{"id":3506,"date":"2020-08-30T20:36:00","date_gmt":"2020-08-31T01:36:00","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3506"},"modified":"2025-02-28T20:15:47","modified_gmt":"2025-02-28T20:15:47","slug":"girdie","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/clinic-staff\/2020\/08\/30\/girdie\/","title":{"rendered":"Girdie: O nosso embaixador e mascote da LGMD"},"content":{"rendered":"
\"\"<\/figure>\r\n\r\n\r\n\r\n

LGMD \"Entrevista em destaque\"<\/strong><\/h3>\r\n\r\n\r\n\r\n

Embaixador da LGMD<\/strong>: Cinta<\/p>\r\n\r\n\r\n\r\n

Afilia\u00e7\u00e3o<\/strong>: LGMD Awareness Foundation, Inc.<\/p>\r\n\r\n\r\n\r\n

FUN\u00c7\u00c3O:<\/strong> \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Embaixador da Advocacia<\/p>\r\n\r\n\r\n\r\n

O QUE O INSPIROU A SEGUIR UMA CARREIRA NA DEFESA DA DISTROFIA MUSCULAR DAS CINTURAS?<\/strong><\/p>\r\n\r\n\r\n\r\n

Como LIMEmoji da LGMD, conheci um grupo de pessoas incr\u00edveis, talentosas, engra\u00e7adas e atraentes. Chamaram-me a aten\u00e7\u00e3o porque estavam todos vestidos de verde lima. Descobri que todos eles t\u00eam uma coisa em comum: todos eles vivem com a doen\u00e7a neuromuscular rara Distrofia Muscular das Cinturas dos Membros (LGMD). Descobri como trabalham em conjunto para ligar a comunidade LGMD entre si. Unem as fam\u00edlias LGMD \u00e0s pessoas que trabalham para desenvolver tratamentos para a LGMD.\u00a0<\/p>\r\n\r\n\r\n\r\n

QUAIS S\u00c3O OS SEUS OBJECTIVOS COMO EMBAIXADOR DA SENSIBILIZA\u00c7\u00c3O PARA A LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Como a mais recente embaixadora da sensibiliza\u00e7\u00e3o para a LGMD, usarei a minha personalidade alegre para ensinar aos outros sobre a LGMD. Estarei principalmente envolvida nas redes sociais e na divulga\u00e7\u00e3o educacional. Isso significa que poderei explorar o mundo e divulgar a consciencializa\u00e7\u00e3o sobre a LGMD, incentivando as pessoas a visitar www.lgmd-info.org<\/a> para encontrar factos sobre a LGMD, recursos dispon\u00edveis e eventos educativos futuros.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

COMO \u00c9 QUE OS SEUS ESFOR\u00c7OS DE SENSIBILIZA\u00c7\u00c3O AJUDAR\u00c3O AS PESSOAS QUE VIVEM COM LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Ao trazer o meu esp\u00edrito saboroso e divertido na minha viagem global, despertarei o interesse pela consciencializa\u00e7\u00e3o da LGMD. Inform\u00e1-los-ei de que est\u00e1 a ser feita investiga\u00e7\u00e3o para encontrar uma cura para muitas formas de LGMD e dar-lhes-ei esperan\u00e7a. Ensinarei que a consciencializa\u00e7\u00e3o \u00e9 poder, e o poder traz curas, tratamentos e muda as pol\u00edticas. Demonstrarei que juntos somos mais fortes.<\/p>\r\n\r\n\r\n\r\n

O QUE \u00c9 QUE GOSTARIA QUE OS OUTROS SOUBESSEM SOBRE A CAMPANHA DE SENSIBILIZA\u00c7\u00c3O PARA A LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

A consciencializa\u00e7\u00e3o pode ser feita de muitas maneiras diferentes e \u00e9 totalmente divertida! N\u00e3o s\u00f3 se conhecem pessoas de todo o mundo, como tamb\u00e9m se plantam sementes para que elas cres\u00e7am na sua compreens\u00e3o da LGMD. Tal como as limas, a consciencializa\u00e7\u00e3o cresce de uma semente, para um bot\u00e3o, para um verde completo super-r\u00e1pido! \u00c9 muito gratificante.\u00a0\u00a0<\/p>\r\n\r\n\r\n\r\n

QUAL \u00c9 A SUA PARTE FAVORITA DE SER UM EMBAIXADOR DA SENSIBILIZA\u00c7\u00c3O PARA A LGMD?<\/strong><\/p>\r\n\r\n\r\n\r\n

Ser a Girdie, a Embaixadora da Sensibiliza\u00e7\u00e3o para a LGMD, tornou a minha vida como LIMEmoji mais doce! Estou imensamente orgulhosa por fazer parte da miss\u00e3o de dar for\u00e7a \u00e0s pessoas que vivem com Distrofia Muscular das Cinturas dos Membros e \u00e0queles que trabalham para a sua cura. Al\u00e9m disso, adoro que me tirem fotografias com pessoas fixes.<\/p>\r\n\r\n\r\n\r\n

QUAL \u00c9 O MAIOR DESAFIO DE SER \"GIRDIE THE LIMEmoji\" E \"GIRDIE THE LGMD AWARENESS AMBASSADOR\"?<\/strong><\/p>\r\n\r\n\r\n\r\n

A s\u00e9rio, o maior desafio \u00e9 estar preparado para tirar todas as selfies com a c\u00e2mara.<\/p>\r\n\r\n\r\n\r\n

O QUE \u00c9 QUE TEM DE \u00daNICO EM SI QUE OS OUTROS DEVERIAM SABER?<\/strong><\/p>\r\n\r\n\r\n\r\n

Porque o meu nome \u00e9 Girdie (perceberam? Girdle?) e a cor oficial da LGMD Awareness \u00e9 o verde lima, senti-me compelida a fazer parte dos seus esfor\u00e7os de defesa. Decidi levar a minha identidade natural de lima para al\u00e9m do prazer culin\u00e1rio e fazer a diferen\u00e7a no mundo.\u00a0<\/p>\r\n\r\n\r\n\r\n\r\n\r\n

Mal posso esperar para compartilhar os lugares ao redor do mundo onde encontro outros Embaixadores LGMD!\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” LGMD Ambassador:\u00a0 Girdie Affliation:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 LGMD Awareness Foundation, […]<\/p>","protected":false},"author":1,"featured_media":3516,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[105],"tags":[],"class_list":["post-3506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-clinic-staff"],"acf":[],"yoast_head":"\nGirdie: Our LGMD Ambassador and Mascot - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/clinic-staff\/2020\/08\/30\/girdie\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Girdie: Our LGMD Ambassador and Mascot - 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