{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Arthur"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Artur<\/p>\n

Idade<\/strong>: \u00a013<\/p>\n

Pa\u00eds<\/strong>: Fran\u00e7a<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD 2C\/R5 Gamma Sarcoglycan-related<\/p>\n

Com que idade foi diagnosticado<\/strong>?<\/p>\n

Foi-me diagnosticado quando tinha 9 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas?<\/strong><\/p>\n

Desde pequena que tenho dificuldade em correr e em levantar-me do ch\u00e3o, mas tamb\u00e9m em subir escadas.<\/p>\n

\u00a0<\/strong>Tem outros familiares que sofrem de LGMD?<\/strong><\/p>\n

N\u00e3o, eu tenho uma irm\u00e3, mas ela n\u00e3o tem LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>?<\/p>\n

N\u00e3o \u00e9 f\u00e1cil fazer compreender as nossas dificuldades quando somos crian\u00e7as, muitas vezes as pessoas pensam que n\u00e3o queremos fazer coisas quando n\u00e3o podemos porque o nosso corpo funciona de forma diferente.<\/p>\n

Apesar da doen\u00e7a, mantenho-me sempre feliz e ambicioso e espero manter-me acordado o m\u00e1ximo de tempo poss\u00edvel.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o?<\/strong><\/p>\n

Tento fazer desporto ao meu n\u00edvel e ao meu ritmo, especialmente futebol, adoro a equipa francesa e especialmente Paris. Infelizmente n\u00e3o posso correr. Enquanto os meus m\u00fasculos me aguentarem, continuarei a correr.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Sou uma pessoa lutadora, n\u00e3o quero desistir perante a doen\u00e7a, quero super\u00e1-la. Acho que as pessoas doentes t\u00eam uma grande for\u00e7a interior que \u00e9 importante manter para n\u00e3o enfraquecer. Conheci outras pessoas com LGMD e todas elas t\u00eam essa for\u00e7a interior e eu gosto disso.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>?<\/p>\n

Gostaria que as pessoas conhecessem e compreendessem a gravidade da doen\u00e7a e os riscos que pode haver, mesmo que atualmente n\u00e3o seja muito vis\u00edvel quando somos crian\u00e7as. \u00c9 dif\u00edcil explicar isto porque os outros pensam que n\u00f3s n\u00e3o queremos fazer as coisas e isso pode magoar-nos muito mentalmente.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>?<\/p>\n

Se ficar curado, quero correr numa grande linha reta o m\u00e1ximo de tempo poss\u00edvel e tamb\u00e9m quero tornar-me um grande futebolista e ser o mais r\u00e1pido em campo. Mas tamb\u00e9m quero continuar a lutar por outras crian\u00e7as com doen\u00e7as raras. Espero que os tratamentos cheguem em breve.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Arthur - 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