{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"ENTREVISTA EM DESTAQUE\" <\/strong><\/p>\n\n\n\n

Nome<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Idade<\/strong>: 23 anos<\/p>\n\n\n\n

Pa\u00eds<\/strong>: EUA   <\/p>\n\n\n\n

LGMD Sub-tipo<\/strong>: LGMD 2B\/R2 relacionado com a disferlina<\/p>\n\n\n\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n\n\n\n

Quando tinha dois anos, foi-me diagnosticada incorretamente miopatia muscular. Duas d\u00e9cadas mais tarde, foi-me diagnosticada corretamente a LGMD.                                 <\/p>\n\n\n\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n\n\n\n

Os meus primeiros sintomas foram: atraso na fala, andar mal e n\u00e3o me conseguia sentar.<\/p>\n\n\n\n

Tem outros familiares que sofrem de LGMD?<\/strong>:<\/strong><\/p>\n\n\n\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n\n\n\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n\n\n\n

H\u00e1 uma s\u00e9rie de desafios, mas o maior desafio para mim neste momento \u00e9 subir escadas.<\/p>\n\n\n\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n\n\n\n

A minha maior realiza\u00e7\u00e3o seria a cria\u00e7\u00e3o e o registo da minha organiza\u00e7\u00e3o sem fins lucrativos, que se chama Deletethewordcant. E estou a tirar o meu mestrado em psicologia.<\/p>\n\n\n\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong>:<\/strong><\/p>\n\n\n\n

Influenciou-me porque tive de ser mais forte e mais dura com a escola, com os rufias, com as actividades di\u00e1rias e muito mais.<\/p>\n\n\n\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n\n\n\n

O mundo deve saber que, independentemente de ter ou n\u00e3o LGMD, deve sempre acreditar em si pr\u00f3prio. Al\u00e9m disso, h\u00e1 coisas em que pode ter dificuldades ou que podem levar mais tempo, mas nunca desista. Diga sempre EU POSSO!<\/p>\n\n\n\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n\n\n\n

Se eu fosse curado amanh\u00e3, subiria ao cume da montanha mais alta.<\/p>\n\n\n\n

Para ler mais \"LGMD Spotlight Interviews\" ou para se voluntariar para ser apresentado numa pr\u00f3xima entrevista, visite o nosso site em: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

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