{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Heather"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Urze<\/p>\n

Idade<\/strong>: 60 anos de idade<\/p>\n

Pa\u00eds<\/strong>: EUA<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD2A\/R1 relacionado com a calpa\u00edna 3<\/p>\n

Com que idade foi diagnosticado<\/strong>?<\/p>\n

Foi-me diagnosticado aos 30 anos de idade.<\/p>\n

Quais foram os seus primeiros SINTOMAS?<\/strong><\/p>\n

Os meus primeiros sintomas inclu\u00edam andar de um lado para o outro, ter dificuldade em subir escadas e cair.<\/p>\n

Tem outros familiares que sofrem de LGMD?<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>?<\/p>\n

O maior desafio para mim \u00e9 manter-me o mais independente poss\u00edvel sem assist\u00eancia. At\u00e9 agora, tenho conseguido faz\u00ea-lo.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o?<\/strong><\/p>\n

As minhas maiores realiza\u00e7\u00f5es s\u00e3o os meus dois filhos, continuar a viver de forma independente e conduzir a minha carrinha sentado na minha cadeira de rodas el\u00e9ctrica.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

A LGMD influenciou-me, tornando-me uma pessoa mais independente e positiva.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>?<\/p>\n

Quero que o mundo saiba que \u00e9 poss\u00edvel viver um estilo de vida \"normal\" e feliz se nos empenharmos nisso, mesmo que estejamos numa cadeira de rodas. Tamb\u00e9m quero que o mundo saiba que n\u00e3o deixei que a LGMD me deitasse abaixo. Vivo cada dia ao m\u00e1ximo com um sorriso no rosto.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>?<\/p>\n

Se amanh\u00e3 estivesse curado, a primeira coisa que faria era correr uma maratona com o meu filho e a minha filha. Eles s\u00e3o o meu mundo!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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