{"id":412,"date":"2015-01-06T21:59:11","date_gmt":"2015-01-07T03:59:11","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=138"},"modified":"2015-01-06T21:59:11","modified_gmt":"2015-01-07T03:59:11","slug":"138","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Martijn"},"content":{"rendered":"<p>01\/06\/2015:<\/p>\n<p><span class=\"userContent\"><strong>NOME:<\/strong> Martijn\u00a0<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/01\/LGMD2A-Martijn.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-146 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/01\/LGMD2A-Martijn-300x169.png\" alt=\"LGMD2A - Martijn\" width=\"300\" height=\"169\" \/><\/a>\u00a0\u00a0\u00a0 <\/span><\/p>\n<p><span class=\"userContent\"><strong>IDADE:<\/strong> 23<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><strong>PA\u00cdS:<\/strong> Pa\u00edses Baixos<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><strong>LGMD Sub-tipo<\/strong>: LGMD 2A \/ Calpainopathy<br \/>\n<\/span><\/p>\n<p><span class=\"userContent\"><span class=\"text_exposed_show\"><strong>COM QUE IDADE FOI DIAGNOSTICADO:<\/strong>\u00a0 Approximately around my 15th birthday.<\/span><\/span><\/p>\n<p><strong>QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS:<\/strong><br \/>\nThe first symptoms were visible since I was a baby. I used to creep like a crab and I was physically \u2018different\u2019 from my peers. I was active in a number of different sports, such as: gymnastics, volleyball, judo and tennis. But my performance was declining due to the on-going progression of muscle weakness in my body.<\/p>\n<p><strong>TEM OUTROS FAMILIARES QUE SOFREM DE LGMD: \u00a0 <\/strong>No.<\/p>\n<p><strong>QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM LGMD:<\/strong><br \/>\nThe more practical problems are worse to me. For example walking by my own on the street with crooked sidewalk tiles is quite challenging. It requires a lot of attention and I get tired of this. In most cases I decide to use a wheelchair if I have to walk long distances. Also, explaining my muscle disease to strangers is not my favorite hobby. I am a little bit unsure on how much information I should provide. Some of them are asking about the \u2018whole process\u2019 and the more personal things. And some others feel frightened to ask me about any details. Talking about my disease is not a problem for me, but determining how much information to share is the challenge.<\/p>\n<p><strong> QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O:<\/strong><br \/>\nDo you have a few seconds? One of my greatest accomplishes are skydiving, studying and doing everything that healthy people consider as \u2018not possible\u2019 for disabled people. I do like to cross the borders in my live. I am always looking for adventures, like traveling with friends (actually we scheduled a trip to Iceland in February 2015) and so on. Besides that, a personal accomplishment to me is a presentation about my muscle disease and the way I am dealing with the disease to about 500 medical students.<\/p>\n<p><strong>COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE?<\/strong><br \/>\nLGMD has influenced my life for sure! It has made me more mature in many ways. The way I handle problems and enjoy my life has significantly changed since my diagnosis.<\/p>\n<p><strong>O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD:<\/strong><br \/>\nPeople with LGMD or any other muscular disease are not different from healthy people, they just may need a little assistance, at times. Also, do not talk to the person behind the wheelchair, but speak directly to the person in the wheelchair.<\/p>\n<p><strong> SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER:<\/strong><br \/>\nI would want to go Sky Diving solo!<\/p>","protected":false},"excerpt":{"rendered":"<p>01\/06\/2015: NAME: Martijn\u00a0\u00a0\u00a0\u00a0 AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,17],"class_list":["post-412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-netherlands"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LGMD Spotlight Interview - Martijn<\/title>\n<meta name=\"description\" content=\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Martijn\" \/>\n<meta property=\"og:description\" content=\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-01-07T03:59:11+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Martijn\",\"datePublished\":\"2015-01-07T03:59:11+00:00\",\"dateModified\":\"2015-01-07T03:59:11+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\"},\"wordCount\":446,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Calpainopathy\",\"LGMD2A\",\"Netherlands\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2A\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\",\"url\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\",\"name\":\"LGMD Spotlight Interview - Martijn\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-01-07T03:59:11+00:00\",\"dateModified\":\"2015-01-07T03:59:11+00:00\",\"description\":\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Martijn\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Martijn","description":"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","og_locale":"pt_PT","og_type":"article","og_title":"LGMD Spotlight Interview - Martijn","og_description":"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-01-07T03:59:11+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Martijn","datePublished":"2015-01-07T03:59:11+00:00","dateModified":"2015-01-07T03:59:11+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/"},"wordCount":446,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage"},"thumbnailUrl":"","keywords":["Calpainopathy","LGMD2A","Netherlands"],"articleSection":["Individuals with LGMD - Interviews","LGMD2A"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","name":"LGMD Spotlight Interview - Martijn","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-01-07T03:59:11+00:00","dateModified":"2015-01-07T03:59:11+00:00","description":"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Martijn"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/412","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=412"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/412\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/menu-items\/146"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=412"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=412"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=412"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}