{"id":7660,"date":"2023-09-18T16:17:41","date_gmt":"2023-09-18T16:17:41","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=7660"},"modified":"2024-02-09T14:23:47","modified_gmt":"2024-02-09T14:23:47","slug":"individual-with-lgmd-victoria","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Victoria"},"content":{"rendered":"

\"<\/p>\n

Nome<\/strong>: Vit\u00f3ria<\/p>\n

Idade<\/strong>: \u00a038<\/p>\n

Pa\u00eds<\/strong>: EUA<\/p>\n

LGMD Sub-tipo<\/strong>: LGMD D1 DNAJB6-relacionado<\/p>\n

Com que idade foi diagnosticado<\/strong>?<\/p>\n

Aos 37 anos, recebi um diagn\u00f3stico oficial, apesar de se suspeitar que tinha DM (tipo desconhecido) desde os 14 anos.<\/p>\n

Quais foram os seus primeiros sintomas?<\/strong><\/p>\n

Os meus primeiros sintomas inclu\u00edam dificuldade em correr, subir escadas e levantar-me de uma posi\u00e7\u00e3o sentada. Em geral, sentia uma fraqueza generalizada nos bra\u00e7os e nas pernas.<\/p>\n

Tem outros familiares que sofrem de LGMD?<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia que tem LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>?<\/p>\n

O maior desafio \u00e9 o decl\u00ednio na realiza\u00e7\u00e3o de tarefas di\u00e1rias de forma independente, como vestir-se, conduzir, ir \u00e0 casa de banho, fazer o jantar, etc. Aceita\u00e7\u00e3o!<\/p>\n

Quais s\u00e3o as suas maiores realiza\u00e7\u00f5es?<\/strong><\/p>\n

Manter uma atitude positiva em rela\u00e7\u00e3o \u00e0 doen\u00e7a para com o meu filho e nunca lhe mostrar o qu\u00e3o deprimida me sinto ou as lutas di\u00e1rias.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Tornei-me mais vocal e confort\u00e1vel ao falar sobre a doen\u00e7a. Passei da autocomisera\u00e7\u00e3o para a educa\u00e7\u00e3o sobre o capacitismo, a consciencializa\u00e7\u00e3o e a empatia.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>?<\/p>\n

Como comunidade, n\u00e3o somos diferentes de ningu\u00e9m. Somos todos seres humanos que merecem o mesmo respeito, amor e aceita\u00e7\u00e3o.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>?<\/p>\n

Eu voaria para Paris!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":7661,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,102],"tags":[103],"class_list":["post-7660","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd-d1-dnajb6-related","tag-lgmd-d1-dnajb6-related-united-states-lgmd1d"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2023-09-18T16:17:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:23:47+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1\" \/>\n\t<meta property=\"og:image:height\" content=\"1\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Victoria\",\"datePublished\":\"2023-09-18T16:17:41+00:00\",\"dateModified\":\"2024-02-09T14:23:47+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\"},\"wordCount\":414,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png\",\"keywords\":[\"LGMD D1 DNAJB6-related; United States; LGMD1D\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD D1 DNAJB6-related\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\",\"url\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\",\"name\":\"INDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png\",\"datePublished\":\"2023-09-18T16:17:41+00:00\",\"dateModified\":\"2024-02-09T14:23:47+00:00\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png\",\"caption\":\"Lgmdd1 Victoria\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Victoria\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","og_locale":"pt_PT","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation","og_url":"http:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2023-09-18T16:17:41+00:00","article_modified_time":"2024-02-09T14:23:47+00:00","og_image":[{"url":"http:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png","width":1,"height":1,"type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Victoria","datePublished":"2023-09-18T16:17:41+00:00","dateModified":"2024-02-09T14:23:47+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/"},"wordCount":414,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png","keywords":["LGMD D1 DNAJB6-related; United States; LGMD1D"],"articleSection":["Individuals with LGMD - Interviews","LGMD D1 DNAJB6-related"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","url":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/","name":"INDIVIDUAL WITH LGMD: Victoria - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png","datePublished":"2023-09-18T16:17:41+00:00","dateModified":"2024-02-09T14:23:47+00:00","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2023\/10\/LGMDD1-Victoria.png","caption":"Lgmdd1 Victoria"},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2023\/09\/18\/individual-with-lgmd-victoria\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Victoria"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/7660","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=7660"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/7660\/revisions"}],"predecessor-version":[{"id":7662,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/7660\/revisions\/7662"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media\/7661"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=7660"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=7660"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=7660"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}