{"id":1004,"date":"2015-09-08T10:17:31","date_gmt":"2015-09-08T15:17:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1004"},"modified":"2015-09-08T10:17:31","modified_gmt":"2015-09-08T15:17:31","slug":"shelley","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/","title":{"rendered":"\u0418\u041d\u0414\u0418\u0412\u0418\u0414\u0423\u0410\u041b \u0421 \u041b\u0413\u041c\u0414: \u0428\u0435\u043b\u043b\u0438"},"content":{"rendered":"<p>09\/08\/2015<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u0418\u043c\u044f<\/strong>:    \u0428\u0435\u043b\u043b\u0438 \u0412\u043e\u0437\u0440\u0430\u0441\u0442:  50<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/09\/LGMD2A-Shelley-T.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1005 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/09\/LGMD2A-Shelley-T-300x169.png\" alt=\"LGMD2A - Shelley T\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\u0421\u0422\u0420\u0410\u041d\u0410<\/strong>:    \u041a\u0430\u043d\u0430\u0434\u0430<\/p>\n<p><strong>LGMD \u041f\u043e\u0434\u0442\u0438\u043f<\/strong>:    LGMD2A \/ \u041a\u0430\u043b\u044c\u043f\u0430\u0438\u043d\u043e\u043f\u0430\u0442\u0438\u044f<\/p>\n<p><strong>\u0412 \u043a\u0430\u043a\u043e\u043c \u0432\u043e\u0437\u0440\u0430\u0441\u0442\u0435 \u0432\u0430\u043c \u0431\u044b\u043b \u043f\u043e\u0441\u0442\u0430\u0432\u043b\u0435\u043d \u0434\u0438\u0430\u0433\u043d\u043e\u0437<\/strong>:<\/p>\n<p>\u0414\u0438\u0430\u0433\u043d\u043e\u0437 \u043c\u043d\u0435 \u043f\u043e\u0441\u0442\u0430\u0432\u0438\u043b\u0438 \u0432 11 \u043b\u0435\u0442.<\/p>\n<p><strong>\u041a\u0430\u043a\u043e\u0432\u044b \u0431\u044b\u043b\u0438 \u0432\u0430\u0448\u0438 \u043f\u0435\u0440\u0432\u044b\u0435 \u0441\u0438\u043c\u043f\u0442\u043e\u043c\u044b<\/strong>:<\/p>\n<p>\u041c\u043e\u0438 \u043f\u0435\u0440\u0432\u044b\u0435 \u0441\u0438\u043c\u043f\u0442\u043e\u043c\u044b - \u0445\u043e\u0434\u044c\u0431\u0430 \u043d\u0430 \u043d\u043e\u0441\u043e\u0447\u043a\u0430\u0445 \u0438 \u0442\u0440\u0443\u0434\u043d\u043e\u0441\u0442\u0438 \u0441 \u043f\u043e\u0434\u044a\u0435\u043c\u043e\u043c \u043f\u043e \u043b\u0435\u0441\u0442\u043d\u0438\u0446\u0435.<\/p>\n<p><strong>\u0415\u0441\u0442\u044c \u043b\u0438 \u0443 \u0432\u0430\u0441 \u0434\u0440\u0443\u0433\u0438\u0435 \u0447\u043b\u0435\u043d\u044b \u0441\u0435\u043c\u044c\u0438, \u0441\u0442\u0440\u0430\u0434\u0430\u044e\u0449\u0438\u0435 LGMD:<\/strong><\/p>\n<p>\u0414\u0430, \u0432\u0441\u0435 \u043c\u043e\u0438 \u0431\u0440\u0430\u0442\u044c\u044f \u0438 \u0441\u0435\u0441\u0442\u0440\u044b \u0431\u043e\u043b\u044c\u043d\u044b.  \u0423 \u043c\u043e\u0435\u0439 \u0441\u0435\u0441\u0442\u0440\u044b \u041c\u0438\u0448\u0435\u043b\u044c \u0438 \u0431\u0440\u0430\u0442\u0430 \u0414\u0436\u043e\u043d\u0430 - LGMD2A.<\/p>\n<p><strong>\u0427\u0442\u043e, \u043f\u043e \u0432\u0430\u0448\u0435\u043c\u0443 \u043c\u043d\u0435\u043d\u0438\u044e, \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u043d\u0430\u0438\u0431\u043e\u043b\u044c\u0448\u0435\u0439 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u043e\u0439 \u0432 \u0436\u0438\u0437\u043d\u0438 \u0441 LGMD<\/strong>:<\/p>\n<p>\u041e\u0434\u043d\u0438\u043c \u0438\u0437 \u0441\u0430\u043c\u044b\u0445 \u0431\u043e\u043b\u044c\u0448\u0438\u0445 \u0438\u0441\u043f\u044b\u0442\u0430\u043d\u0438\u0439 \u0432 \u043c\u043e\u0438 \u0434\u0432\u0430\u0434\u0446\u0430\u0442\u044c \u043b\u0435\u0442 \u0431\u044b\u043b\u043e \u0442\u043e, \u0447\u0442\u043e \u044f \u0431\u044b\u043b\u0430 \u0444\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u0438 \u0441\u043b\u0430\u0431\u0430 \u0438 \u043d\u0435 \u043c\u043e\u0433\u043b\u0430 \u0438\u043c\u0435\u0442\u044c \u0434\u0435\u0442\u0435\u0439, \u0440\u043e\u0436\u0430\u0442\u044c \u0438 \u0432\u044b\u043d\u0430\u0448\u0438\u0432\u0430\u0442\u044c \u0440\u0435\u0431\u0435\u043d\u043a\u0430.<\/p>\n<p>\u041d\u0435\u0441\u043c\u043e\u0442\u0440\u044f \u043d\u0430 \u0432\u044b\u0441\u0448\u0435\u0435 \u043e\u0431\u0440\u0430\u0437\u043e\u0432\u0430\u043d\u0438\u0435 \u0438 \u0434\u0438\u043f\u043b\u043e\u043c \u043a\u043e\u043b\u043b\u0435\u0434\u0436\u0430, \u043d\u0430\u0439\u0442\u0438 \u043f\u043e\u043b\u043d\u043e\u0446\u0435\u043d\u043d\u0443\u044e \u0440\u0430\u0431\u043e\u0442\u0443 \u0431\u044b\u043b\u043e \u043d\u0435\u043f\u0440\u043e\u0441\u0442\u043e.  \u0420\u0430\u0431\u043e\u0442\u043e\u0434\u0430\u0442\u0435\u043b\u0438 \u0438 \u0441\u043e\u0442\u0440\u0443\u0434\u043d\u0438\u043a\u0438 \u043e\u0442\u043a\u0430\u0437\u044b\u0432\u0430\u043b\u0438\u0441\u044c \u043f\u043e\u043d\u0438\u043c\u0430\u0442\u044c \u043f\u043e\u0442\u0440\u0435\u0431\u043d\u043e\u0441\u0442\u0438 \u043b\u044e\u0434\u0435\u0439 \u0441 \u043e\u0433\u0440\u0430\u043d\u0438\u0447\u0435\u043d\u043d\u044b\u043c\u0438 \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u044f\u043c\u0438.<\/p>\n<p><strong>\u041a\u0430\u043a\u043e\u0435 \u0432\u0430\u0448\u0435 \u0441\u0430\u043c\u043e\u0435 \u0431\u043e\u043b\u044c\u0448\u043e\u0435 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0435<\/strong>:<\/p>\n<p>\u041e\u0434\u043d\u0438\u043c \u0438\u0437 \u043c\u043e\u0438\u0445 \u0441\u0430\u043c\u044b\u0445 \u0431\u043e\u043b\u044c\u0448\u0438\u0445 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0439 \u0431\u044b\u043b\u043e \u043d\u0430\u043f\u0438\u0441\u0430\u043d\u0438\u0435 \u043c\u0435\u043c\u0443\u0430\u0440\u043e\u0432 \u043e \u0436\u0438\u0437\u043d\u0438 \u0441 LGMD \u0438 \u043f\u043e\u043c\u043e\u0449\u044c \u0434\u0440\u0443\u0433\u0438\u043c \u043b\u044e\u0434\u044f\u043c \u0432 \u043f\u0440\u0435\u043e\u0434\u043e\u043b\u0435\u043d\u0438\u0438 \u0438\u0445 \u0440\u0430\u0437\u043d\u043e\u0433\u043b\u0430\u0441\u0438\u0439.  \u041e\u043a\u043e\u043d\u0447\u0430\u043d\u0438\u0435 \u0443\u043d\u0438\u0432\u0435\u0440\u0441\u0438\u0442\u0435\u0442\u0430 - \u0442\u043e\u0436\u0435 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0435.<\/p>\n<p><strong>\u041a\u0430\u043a LGMD \u043f\u043e\u0432\u043b\u0438\u044f\u043b \u043d\u0430 \u0442\u043e, \u0447\u0442\u043e \u0432\u044b \u0441\u0442\u0430\u043b\u0438 \u0442\u0435\u043c \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u043e\u043c, \u043a\u043e\u0442\u043e\u0440\u044b\u043c \u044f\u0432\u043b\u044f\u0435\u0442\u0435\u0441\u044c \u0441\u0435\u0433\u043e\u0434\u043d\u044f:<\/strong><\/p>\n<p>\u042f \u043d\u0435 \u0432\u043e\u0441\u043f\u0440\u0438\u043d\u0438\u043c\u0430\u044e \u0442\u043e, \u0447\u0442\u043e \u043c\u043e\u0433\u0443 \u0434\u0435\u043b\u0430\u0442\u044c, \u043a\u0430\u043a \u0434\u043e\u043b\u0436\u043d\u043e\u0435.  \u042f \u0438\u0441\u043f\u043e\u043b\u044c\u0437\u0443\u044e \u0441\u0432\u043e\u044e \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043d\u043e\u0441\u0442\u044c, \u0447\u0442\u043e\u0431\u044b \u043f\u0440\u043e\u0441\u0432\u0435\u0449\u0430\u0442\u044c \u0434\u0440\u0443\u0433\u0438\u0445 \u0447\u0435\u0440\u0435\u0437 \u0441\u0432\u043e\u0438 \u043c\u0435\u043c\u0443\u0430\u0440\u044b \u0438 \u0432\u0434\u043e\u0445\u043d\u043e\u0432\u043b\u044f\u044e\u0449\u0438\u0435 \u0432\u044b\u0441\u0442\u0443\u043f\u043b\u0435\u043d\u0438\u044f.<\/p>\n<p><strong>\u0427\u0442\u043e \u0432\u044b \u0445\u043e\u0442\u0438\u0442\u0435, \u0447\u0442\u043e\u0431\u044b \u043c\u0438\u0440 \u0443\u0437\u043d\u0430\u043b \u043e LGMD<\/strong>:<\/p>\n<p>LGMD \u043b\u0438\u0448\u0430\u0435\u0442 \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u0430 \u0441\u0438\u043b\u044b \u0435\u0433\u043e \u0432\u043e\u043b\u0435\u0432\u044b\u0445 \u043c\u044b\u0448\u0446, \u043d\u043e \u043d\u0435 \u0432\u043b\u0438\u044f\u0435\u0442 \u043d\u0430 \u0438\u043d\u0442\u0435\u043b\u043b\u0435\u043a\u0442.   \u0424\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u0430\u044f \u043d\u0435\u043f\u043e\u043b\u043d\u043e\u0446\u0435\u043d\u043d\u043e\u0441\u0442\u044c \u043c\u043e\u0436\u0435\u0442 \u0431\u044b\u0442\u044c \u043e\u0447\u0435\u043d\u044c \u043d\u0435\u043f\u0440\u0438\u044f\u0442\u043d\u043e\u0439, \u043d\u043e \u043e\u0441\u0443\u0436\u0434\u0435\u043d\u0438\u0435 \u043e\u043a\u0440\u0443\u0436\u0430\u044e\u0449\u0438\u0445 \u0438\u0437-\u0437\u0430 \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043d\u043e\u0441\u0442\u0438 \u043c\u043e\u0436\u0435\u0442 \u0431\u044b\u0442\u044c \u0433\u043e\u0440\u0430\u0437\u0434\u043e \u0445\u0443\u0436\u0435.<\/p>\n<p><strong>\u0415\u0441\u043b\u0438 \u0431\u044b \u0432\u0430\u0448 LGMD \u043c\u043e\u0436\u043d\u043e \u0431\u044b\u043b\u043e \"\u0432\u044b\u043b\u0435\u0447\u0438\u0442\u044c\" \u0437\u0430\u0432\u0442\u0440\u0430, \u0447\u0442\u043e \u0431\u044b \u0432\u044b \u0445\u043e\u0442\u0435\u043b\u0438 \u0441\u0434\u0435\u043b\u0430\u0442\u044c \u0432 \u043f\u0435\u0440\u0432\u0443\u044e \u043e\u0447\u0435\u0440\u0435\u0434\u044c<\/strong>:<\/p>\n<p>\u042f \u043d\u0430\u0434\u0435\u0432\u0430\u043b\u0430 \u043f\u0430\u0440\u0443 \u0444\u0438\u0433\u0443\u0440\u043d\u044b\u0445 \u043a\u043e\u043d\u044c\u043a\u043e\u0432 \u0438 \u043a\u0430\u0442\u0430\u043b\u0430\u0441\u044c \u0447\u0430\u0441\u0430\u043c\u0438.  \u041a\u043e\u0433\u0434\u0430 39 \u043b\u0435\u0442 \u043d\u0430\u0437\u0430\u0434 \u043c\u043d\u0435 \u043f\u043e\u0441\u0442\u0430\u0432\u0438\u043b\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437, \u0441\u0443\u0445\u043e\u0436\u0438\u043b\u0438\u044f \u043f\u044f\u0442\u043e\u0447\u043d\u043e\u0433\u043e \u043a\u0430\u043d\u0430\u0442\u0438\u043a\u0430 \u0443\u0434\u043b\u0438\u043d\u0438\u043b\u0438\u0441\u044c (\u0438\u0437-\u0437\u0430 \u0440\u0430\u0437\u0432\u0438\u0442\u0438\u044f \u043a\u043e\u043d\u0442\u0440\u0430\u043a\u0442\u0443\u0440\u044b), \u0438 \u044f \u0431\u043e\u043b\u044c\u0448\u0435 \u043d\u0435 \u043c\u043e\u0433\u043b\u0430 \u043a\u0430\u0442\u0430\u0442\u044c\u0441\u044f.  \u042d\u0442\u043e \u0440\u0430\u0437\u0431\u0438\u043b\u043e \u043c\u043d\u0435 \u0441\u0435\u0440\u0434\u0446\u0435!<\/p>\n<p>\u0427\u0442\u043e\u0431\u044b \u043f\u0440\u043e\u0447\u0438\u0442\u0430\u0442\u044c \u0434\u0440\u0443\u0433\u0438\u0435 \u0438\u043d\u0442\u0435\u0440\u0432\u044c\u044e \"LGMD Spotlight Interviews\" \u0438\u043b\u0438 \u0441\u0442\u0430\u0442\u044c \u0434\u043e\u0431\u0440\u043e\u0432\u043e\u043b\u044c\u0446\u0435\u043c \u0434\u043b\u044f \u0443\u0447\u0430\u0441\u0442\u0438\u044f \u0432 \u043f\u0440\u0435\u0434\u0441\u0442\u043e\u044f\u0449\u0435\u043c \u0438\u043d\u0442\u0435\u0440\u0432\u044c\u044e, \u043f\u043e\u0441\u0435\u0442\u0438\u0442\u0435 \u043d\u0430\u0448 \u0441\u0430\u0439\u0442: <a href=\"http:\/\/l.facebook.com\/l.php?u=http%3A%2F%2Flgmd-info.org%2Fspotlight-interviews&amp;h=LAQGjzMDlAQElYnzMMJDODkDtEUAtzcfKqmw12CFDEuC4dQ&amp;enc=AZOiR6kcAyifHkM8aShnl6MUDGVyT3cKzhm8VmeAmH5YBxdpklBQyBJjTHPHLTaw1J3VhEoaaSpegkhC831AKHhzUpREyCpxyfRM8dQ_9yZ-1MY3wsRJzAXIIYN9dFhbCMoSqLmkVNz8g_9JaeaBunvQqw9eQwbyhYlVuL6UAhAkWUfWG_3jS9u5XdWiVd5InYvVt_Gg4vyFI1EWVa5SRbvv&amp;s=1\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>09\/08\/2015 &nbsp; Name:\u00a0 \u00a0 Shelley \u00a0\u00a0\u00a0AGE:\u00a0 50 COUNTRY: \u00a0\u00a0\u00a0Canada LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1005,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,38,15],"class_list":["post-1004","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-canada","tag-lgmd2a"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LGMD Spotlight Interview - Shelley<\/title>\n<meta name=\"description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:locale\" content=\"ru_RU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - Shelley\" \/>\n<meta property=\"og:description\" content=\"Shelley, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/09\/08\/shelley\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2015-09-08T15:17:31+00:00\" \/>\n<meta property=\"og:image\" 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