{"id":5884,"date":"2022-09-14T01:28:29","date_gmt":"2022-09-14T01:28:29","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5884"},"modified":"2024-02-09T14:23:51","modified_gmt":"2024-02-09T14:23:51","slug":"individual-with-lgmd-boonsub","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Boonsub"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Boonsub<\/p>\n

Idade<\/strong>: \u00a031<\/p>\n

Pa\u00eds<\/strong>: TAIL\u00c2NDIA<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD 2A\/R1 relacionado com a calpa\u00edna3<\/p>\n

Com que idade foi diagnosticado<\/strong>?<\/p>\n

Foi-me diagnosticado aos 20 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas?<\/strong><\/p>\n

Rabdomi\u00f3lise (dores musculares e urina escura) devido a exerc\u00edcio f\u00edsico intenso.<\/p>\n

Tem outros familiares que sofrem de LGMD?<\/strong><\/p>\n

N\u00e3o, n\u00e3o tenho nenhum familiar com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>?<\/p>\n

Desde que me foi diagnosticado, correr e subir escadas tem sido um desafio. Assim, n\u00e3o tenho oportunidade de participar com outras pessoas em actividades de aventura.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o?<\/strong><\/p>\n

Atualmente, a minha maior realiza\u00e7\u00e3o \u00e9 a educa\u00e7\u00e3o.\u00a0<\/strong>Sou m\u00e9dico e tamb\u00e9m professor na faculdade de medicina. Tamb\u00e9m me licenciei no programa de Mestrado em Sa\u00fade P\u00fablica na Harvard T.H. Chan School of Public Health. Al\u00e9m disso, estou a estudar no programa de doutoramento (Epidemiologia) na Universidade do Minnesota.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Apercebi-me que tenho de viver com a LGMD. Penso que nada \u00e9 pior do que isto. Embora a LGMD afecte os meus m\u00fasculos, o meu c\u00e9rebro ainda est\u00e1 bem. Relativamente \u00e0s minhas capacidades, estou disposto a ajudar os outros, especialmente os meus colegas, estudantes de medicina e amigos. A LGMD ensinou-me que a vida \u00e9 demasiado curta para a desperdi\u00e7ar. N\u00e3o sei quanto tempo poderei viver no mundo. Por isso, fa\u00e7o tudo o que est\u00e1 ao meu alcance.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>?<\/p>\n

A LGMD \u00e9 uma doen\u00e7a gen\u00e9tica que afecta os m\u00fasculos e a mente das pessoas que dela sofrem. No entanto, todas as pessoas t\u00eam potencial, pelo que podem us\u00e1-lo para criar um mundo maravilhoso.<\/p>\n

Agrade\u00e7o ao meu instituto, aos meus professores, aos meus amigos e \u00e0 minha m\u00e3e por me terem apoiado ao longo do tempo em todas as dimens\u00f5es.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>?<\/p>\n

Vou-me embora!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5885,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[111],"class_list":["post-5884","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-thailand"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Boonsub - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/lgmd2a\/2022\/09\/14\/individual-with-lgmd-boonsub\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Boonsub - 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