{"id":5172,"date":"2021-05-17T20:23:28","date_gmt":"2021-05-17T20:23:28","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5172"},"modified":"2024-02-09T14:24:21","modified_gmt":"2024-02-09T14:24:21","slug":"5172","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Maria"},"content":{"rendered":"
\"Lgmd1b<\/span><\/div>

\u00a0<\/strong><\/p>\n

Nome<\/strong>: Maria Idade<\/strong>: 29 anos<\/p>\n

Pa\u00eds<\/strong>: EUA<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD 1B<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Inicialmente, foi-me diagnosticada aos dois anos de idade a AME. Depois, aos 15 anos, foi-me novamente diagnosticada a distrofia muscular das cinturas.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Os meus pais disseram-me que s\u00f3 andei aos 17 meses. Tamb\u00e9m caminhava com um andar cambaleante e usava os bra\u00e7os para me ajudar a levantar de uma posi\u00e7\u00e3o sentada quando era crian\u00e7a.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

A n\u00edvel mental: O pressuposto de que n\u00e3o vivemos uma vida normal \u00e9 o maior desafio para mim. A n\u00edvel f\u00edsico: Aprender a aceitar a progress\u00e3o quando noto que algo ficou mais fraco.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Tirar a carta de condu\u00e7\u00e3o e ter o meu pr\u00f3prio carro. O processo para o conseguir demorou dois longos anos. Parecia que nunca havia um fim \u00e0 vista. Ter o meu carro mudou a minha vida e ajuda-me a manter-me o mais independente poss\u00edvel.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Sem d\u00favida que moldou a minha personalidade e quem eu sou. A minha personalidade feroz vem da minha determina\u00e7\u00e3o em mostrar aos outros que somos capazes. O meu lado apaixonado vem do facto de lutar desde o primeiro dia, mesmo em crian\u00e7a. Crescer com uma defici\u00eancia moldou-me de muitas formas que eu poderia imaginar. Sei que esta doen\u00e7a me transformou na Maria que toda a gente conhece.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

Quero que as pessoas saibam que \u00e9 considerada uma doen\u00e7a rara, pelo que n\u00e3o existe tratamento nem cura. Al\u00e9m disso, quero gritar do cimo das montanhas que n\u00e3o se trata de esclerose m\u00faltipla!<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Ia a correr para ir buscar as minhas cinco sobrinhas e sobrinhos. Ia ao centro comercial e escolhia uma roupa sem ter de me preocupar com o facto de ser demasiado magra para caber em qualquer coisa. E depois, provavelmente, ia jogar putt putt. \u00c9 sem d\u00favida algo de que sinto falta e que costumava ser uma grande parte da minha inf\u00e2ncia. O meu pai levava-me a mim e \u00e0s minhas irm\u00e3s quase todas as semanas quando \u00e9ramos crian\u00e7as e, por isso, tornou-se uma das minhas coisas preferidas.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5173,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[],"class_list":["post-5172","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-05-17T20:23:28+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"aoss@charter.net\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"aoss@charter.net\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"},\"author\":{\"name\":\"aoss@charter.net\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\"},\"headline\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria\",\"datePublished\":\"2021-05-17T20:23:28+00:00\",\"dateModified\":\"2024-02-09T14:24:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"},\"wordCount\":982,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD1B\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\",\"name\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"datePublished\":\"2021-05-17T20:23:28+00:00\",\"dateModified\":\"2024-02-09T14:24:21+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png\",\"width\":1280,\"height\":720,\"caption\":\"Lgmd1b Maria D\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD:\u00a0 Maria\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\",\"name\":\"aoss@charter.net\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"caption\":\"aoss@charter.net\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","og_locale":"pt_PT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2021-05-17T20:23:28+00:00","article_modified_time":"2024-02-09T14:24:21+00:00","og_image":[{"width":1280,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","type":"image\/png"}],"author":"aoss@charter.net","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"aoss@charter.net","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"},"author":{"name":"aoss@charter.net","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511"},"headline":"INDIVIDUAL WITH LGMD:\u00a0 Maria","datePublished":"2021-05-17T20:23:28+00:00","dateModified":"2024-02-09T14:24:21+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"},"wordCount":982,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","articleSection":["Individuals with LGMD - Interviews","LGMD1B"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","url":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","name":"INDIVIDUAL WITH LGMD:\u00a0 Maria - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","datePublished":"2021-05-17T20:23:28+00:00","dateModified":"2024-02-09T14:24:21+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/05\/LGMD1B-Maria-D.png","width":1280,"height":720,"caption":"Lgmd1b Maria D"},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ar\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD:\u00a0 Maria"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511","name":"aoss@charter.net","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","caption":"aoss@charter.net"}}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/5172","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=5172"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/5172\/revisions"}],"predecessor-version":[{"id":5189,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/5172\/revisions\/5189"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media\/5173"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=5172"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=5172"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=5172"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}