{"id":5397,"date":"2021-07-27T00:20:35","date_gmt":"2021-07-27T00:20:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5397"},"modified":"2024-02-09T14:24:03","modified_gmt":"2024-02-09T14:24:03","slug":"lgmd-organization-uildm","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/","title":{"rendered":"ORGANIZA\u00c7\u00c3O LGMD: Grupo LGMD UILDM"},"content":{"rendered":"

\"Uildm\"<\/p>\n

ORGANIZA\u00c7\u00c3O<\/strong>: Grupo UILDM LGMD<\/p>\n

S\u00cdTIO WEB:<\/strong> https:\/\/www.uildm.org\/<\/a><\/p>\n

FACEBOOK: <\/strong>https:\/\/www.facebook.com\/uildm.naz<\/a><\/p>\n

TWITTER: <\/strong>https:\/\/twitter.com\/UILDMnazionale<\/a><\/p>\n

EM QUE SUBTIPO DE LGMD SE CONCENTRA A SUA ORGANIZA\u00c7\u00c3O: <\/strong><\/p>\n

O Grupo LGMD do UILDM n\u00e3o se centra num subtipo espec\u00edfico de LGMD. Refere-se a todos os tipos de LGMD.<\/p>\n

O QUE INSPIROU A CRIA\u00c7\u00c3O DA SUA ORGANIZA\u00c7\u00c3O<\/strong>:<\/p>\n

Inspir\u00e1mo-nos na necessidade de as pessoas que sofrem de Distrofia Muscular das Cinturas M\u00faltiplas fazerem parte de um grupo representativo que lhes possa dar voz, uma vez que \u00e9 dif\u00edcil para elas encontrar respostas \u00e0s suas necessidades e, muitas vezes, s\u00e3o esquecidas pelas institui\u00e7\u00f5es.<\/p>\n

QUAL \u00c9 A MISS\u00c3O DA SUA ORGANIZA\u00c7\u00c3O:<\/strong><\/p>\n

As actividades do Grupo LGMD do UILDM centram-se em: - Incentivar o desenvolvimento de uma comunidade LGMD; - Fornecer informa\u00e7\u00f5es cient\u00edficas e m\u00e9dicas sobre LGMD; - Apoiar a troca de experi\u00eancias e conselhos entre pessoas que partilham a mesma doen\u00e7a.<\/p>\n

QUE SERVI\u00c7OS PRESTA A SUA ORGANIZA\u00c7\u00c3O:<\/strong><\/p>\n

Cri\u00e1mos dois grupos WhatsApp: um para fornecer not\u00edcias e actualiza\u00e7\u00f5es sobre o mundo LGMD, o outro \u00e9 um grupo aberto de autoajuda onde os membros podem trocar ideias, experi\u00eancias e conselhos. Organizamos reuni\u00f5es regulares em linha para proporcionar trocas entre pares e partilhar informa\u00e7\u00f5es sobre as actividades do grupo. Tamb\u00e9m organizamos webinars online com especialistas do mundo cient\u00edfico e m\u00e9dico, de acordo com o nosso Comit\u00e9 Cient\u00edfico.<\/p>\n

DE QUE \u00c9 QUE A SUA ORGANIZA\u00c7\u00c3O MAIS SE ORGULHA:<\/strong><\/p>\n

O grupo est\u00e1 muito motivado e continua a aumentar em n\u00famero. Os membros est\u00e3o dispostos a ajudar-se mutuamente e, muitas vezes, encontram juntos solu\u00e7\u00f5es para problemas comuns.<\/p>\n

O QUE QUER QUE O MUNDO SAIBA SOBRE A SUA ORGANIZA\u00c7\u00c3O<\/strong>:<\/p>\n

Queremos que as pessoas saibam que o grupo UILDM LGMD existe e est\u00e1 dispon\u00edvel para toda a comunidade LGMD. Quanto mais o nosso grupo crescer, mais poderemos dar for\u00e7a aos nossos pedidos.<\/p>\n

COMO \u00c9 QUE AS PESSOAS SE PODEM ENVOLVER NO APOIO \u00c0 SUA ORGANIZA\u00c7\u00c3O:<\/strong><\/p>\n

As pessoas podem participar escrevendo para o endere\u00e7o de correio eletr\u00f3nico gruppocingoli@uildm.it e pedindo para se juntarem ao nosso grupo WhatsApp. Tamb\u00e9m podem encontrar informa\u00e7\u00f5es actualizadas sobre as nossas actividades no s\u00edtio Web da UILDM e na p\u00e1gina do Facebook.<\/p>\n

QUAL \u00c9 A MELHOR FORMA DE CONTACTAR A SUA ORGANIZA\u00c7\u00c3O:<\/strong><\/p>\n

Os interessados podem contactar-nos por correio eletr\u00f3nico para o endere\u00e7o gruppocingoli@uildm.it<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5421,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,95],"tags":[],"class_list":["post-5397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-organization"],"acf":[],"yoast_head":"\nLGMD ORGANIZATION: UILDM LGMD Group - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/organization-interview\/2021\/07\/27\/lgmd-organization-uildm\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD ORGANIZATION: UILDM LGMD Group - 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