{"id":5561,"date":"2021-11-07T23:51:06","date_gmt":"2021-11-07T23:51:06","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5561"},"modified":"2024-02-09T14:23:59","modified_gmt":"2024-02-09T14:23:59","slug":"individual-with-lgmd-osman","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Osman"},"content":{"rendered":"

\"\"<\/p>\n

LGMD \"ENTREVISTA EM DESTAQUE\"<\/p>\n

Nome:<\/strong>\u00a0 Osman<\/p>\n

Idade<\/strong>: 30 anos de idade<\/p>\n

Pa\u00eds:<\/strong>\u00a0 Turquia<\/p>\n

LGMD Sub-tipo:<\/strong>\u00a0 LGMD2D\/R3 Relacionado com o sarcoglicano alfa<\/p>\n

Com que idade foi diagnosticado?<\/strong><\/p>\n

Foi-me diagnosticado aos 16 anos.<\/p>\n

Quais foram os seus primeiros sintomas?<\/strong><\/p>\n

Os sintomas come\u00e7aram a manifestar-se por volta dos dezassete anos. Sentia necessidade de descansar depois de um pouco de corrida. Sentia-me cansado quando subia escadas. Passados alguns anos, comecei a segurar-me quando subia escadas ou me levantava de uma posi\u00e7\u00e3o sentada. Aos 25 anos, comecei a n\u00e3o conseguir inclinar-me para a frente e comecei a andar devagar para n\u00e3o cair.<\/p>\n

Tem outros familiares que sofrem de LGMD?<\/strong><\/p>\n

Sim, a minha irm\u00e3 tamb\u00e9m foi diagnosticada com LGMD2D\/R3.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong><\/p>\n

Os maiores desafios s\u00e3o as actividades da vida di\u00e1ria. N\u00e3o consigo ir onde quero com a minha fam\u00edlia e subir escadas sem me agarrar a nada.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o?<\/strong><\/p>\n

A minha maior realiza\u00e7\u00e3o foi ser engenheiro inform\u00e1tico e ajudar a criar a associa\u00e7\u00e3o LGMD Turquia<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Tornei-me uma pessoa com uma consci\u00eancia elevada. Tento ajudar as outras pessoas em todas as situa\u00e7\u00f5es, na medida das minhas capacidades. Tento anunciar a minha doen\u00e7a e outras doen\u00e7as \u00e0s outras pessoas.<\/p>\n

O que \u00e9 que quer que o mundo saiba sobre a LGMD?<\/strong><\/p>\n

Quero que o mundo saiba tudo sobre a LGMD - sintomas, desafios, gest\u00e3o, reabilita\u00e7\u00e3o, investiga\u00e7\u00e3o cient\u00edfica mais recente e a organiza\u00e7\u00e3o que trabalha para aumentar a sensibiliza\u00e7\u00e3o e proporcionar algum al\u00edvio aos indiv\u00edduos e fam\u00edlias afectados por esta doen\u00e7a neuromuscular progressiva.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong><\/p>\n

Se ficar curada, quero correr sem parar e subir escadas em s\u00edtios que antes temia.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5560,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-5561","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Osman - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2021\/11\/07\/individual-with-lgmd-osman\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" 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