{"id":417,"date":"2015-02-18T14:59:09","date_gmt":"2015-02-18T20:59:09","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=282"},"modified":"2015-02-18T14:59:09","modified_gmt":"2015-02-18T20:59:09","slug":"282","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Suzanne"},"content":{"rendered":"

\u00a002\/18\/2015:<\/span><\/p>\n

NOME: Suzanne \"LGMD2B<\/a><\/span><\/p>\n

IDADE: 45
\n<\/span><\/p>\n

PA\u00cdS: Inglaterra
\n<\/span><\/p>\n

LGMD Sub-tipo: LGMD2B - Variante Miyoshi
\n
\nCOM QUE IDADE FOI DIAGNOSTICADO:
\nFui corretamente diagnosticada por volta dos 29 anos de idade.<\/span><\/span><\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS:
\nN\u00e3o conseguia p\u00f4r-me em bicos de p\u00e9s.<\/p>\n

TEM OUTROS MEMBROS DA FAM\u00cdLIA QUE TENHAM LGMD: N\u00e3o<\/p>\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM LGMD:
\nO maior desafio \u00e9 encontrar a energia para fazer tudo o que quero fazer. Acho que s\u00f3 o facto de me levantar de uma cadeira \u00e9 um trabalho muito dif\u00edcil.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O:
\nA minha maior realiza\u00e7\u00e3o \u00e9 ter casado e ter dois filhos maravilhosos. Tamb\u00e9m aprendi a navegar num barco com a Sailability e tenho andado a patinar no gelo na minha cadeira de rodas!<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE?
\nAjudou-me a perceber o que \u00e9 realmente importante na vida, como a fam\u00edlia e os amigos, e a apreciar o que tenho, pois h\u00e1 sempre pessoas em pior situa\u00e7\u00e3o do que n\u00f3s.<\/p>\n

O QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD: Atualmente, n\u00e3o existem tratamentos ou cura para a LGMD 2B Miyoshi. A Jain Foundation est\u00e1 atualmente a ajudar com estudos cl\u00ednicos e investiga\u00e7\u00e3o para saber mais sobre a doen\u00e7a e tentar encontrar tratamentos ou uma cura!<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER:
\nDava um abra\u00e7o \"a s\u00e9rio\" aos meus filhos, corria para a estrada e tinha aulas de dan\u00e7a.<\/p>","protected":false},"excerpt":{"rendered":"

\u00a002\/18\/2015: NAME: Suzanne AGE: 45 COUNTRY: England LGMD Sub-Type: LGMD2B […]<\/p>","protected":false},"author":1,"featured_media":283,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[26,23,27],"class_list":["post-417","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-england","tag-lgmd2b","tag-miyoshi-variant"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Suzanne<\/title>\n<meta name=\"description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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