\n
COM QUE IDADE FOI DIAGNOSTICADO:
\nComecei a ter sintomas aos 16 anos, mas s\u00f3 me foi diagnosticada por volta dos 22 anos.<\/p>\n
QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS:
\nO meu primeiro sintoma foi o aperto dos tend\u00f5es. O meu m\u00e9dico mandou-me para a fisioterapia, mas isso n\u00e3o ajudou muito. Depois disso, descobrimos que seria melhor alongar os meus tend\u00f5es de Aquiles. Fui operada e estive engessada durante dois meses em cada perna, uma de cada vez. Enquanto recuperava e recome\u00e7ava a fazer fisioterapia, o meu fisioterapeuta reparou que eu n\u00e3o estava a recuperar a minha for\u00e7a. Mandou-me a um neurologista para fazer mais exames.<\/p>\n
TEM OUTROS MEMBROS DA FAM\u00cdLIA QUE TENHAM LGMD: n\u00e3o<\/p>\n
QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM LGMD:
\nConsidero que o maior desafio de viver com a LGMD \u00e9 o facto de as pessoas terem dificuldade em compreend\u00ea-la. N\u00e3o \u00e9 f\u00e1cil descrever a LGMD a algu\u00e9m. Muitas pessoas pensam que estou a exagerar ou mesmo a mentir sobre o facto de ter esta doen\u00e7a. Continuo a ter mobilidade e, por isso, acham que n\u00e3o tenho quaisquer dificuldades. Gostava que as pessoas estivessem mais abertas a aprender sobre estas doen\u00e7as e a compreender como \u00e9 dif\u00edcil.<\/p>\n
QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O:
\nO meu maior feito foi ter-me licenciado na universidade. Estava a fazer malabarismos entre o trabalho escolar e os exames m\u00e9dicos que estava a fazer. Por vezes, era dif\u00edcil manter-me a par, mas consegui ultrapassar a situa\u00e7\u00e3o e envolver-me em organiza\u00e7\u00f5es escolares. Entrei para a Gamma Sigma Sigma (uma irmandade de servi\u00e7o) e fui presidente do conselho de eventos do United Students Government. Tive a oportunidade de planear eventos como um orador de prest\u00edgio e um concerto. A cinta para membros n\u00e3o me impediu de ir atr\u00e1s do que eu realmente queria. Passar por aquele palco com o diploma na m\u00e3o foi uma sensa\u00e7\u00e3o que nunca esquecerei.<\/p>\n
COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE?
\nA LGMD ensinou-me a ser mais compreensiva com os outros e com as suas hist\u00f3rias. Toda a gente tem uma hist\u00f3ria que n\u00e3o conhecemos. Tamb\u00e9m me ensinou muito sobre mim pr\u00f3prio. Aprendi o que posso conseguir apesar dos pequenos contratempos. O sentido de humor \u00e9, sem d\u00favida, essencial para ultrapassar os momentos dif\u00edceis. Aprendi a ser paciente e a aceitar o facto de que todos precisam de uma m\u00e3o amiga!<\/p>\n
O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD:
\nQuero que as pessoas saibam que o facto de n\u00e3o a verem n\u00e3o significa que n\u00e3o esteja l\u00e1! Tentem ser pacientes e compreensivos com as pessoas que vos explicam esta doen\u00e7a. \u00c9 t\u00e3o dif\u00edcil para n\u00f3s explicarmos como \u00e9 para voc\u00eas compreenderem.<\/p>\n
SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER:
\nA primeira coisa que eu gostaria de fazer era viajar sem todas as dificuldades envolvidas. Gostaria de ir \u00e0 praia e nadar sem precisar de ajuda. Seria bom poder ir para onde quisesse sem ter de planear todos os pormenores com anteced\u00eancia; bastava n\u00e3o me preocupar e divertir-me!<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"
03\/01\/2015: NAME: Julianna AGE: 24 COUNTRY: United States LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":304,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[23,16],"class_list":["post-418","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b","tag-united-states"],"acf":[],"yoast_head":"\n
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