{"id":974,"date":"2015-08-07T09:25:46","date_gmt":"2015-08-07T14:25:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=974"},"modified":"2015-08-07T09:25:46","modified_gmt":"2015-08-07T14:25:46","slug":"samantha","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/08\/07\/samantha\/","title":{"rendered":"INDIV\u00cdDUO COM LGMD: Samantha"},"content":{"rendered":"

08\/07\/2015:<\/p>\n

Nome<\/strong>: Samantha\u00a0 IDADE<\/strong>: 7 anos de idade\"LGMD2i<\/a><\/p>\n

PA\u00cdS: EUA<\/p>\n

LGMD Sub-tipo: LGMD2i<\/p>\n

\u00a0<\/strong><\/p>\n

Com que idade foi diagnosticado<\/strong>:<\/p>\n

Foi-me diagnosticado aos 2 anos de idade.<\/p>\n

Quais foram os seus primeiros sintomas<\/strong>:<\/p>\n

A minha m\u00e3e e o meu pai viam-me cair muitas vezes e eu tinha dificuldade em acompanhar os meus amigos.<\/p>\n

Tem outros familiares que sofrem de LGMD:<\/strong><\/p>\n

N\u00e3o, sou a \u00fanica pessoa da minha fam\u00edlia com LGMD.<\/p>\n

Quais s\u00e3o, na sua opini\u00e3o, os maiores desafios de viver com a LGMD?<\/strong>:<\/p>\n

N\u00e3o gosto de n\u00e3o ser capaz de correr t\u00e3o depressa como os meus amigos na escola. \u00c9 dif\u00edcil fazer gin\u00e1stica, mas mesmo assim divirto-me a tentar. A minha m\u00e3e e o meu pai obrigam-me a tomar uma vitamina chamada \"CoQ10\" e eu n\u00e3o gosto do sabor que tem. Tamb\u00e9m n\u00e3o gosto de usar as minhas botas de alongamento \u00e0 noite. N\u00e3o gosto muito que as pessoas saibam que tenho LGMD porque \u00e9 um bocado embara\u00e7oso.<\/p>\n

Qual \u00e9 a sua maior realiza\u00e7\u00e3o<\/strong>:<\/p>\n

Orgulho-me de poder ler livros de cap\u00edtulos e de poder andar a cavalo. Tamb\u00e9m estou entusiasmado por poder saltar da prancha de mergulho e nadar na parte funda da piscina. Bato bem na bola quando jogo softbol e fico entusiasmado quando chego \u00e0 base.<\/p>\n

Como \u00e9 que a LGMD o influenciou a tornar-se a pessoa que \u00e9 hoje?<\/strong><\/p>\n

Fa\u00e7o bancas de limonada e vendo pulseiras com os meus primos para angariar fundos para a LGMD. Tenho a sorte de ter conhecido outras pessoas que t\u00eam LGMD quando fui a uma confer\u00eancia no Iowa. Agora s\u00e3o meus amigos.<\/p>\n

O que quer que o mundo saiba sobre a LGMD<\/strong>:<\/p>\n

\u00c9 dif\u00edcil ter LGMD mas, por vezes, conhe\u00e7o outras pessoas que t\u00eam defici\u00eancias piores do que a minha e apercebo-me de que a LGMD n\u00e3o \u00e9 assim t\u00e3o m\u00e1.<\/p>\n

Se a sua LGMD pudesse ser \"curada\" amanh\u00e3, qual seria a primeira coisa que gostaria de fazer?<\/strong>:<\/p>\n

Atirava as minhas botas de esticar pela janela e ia at\u00e9 ao Hershey Park para celebrar!<\/p>","protected":false},"excerpt":{"rendered":"

08\/07\/2015: Name:\u00a0 Samantha\u00a0 AGE: 7 yrs. old COUNTRY: USA LGMD […]<\/p>","protected":false},"author":1,"featured_media":975,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Samantha<\/title>\n<meta name=\"description\" content=\"Samantha, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/pt\/individuals-with-lgmd-interviews\/2015\/08\/07\/samantha\/\" \/>\n<meta property=\"og:locale\" content=\"pt_PT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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