{"id":1722,"date":"2018-02-26T21:26:04","date_gmt":"2018-02-27T03:26:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1722"},"modified":"2018-02-26T21:26:04","modified_gmt":"2018-02-27T03:26:04","slug":"aleksandra","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2018\/02\/26\/aleksandra\/","title":{"rendered":"\u0418\u041d\u0414\u0418\u0412\u0418\u0414\u0423\u0410\u041b \u0421 \u041b\u0413\u041c\u0414: \u0410\u043b\u0435\u043a\u0441\u0430\u043d\u0434\u0440\u0430"},"content":{"rendered":"<p><strong>LGMD \"Spotlight Interview\" - A Mother's<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/02\/LGMD2D-Aleksandra.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1720 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/02\/LGMD2D-Aleksandra-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a> \u041f\u0435\u0440\u0441\u043f\u0435\u043a\u0442\u0438\u0432\u0430<\/strong><\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\u0418\u043c\u044f \u043c\u0430\u0442\u0435\u0440\u0438:\u00a0 <\/strong>\u0410\u043b\u0435\u043a\u0441\u0430\u043d\u0434\u0440\u0430<\/p>\n<p><strong>\u0421\u0442\u0440\u0430\u043d\u0430:<\/strong> \u00a0\u00a0\u041d\u0438\u0434\u0435\u0440\u043b\u0430\u043d\u0434\u044b<\/p>\n<p><strong>\u041f\u043e\u0434\u0442\u0438\u043f LGMD \u0441\u044b\u043d\u0430:<\/strong>\u00a0 LGMD2D<!--more--><\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u0412 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\u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044e. \u041c\u044b \u0431\u044b\u043b\u0438 \u043e\u043f\u0443\u0441\u0442\u043e\u0448\u0435\u043d\u044b, \u0442\u0430\u043a \u043a\u0430\u043a \u0435\u0433\u043e \u0441\u0442\u0430\u0440\u0448\u0430\u044f \u0441\u0435\u0441\u0442\u0440\u0430 \u0441\u043a\u043e\u043d\u0447\u0430\u043b\u0430\u0441\u044c \u0438\u0437-\u0437\u0430 HLHS, \u0430 \u044f \u0431\u044b\u043b\u0430 \u043d\u0430 8-\u043c \u043c\u0435\u0441\u044f\u0446\u0435 \u0431\u0435\u0440\u0435\u043c\u0435\u043d\u043d\u043e\u0441\u0442\u0438 \u043d\u0430\u0448\u0438\u043c \u043c\u043b\u0430\u0434\u0448\u0438\u043c \u0440\u0435\u0431\u0435\u043d\u043a\u043e\u043c. \u041f\u0440\u043e\u0448\u0435\u043b \u043f\u043e\u0447\u0442\u0438 \u0433\u043e\u0434, \u043f\u0440\u0435\u0436\u0434\u0435 \u0447\u0435\u043c \u043c\u044b \u0443\u0437\u043d\u0430\u043b\u0438, \u0447\u0442\u043e \u044d\u0442\u043e \u0442\u0438\u043f LGMD2D, \u0438 \u044f 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\u043d\u043e\u0432\u0443\u044e \u0441\u0435\u043c\u044c\u044e, \u0431\u0443\u0434\u0443\u0449\u0435\u0435 \u0438 \u0441\u0438\u043b\u044b \u0436\u0438\u0442\u044c.<\/p>\n<p><strong>\u0427\u0422\u041e \u0412\u042b \u0425\u041e\u0422\u0418\u0422\u0415, \u0427\u0422\u041e\u0411\u042b \u041c\u0418\u0420 \u0423\u0417\u041d\u0410\u041b \u041e \u041b\u0413\u041c\u0414<\/strong>:<\/p>\n<p>\u042f \u0445\u043e\u0447\u0443, \u0447\u0442\u043e\u0431\u044b \u0432\u0435\u0441\u044c \u043c\u0438\u0440 \u0437\u043d\u0430\u043b, \u0447\u0442\u043e \u0435\u0441\u0442\u044c \u043d\u0430\u0434\u0435\u0436\u0434\u0430 \u043d\u0430 \u0438\u0437\u043b\u0435\u0447\u0435\u043d\u0438\u0435. \u041a \u0441\u043e\u0436\u0430\u043b\u0435\u043d\u0438\u044e, \u0434\u043e \u0441\u0438\u0445 \u043f\u043e\u0440 \u0435\u0441\u0442\u044c \u0432\u0440\u0430\u0447\u0438, \u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u043d\u0435 \u0440\u0430\u0441\u0441\u043a\u0430\u0437\u044b\u0432\u0430\u044e\u0442 \u0438\u043b\u0438 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\u043f\u0430\u0446\u0438\u0435\u043d\u0442\u043e\u0432! \u041e\u043d\u0438 - \u043d\u0430\u0448\u0438 \u0433\u0435\u0440\u043e\u0438. \u041c\u043e\u0439 \u0441\u044b\u043d - \u043b\u0443\u0447\u0448\u0438\u0439 \u0432\u043e\u0438\u043d.  \u042f \u043d\u0430\u0434\u0435\u044e\u0441\u044c, \u0447\u0442\u043e \u043b\u044e\u0434\u0438 \u0431\u0443\u0434\u0443\u0442 \u0432\u043a\u043b\u0430\u0434\u044b\u0432\u0430\u0442\u044c \u0434\u0435\u043d\u044c\u0433\u0438 \u0432 \u044d\u0442\u043e\u0442 \u043d\u043e\u0432\u044b\u0439 \u0441\u043f\u043e\u0441\u043e\u0431 \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u043d\u0435\u0440\u0432\u043d\u043e-\u043c\u044b\u0448\u0435\u0447\u043d\u044b\u0445 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439, \u043c\u044b \u043a\u0430\u043a \u043d\u0438\u043a\u043e\u0433\u0434\u0430 \u0431\u043b\u0438\u0437\u043a\u0438 \u043a \u0438\u0437\u043b\u0435\u0447\u0435\u043d\u0438\u044e\".<\/p>\n<p><strong>\u0415\u0421\u041b\u0418 \u0411\u042b 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\u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u044f \u0432\u043e \u0432\u0441\u0435\u043c \u043c\u0438\u0440\u0435, \u0438 \u0447\u0442\u043e \u0433\u0435\u043d\u043d\u0430\u044f \u0442\u0435\u0440\u0430\u043f\u0438\u044f \u0441\u0442\u0430\u043d\u0435\u0442 \u043d\u043e\u0432\u044b\u043c \u0441\u043f\u043e\u0441\u043e\u0431\u043e\u043c \u043b\u0435\u0447\u0435\u043d\u0438\u044f.<br \/>\n\u041c\u043e\u0439 \u0441\u044b\u043d, \u044f \u0434\u0443\u043c\u0430\u044e, \u0431\u0443\u0434\u0435\u0442 \u0431\u0435\u0433\u0430\u0442\u044c \u0438 \u0443\u0447\u0430\u0441\u0442\u0432\u043e\u0432\u0430\u0442\u044c \u0432 \u0441\u043e\u0440\u0435\u0432\u043d\u043e\u0432\u0430\u043d\u0438\u044f\u0445 \u043f\u043e \u0444\u0435\u0445\u0442\u043e\u0432\u0430\u043d\u0438\u044e. \u041d\u0435\u0434\u0430\u0432\u043d\u043e \u043e\u043d \u0441\u043a\u0430\u0437\u0430\u043b \u043c\u043d\u0435, \u0447\u0442\u043e \u0432\u043e \u0441\u043d\u0435 \u043e\u043d \u0438\u043d\u043e\u0433\u0434\u0430 \u0431\u0435\u0433\u0430\u0435\u0442.<\/p>\n<p>&nbsp;<\/p>\n<p>* * * \u0427\u0442\u043e\u0431\u044b \u043f\u0440\u043e\u0447\u0438\u0442\u0430\u0442\u044c \u0434\u0440\u0443\u0433\u0438\u0435 \u0438\u043d\u0442\u0435\u0440\u0432\u044c\u044e \"LGMD Spotlight Interviews\" \u0438\u043b\u0438 \u0441\u0442\u0430\u0442\u044c \u0434\u043e\u0431\u0440\u043e\u0432\u043e\u043b\u044c\u0446\u0435\u043c \u0434\u043b\u044f \u0443\u0447\u0430\u0441\u0442\u0438\u044f \u0432 \u043f\u0440\u0435\u0434\u0441\u0442\u043e\u044f\u0449\u0435\u043c \u0438\u043d\u0442\u0435\u0440\u0432\u044c\u044e, \u043f\u043e\u0441\u0435\u0442\u0438\u0442\u0435 \u043d\u0430\u0448 \u0441\u0430\u0439\u0442 https:\/\/www.lgmd-info.org\/spotlight-interviews.<\/p>\n<p>* * * \u041f\u043e\u0436\u0430\u043b\u0443\u0439\u0441\u0442\u0430, \u0441\u0442\u0430\u0432\u044c\u0442\u0435 \u041b\u0410\u0419\u041a, \u041a\u041e\u041c\u041c\u0415\u041d\u0422\u0418\u0420\u0423\u0419\u0422\u0415 \u0438 \u0414\u0415\u041b\u0418\u0422\u0415\u0421\u042c \u044d\u0442\u0438\u043c \u043f\u043e\u0441\u0442\u043e\u043c, \u0447\u0442\u043e\u0431\u044b \u043f\u043e\u043c\u043e\u0447\u044c \u043f\u043e\u0432\u044b\u0441\u0438\u0442\u044c \u043e\u0441\u0432\u0435\u0434\u043e\u043c\u043b\u0435\u043d\u043d\u043e\u0441\u0442\u044c \u043e LGMD!<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSpotlight Interview\u201d \u2013 A Mother&#8217;s Perspective \u00a0 Mother\u2019s Name:\u00a0 [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1720,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[90],"class_list":["post-1722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-the-netherlands"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Aleksandra - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2018\/02\/26\/aleksandra\/\" \/>\n<meta property=\"og:locale\" content=\"ru_RU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Aleksandra - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSpotlight Interview\u201d \u2013 A Mother&#8217;s Perspective \u00a0 Mother\u2019s Name:\u00a0 [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2018\/02\/26\/aleksandra\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-02-27T03:26:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script 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