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME:  Denise                                  AGE: 49 COUNTRY: New […]<\/p>","protected":false},"author":1,"featured_media":3260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[],"class_list":["post-3256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Denise - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Denise - 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