{"id":582,"date":"2015-04-08T14:50:29","date_gmt":"2015-04-08T19:50:29","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=582"},"modified":"2015-04-08T14:50:29","modified_gmt":"2015-04-08T19:50:29","slug":"melissa","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/08\/melissa\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Melissa"},"content":{"rendered":"

04\/08\/2015<\/p>\n

NOME<\/strong>: Melissa \u00a0IDADE<\/strong>: 47 Anos. Idade\"LGMD2i<\/a><\/p>\n

PA\u00cdS<\/strong>: Estados Unidos
\nLGMD Sub-tipo<\/strong>: LGMD2i<\/p>\n

COM QUE IDADE FOI DIAGNOSTICADO<\/strong>:<\/p>\n

Foi-me diagnosticado aos 18 anos<\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS<\/strong>:<\/p>\n

Em crian\u00e7a, eu era desajeitado.<\/p>\n

TEM OUTROS FAMILIARES QUE SOFREM DE LGMD<\/strong>:<\/p>\n

N\u00e3o, sou o \u00fanico membro da minha fam\u00edlia a quem foi diagnosticada distrofia muscular da cintura escapular.<\/p>\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM A LGMD?<\/strong>:<\/p>\n

O maior desafio para mim \u00e9 n\u00e3o conseguir levantar-me de uma cadeira.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O: <\/strong><\/p>\n

A minha maior realiza\u00e7\u00e3o \u00e9 ter transformado a minha organiza\u00e7\u00e3o sem fins lucrativos, Legacy Counseling Center, numa organiza\u00e7\u00e3o de um milh\u00e3o e meio de d\u00f3lares que ajuda milhares de pessoas anualmente.<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE<\/strong>:<\/p>\n

Mudei a minha escolha de carreira para algo que fosse amigo das cadeiras de rodas, para o caso de alguma vez vir a estar nessa situa\u00e7\u00e3o.<\/p>\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD<\/strong>:<\/p>\n

Atualmente, n\u00e3o existe tratamento ou cura.<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER<\/strong>:<\/p>\n

Viajaria sem limites como costumava fazer.<\/p>","protected":false},"excerpt":{"rendered":"

04\/08\/2015 NAME: \u00a0 Melissa \u00a0AGE:\u00a0 47 Yrs. Old COUNTRY:\u00a0 United […]<\/p>","protected":false},"author":1,"featured_media":583,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-582","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Melissa<\/title>\n<meta name=\"description\" content=\"Melissa, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/08\/melissa\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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