{"id":945,"date":"2015-07-06T10:35:46","date_gmt":"2015-07-06T15:35:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=945"},"modified":"2015-07-06T10:35:46","modified_gmt":"2015-07-06T15:35:46","slug":"ramesh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Ramesh"},"content":{"rendered":"

07\/06\/2015:<\/strong>\u00a0<\/strong><\/p>\n

NOME<\/strong>: Ramesh \u00a0IDADE<\/strong>: 28 anos\"LGMD2B<\/a>
\nPA\u00cdS<\/strong>: \u00cdndia
\nLGMD Sub-tipo<\/strong>: LGMD2B \/ Disferlinopatia<\/p>\n

COM QUE IDADE FOI DIAGNOSTICADO<\/strong>:
\nComecei a ter sintomas aos 19 anos, mas s\u00f3 me foi diagnosticada por volta dos 22 anos.<\/p>\n

QUAIS FORAM OS SEUS PRIMEIROS SINTOMAS<\/strong>:
\nO meu primeiro sintoma foi que, quando estava a ir para o escrit\u00f3rio, ca\u00ed de repente. Consultei o meu m\u00e9dico e ele sugeriu-me fisioterapia, mas n\u00e3o ajudou muito. Depois disso, ach\u00e1mos que seria melhor consultar um m\u00e9dico em Bangalore (\u00cdndia). Fiz uma biopsia muscular e nervosa e estive engessado durante dois meses em cada perna, uma de cada vez. Ela mandou-me para um neurologista para fazer mais exames.<\/p>\n

TEM OUTROS FAMILIARES QUE SOFREM DE LGMD<\/strong>: N\u00e3o<\/p>\n

QUAIS S\u00c3O, NA SUA OPINI\u00c3O, OS MAIORES DESAFIOS DE VIVER COM A LGMD?<\/strong>:
\nConsidero que o maior desafio de viver com a LGMD \u00e9 o facto de as pessoas terem dificuldade em compreend\u00ea-la. N\u00e3o \u00e9 f\u00e1cil descrever a LGMD a algu\u00e9m. Muitas pessoas pensam que estou a exagerar ou mesmo a mentir sobre o facto de ter esta doen\u00e7a. Para al\u00e9m da doen\u00e7a, considero que a falta de acessibilidade e as atitudes sociais em rela\u00e7\u00e3o \u00e0s pessoas com defici\u00eancia s\u00e3o muito limitadoras. Gostava que as pessoas estivessem mais abertas a aprender sobre estas doen\u00e7as e a compreender como se livrar desta doen\u00e7a.<\/p>\n

QUAL \u00c9 A SUA MAIOR REALIZA\u00c7\u00c3O<\/strong>:
\nA minha maior realiza\u00e7\u00e3o \u00e9 conseguir trabalhar e continuar a trabalhar \u00e0 minha maneira.<\/p>\n

COMO \u00c9 QUE A LGMD O INFLUENCIOU A TORNAR-SE A PESSOA QUE \u00c9 HOJE<\/strong>:
\nAprendi a apreciar as pessoas que me ajudam, a ter paci\u00eancia, a manter a esperan\u00e7a e a evitar a depress\u00e3o, a agradecer por tudo, a compreender as pessoas que n\u00e3o est\u00e3o na mesma situa\u00e7\u00e3o que eu e que est\u00e3o numa situa\u00e7\u00e3o dif\u00edcil, a valorizar o que tenho e a ser poupada, a dar mais amor \u00e0 minha fam\u00edlia todos os dias como se fosse o \u00faltimo... Aprendi a ser paciente e a aceitar o facto de que todos precisam de uma m\u00e3o amiga!<\/p>\n

O QUE \u00c9 QUE QUER QUE O MUNDO SAIBA SOBRE A LGMD<\/strong>:
\nMesmo a maior parte dos profissionais de sa\u00fade n\u00e3o tem conhecimento desta doen\u00e7a, pelo que devem estar conscientes deste facto e ensinar aos doentes como estar seguros e desafiar a vida.<\/p>\n

SE A SUA LGMD PUDESSE SER \"CURADA\" AMANH\u00c3, QUAL SERIA A PRIMEIRA COISA QUE GOSTARIA DE FAZER<\/strong>:
\nAntes de mais, gostaria de felicitar todos os m\u00e9dicos que me ajudaram pessoalmente. O mais importante \u00e9 que gostaria de abrir um blogue sobre esta doen\u00e7a e orientar e apoiar os doentes na supera\u00e7\u00e3o da doen\u00e7a. Eu sei como estou a sofrer com esta doen\u00e7a. N\u00e3o vou dar hip\u00f3tese a que outros sofram novamente.<\/p>","protected":false},"excerpt":{"rendered":"

07\/06\/2015:\u00a0 NAME: Ramesh \u00a0AGE: 28 yrs. old COUNTRY: India LGMD […]<\/p>","protected":false},"author":1,"featured_media":946,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[21,30,23],"class_list":["post-945","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-dysferlinopathy","tag-india","tag-lgmd2b"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Ramesh<\/title>\n<meta name=\"description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Ramesh\" \/>\n<meta property=\"og:description\" content=\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-07-06T15:35:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Ramesh\",\"datePublished\":\"2015-07-06T15:35:46+00:00\",\"dateModified\":\"2015-07-06T15:35:46+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"},\"wordCount\":458,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Dysferlinopathy\",\"India\",\"LGMD2B\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"pt-PT\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\",\"url\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\",\"name\":\"LGMD Spotlight Interview - Ramesh\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2015-07-06T15:35:46+00:00\",\"dateModified\":\"2015-07-06T15:35:46+00:00\",\"description\":\"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb\"},\"inLanguage\":\"pt-PT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Ramesh\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"pt-PT\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"pt-PT\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"LGMD Spotlight Interview - Ramesh","description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","og_locale":"pt_PT","og_type":"article","og_title":"LGMD Spotlight Interview - Ramesh","og_description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","og_url":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2015-07-06T15:35:46+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Ramesh","datePublished":"2015-07-06T15:35:46+00:00","dateModified":"2015-07-06T15:35:46+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"},"wordCount":458,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"thumbnailUrl":"","keywords":["Dysferlinopathy","India","LGMD2B"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"pt-PT"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","url":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/","name":"LGMD Spotlight Interview - Ramesh","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage"},"thumbnailUrl":"","datePublished":"2015-07-06T15:35:46+00:00","dateModified":"2015-07-06T15:35:46+00:00","description":"Ramesh who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb"},"inLanguage":"pt-PT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/"]}]},{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/06\/ramesh\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Ramesh"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"pt-PT"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"pt-PT","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/945","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/comments?post=945"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/posts\/945\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/media?parent=945"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/categories?post=945"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/pt\/wp-json\/wp\/v2\/tags?post=945"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}