{"id":602,"date":"2015-04-20T15:21:34","date_gmt":"2015-04-20T20:21:34","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=602"},"modified":"2015-04-20T15:21:34","modified_gmt":"2015-04-20T20:21:34","slug":"602","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Joana"},"content":{"rendered":"

04\/20\/2015:<\/p>\n

Nome<\/strong>: Joana<\/p>\n

Idade<\/strong>: 18 anos de idade<\/p>\n

\"LGMD2i<\/a><\/p>\n

Pa\u00eds<\/strong>: Estados Unidos<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2i<\/p>\n

 <\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado quando tinha 5 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

Tinha dificuldade em subir escadas e em acompanhar os meus colegas no recreio.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com distrofia muscular da cintura escapular.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

Acho que \u00e9 dif\u00edcil procurar caminhos acess\u00edveis quando se est\u00e1 num ambiente desconhecido. Tamb\u00e9m pode ser um desafio ter de me controlar - mais do que o meu amigo.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Sofri um acidente grave em outubro de 2014. O meu maior feito \u00e9 ter-me esfor\u00e7ado tanto para voltar a andar de forma independente. Foi-me dito que n\u00e3o suportasse peso nas pernas enquanto estivesse no hospital durante um m\u00eas. Mas, depois de v\u00e1rias consultas com v\u00e1rios m\u00e9dicos, eles reverteram as ordens. Trabalhei arduamente todos os dias para conseguir sair do hospital sozinha, um m\u00eas depois!<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Ensinou-me a pensar fora da caixa - a ser criativo e original.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

O facto de se ser deficiente f\u00edsico n\u00e3o significa que se seja deficiente mental.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Eu faria uma corrida e saltaria de alegria!<\/p>","protected":false},"excerpt":{"rendered":"

04\/20\/2015: Name:\u00a0 Jane Age:\u00a0 18 yrs. old Country: \u00a0\u00a0United Stated […]<\/p>","protected":false},"author":1,"featured_media":603,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-602","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Jane<\/title>\n<meta name=\"description\" content=\"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Jane\" \/>\n<meta property=\"og:description\" content=\"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-04-20T20:21:34+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Jane\",\"datePublished\":\"2015-04-20T20:21:34+00:00\",\"dateModified\":\"2015-04-20T20:21:34+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\"},\"wordCount\":263,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"LGMD2i\",\"United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2I\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\",\"url\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\",\"name\":\"LGMD Spotlight Interview - Jane\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-04-20T20:21:34+00:00\",\"dateModified\":\"2015-04-20T20:21:34+00:00\",\"description\":\"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Jane\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Jane","description":"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","og_locale":"pt_PT","og_type":"article","og_title":"LGMD Spotlight Interview - Jane","og_description":"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-04-20T20:21:34+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Jane","datePublished":"2015-04-20T20:21:34+00:00","dateModified":"2015-04-20T20:21:34+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/"},"wordCount":263,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage"},"thumbnailUrl":"","keywords":["LGMD2i","United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2I"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","url":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/","name":"LGMD Spotlight Interview - Jane","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-04-20T20:21:34+00:00","dateModified":"2015-04-20T20:21:34+00:00","description":"Jane, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/pl\/individuals-with-lgmd-interviews\/2015\/04\/20\/602\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Jane"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/602","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=602"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/602\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=602"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=602"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=602"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}