{"id":412,"date":"2015-01-06T21:59:11","date_gmt":"2015-01-07T03:59:11","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=138"},"modified":"2015-01-06T21:59:11","modified_gmt":"2015-01-07T03:59:11","slug":"138","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/","title":{"rendered":"\u0418\u041d\u0414\u0418\u0412\u0418\u0414\u0423\u0410\u041b \u0421 \u041b\u0413\u041c\u0414: \u041c\u0430\u0440\u0442\u0438\u0439\u043d"},"content":{"rendered":"

01\/06\/2015:<\/p>\n

\u0418\u041c\u042f:<\/strong> Martijn\u00a0\"LGMD2A<\/a>\u00a0\u00a0\u00a0 <\/span><\/p>\n

\u0412\u041e\u0417\u0420\u0410\u0421\u0422:<\/strong> 23
\n<\/span><\/p>\n

\u0421\u0422\u0420\u0410\u041d\u0410:<\/strong> \u041d\u0438\u0434\u0435\u0440\u043b\u0430\u043d\u0434\u044b
\n<\/span><\/p>\n

LGMD \u041f\u043e\u0434\u0442\u0438\u043f<\/strong>: LGMD 2A \/ \u041a\u0430\u043b\u044c\u043f\u0430\u0438\u043d\u043e\u043f\u0430\u0442\u0438\u044f
\n<\/span><\/p>\n

\u0412 \u041a\u0410\u041a\u041e\u041c \u0412\u041e\u0417\u0420\u0410\u0421\u0422\u0415 \u0412\u0410\u041c \u041f\u041e\u0421\u0422\u0410\u0412\u0418\u041b\u0418 \u0414\u0418\u0410\u0413\u041d\u041e\u0417:<\/strong>\u00a0 \u041f\u0440\u0438\u043c\u0435\u0440\u043d\u043e \u0432 \u0434\u0435\u043d\u044c \u043c\u043e\u0435\u0433\u043e 15-\u043b\u0435\u0442\u0438\u044f.<\/span><\/span><\/p>\n

\u041a\u0410\u041a\u041e\u0412\u042b \u0411\u042b\u041b\u0418 \u0412\u0410\u0428\u0418 \u041f\u0415\u0420\u0412\u042b\u0415 \u0421\u0418\u041c\u041f\u0422\u041e\u041c\u042b:<\/strong>
\n\u041f\u0435\u0440\u0432\u044b\u0435 \u0441\u0438\u043c\u043f\u0442\u043e\u043c\u044b \u0431\u044b\u043b\u0438 \u0437\u0430\u043c\u0435\u0442\u043d\u044b \u0441 \u0441\u0430\u043c\u043e\u0433\u043e \u0434\u0435\u0442\u0441\u0442\u0432\u0430. \u042f \u043f\u043e\u043b\u0437\u0430\u043b, \u043a\u0430\u043a \u043a\u0440\u0430\u0431, \u0438 \u0444\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u0438 \"\u043e\u0442\u043b\u0438\u0447\u0430\u043b\u0441\u044f\" \u043e\u0442 \u0441\u0432\u043e\u0438\u0445 \u0441\u0432\u0435\u0440\u0441\u0442\u043d\u0438\u043a\u043e\u0432. \u042f \u0430\u043a\u0442\u0438\u0432\u043d\u043e \u0437\u0430\u043d\u0438\u043c\u0430\u043b\u0441\u044f \u0440\u0430\u0437\u043b\u0438\u0447\u043d\u044b\u043c\u0438 \u0432\u0438\u0434\u0430\u043c\u0438 \u0441\u043f\u043e\u0440\u0442\u0430: \u0433\u0438\u043c\u043d\u0430\u0441\u0442\u0438\u043a\u043e\u0439, \u0432\u043e\u043b\u0435\u0439\u0431\u043e\u043b\u043e\u043c, \u0434\u0437\u044e\u0434\u043e \u0438 \u0442\u0435\u043d\u043d\u0438\u0441\u043e\u043c. \u041d\u043e \u043c\u043e\u0438 \u0440\u0435\u0437\u0443\u043b\u044c\u0442\u0430\u0442\u044b \u0441\u043d\u0438\u0436\u0430\u043b\u0438\u0441\u044c \u0438\u0437-\u0437\u0430 \u043f\u0440\u043e\u0433\u0440\u0435\u0441\u0441\u0438\u0440\u0443\u044e\u0449\u0435\u0439 \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u0439 \u0441\u043b\u0430\u0431\u043e\u0441\u0442\u0438 \u0432 \u043c\u043e\u0435\u043c \u0442\u0435\u043b\u0435.<\/p>\n

\u0415\u0421\u0422\u042c \u041b\u0418 \u0423 \u0412\u0410\u0421 \u0414\u0420\u0423\u0413\u0418\u0415 \u0427\u041b\u0415\u041d\u042b \u0421\u0415\u041c\u042c\u0418, \u0421\u0422\u0420\u0410\u0414\u0410\u042e\u0429\u0418\u0415 \u041b\u0413\u041c: \u00a0 <\/strong>\u041d\u0435\u0442.<\/p>\n

\u0427\u0422\u041e, \u041f\u041e \u0412\u0410\u0428\u0415\u041c\u0423 \u041c\u041d\u0415\u041d\u0418\u042e, \u042f\u0412\u041b\u042f\u0415\u0422\u0421\u042f \u041d\u0410\u0418\u0411\u041e\u041b\u042c\u0428\u0415\u0419 \u0422\u0420\u0423\u0414\u041d\u041e\u0421\u0422\u042c\u042e \u0412 \u0416\u0418\u0417\u041d\u0418 \u0421 \u041b\u0413\u041c\u0414:<\/strong>
\n\u0411\u043e\u043b\u0435\u0435 \u043f\u0440\u0430\u043a\u0442\u0438\u0447\u043d\u044b\u0435 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u044b \u043c\u043d\u0435 \u043a\u0430\u0436\u0443\u0442\u0441\u044f \u0445\u0443\u0436\u0435. \u041d\u0430\u043f\u0440\u0438\u043c\u0435\u0440, \u0445\u043e\u0434\u0438\u0442\u044c \u0432 \u043e\u0434\u0438\u043d\u043e\u0447\u043a\u0443 \u043f\u043e \u0443\u043b\u0438\u0446\u0435 \u0441 \u043a\u0440\u0438\u0432\u043e\u0439 \u0442\u0440\u043e\u0442\u0443\u0430\u0440\u043d\u043e\u0439 \u043f\u043b\u0438\u0442\u043a\u043e\u0439 \u0434\u043e\u0432\u043e\u043b\u044c\u043d\u043e \u0441\u043b\u043e\u0436\u043d\u043e. \u042d\u0442\u043e \u0442\u0440\u0435\u0431\u0443\u0435\u0442 \u0431\u043e\u043b\u044c\u0448\u043e\u0433\u043e \u0432\u043d\u0438\u043c\u0430\u043d\u0438\u044f, \u0438 \u044f \u0443\u0441\u0442\u0430\u044e \u043e\u0442 \u044d\u0442\u043e\u0433\u043e. \u0412 \u0431\u043e\u043b\u044c\u0448\u0438\u043d\u0441\u0442\u0432\u0435 \u0441\u043b\u0443\u0447\u0430\u0435\u0432 \u044f \u0440\u0435\u0448\u0430\u044e \u0438\u0441\u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u044c \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043d\u043e\u0435 \u043a\u0440\u0435\u0441\u043b\u043e, \u0435\u0441\u043b\u0438 \u043c\u043d\u0435 \u043f\u0440\u0438\u0445\u043e\u0434\u0438\u0442\u0441\u044f \u0445\u043e\u0434\u0438\u0442\u044c \u043d\u0430 \u0431\u043e\u043b\u044c\u0448\u0438\u0435 \u0440\u0430\u0441\u0441\u0442\u043e\u044f\u043d\u0438\u044f. \u041a\u0440\u043e\u043c\u0435 \u0442\u043e\u0433\u043e, \u043e\u0431\u044a\u044f\u0441\u043d\u044f\u0442\u044c \u043d\u0435\u0437\u043d\u0430\u043a\u043e\u043c\u044b\u043c \u043b\u044e\u0434\u044f\u043c \u043e \u0441\u0432\u043e\u0435\u043c \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0438 - \u043d\u0435 \u0441\u0430\u043c\u043e\u0435 \u043b\u044e\u0431\u0438\u043c\u043e\u0435 \u043c\u043e\u0435 \u0445\u043e\u0431\u0431\u0438. \u042f \u043d\u0435\u043c\u043d\u043e\u0433\u043e \u043d\u0435 \u0443\u0432\u0435\u0440\u0435\u043d \u0432 \u0442\u043e\u043c, \u043a\u0430\u043a \u043c\u043d\u043e\u0433\u043e \u0438\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0438\u0438 \u044f \u0434\u043e\u043b\u0436\u0435\u043d \u043f\u0440\u0435\u0434\u043e\u0441\u0442\u0430\u0432\u0438\u0442\u044c. \u041d\u0435\u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u0438\u0437 \u043d\u0438\u0445 \u0441\u043f\u0440\u0430\u0448\u0438\u0432\u0430\u044e\u0442 \u043e \"\u0432\u0441\u0435\u043c \u043f\u0440\u043e\u0446\u0435\u0441\u0441\u0435\" \u0438 \u043e \u0431\u043e\u043b\u0435\u0435 \u043b\u0438\u0447\u043d\u044b\u0445 \u0432\u0435\u0449\u0430\u0445. \u0410 \u043d\u0435\u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u0431\u043e\u044f\u0442\u0441\u044f \u0440\u0430\u0441\u0441\u043f\u0440\u0430\u0448\u0438\u0432\u0430\u0442\u044c \u043c\u0435\u043d\u044f \u043e \u043a\u0430\u043a\u0438\u0445-\u043b\u0438\u0431\u043e \u0434\u0435\u0442\u0430\u043b\u044f\u0445. \u0413\u043e\u0432\u043e\u0440\u0438\u0442\u044c \u043e \u0441\u0432\u043e\u0435\u0439 \u0431\u043e\u043b\u0435\u0437\u043d\u0438 \u0434\u043b\u044f \u043c\u0435\u043d\u044f \u043d\u0435 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u0430, \u043d\u043e \u043e\u043f\u0440\u0435\u0434\u0435\u043b\u0438\u0442\u044c, \u043a\u0430\u043a\u0438\u043c \u043e\u0431\u044a\u0435\u043c\u043e\u043c \u0438\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0438\u0438 \u043d\u0443\u0436\u043d\u043e \u043f\u043e\u0434\u0435\u043b\u0438\u0442\u044c\u0441\u044f, - \u0432\u043e\u0442 \u0432 \u0447\u0435\u043c \u0441\u043b\u043e\u0436\u043d\u043e\u0441\u0442\u044c.<\/p>\n

\u041a\u0410\u041a\u041e\u0415 \u0412\u0410\u0428\u0415 \u0421\u0410\u041c\u041e\u0415 \u0411\u041e\u041b\u042c\u0428\u041e\u0415 \u0414\u041e\u0421\u0422\u0418\u0416\u0415\u041d\u0418\u0415:<\/strong>
\n\u0423 \u0432\u0430\u0441 \u0435\u0441\u0442\u044c \u043d\u0435\u0441\u043a\u043e\u043b\u044c\u043a\u043e \u0441\u0435\u043a\u0443\u043d\u0434? \u041e\u0434\u043d\u043e \u0438\u0437 \u043c\u043e\u0438\u0445 \u0441\u0430\u043c\u044b\u0445 \u0431\u043e\u043b\u044c\u0448\u0438\u0445 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0439 - \u043f\u0440\u044b\u0433\u0430\u0442\u044c \u0441 \u043f\u0430\u0440\u0430\u0448\u044e\u0442\u043e\u043c, \u0443\u0447\u0438\u0442\u044c\u0441\u044f \u0438 \u0434\u0435\u043b\u0430\u0442\u044c \u0432\u0441\u0435 \u0442\u043e, \u0447\u0442\u043e \u0437\u0434\u043e\u0440\u043e\u0432\u044b\u0435 \u043b\u044e\u0434\u0438 \u0441\u0447\u0438\u0442\u0430\u044e\u0442 \"\u043d\u0435\u0432\u043e\u0437\u043c\u043e\u0436\u043d\u044b\u043c\" \u0434\u043b\u044f \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043e\u0432. \u041c\u043d\u0435 \u043d\u0440\u0430\u0432\u0438\u0442\u0441\u044f \u043f\u0435\u0440\u0435\u0441\u0435\u043a\u0430\u0442\u044c \u0433\u0440\u0430\u043d\u0438\u0446\u044b \u0432 \u0441\u0432\u043e\u0435\u0439 \u0436\u0438\u0437\u043d\u0438. \u042f \u0432\u0441\u0435\u0433\u0434\u0430 \u0438\u0449\u0443 \u043f\u0440\u0438\u043a\u043b\u044e\u0447\u0435\u043d\u0438\u0439, \u043d\u0430\u043f\u0440\u0438\u043c\u0435\u0440, \u043f\u0443\u0442\u0435\u0448\u0435\u0441\u0442\u0432\u0443\u044e \u0441 \u0434\u0440\u0443\u0437\u044c\u044f\u043c\u0438 (\u0432 \u0444\u0435\u0432\u0440\u0430\u043b\u0435 2015 \u0433\u043e\u0434\u0430 \u043c\u044b \u0437\u0430\u043f\u043b\u0430\u043d\u0438\u0440\u043e\u0432\u0430\u043b\u0438 \u043f\u043e\u0435\u0437\u0434\u043a\u0443 \u0432 \u0418\u0441\u043b\u0430\u043d\u0434\u0438\u044e) \u0438 \u0442\u0430\u043a \u0434\u0430\u043b\u0435\u0435. \u041a\u0440\u043e\u043c\u0435 \u0442\u043e\u0433\u043e, \u043b\u0438\u0447\u043d\u044b\u043c \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0435\u043c \u0434\u043b\u044f \u043c\u0435\u043d\u044f \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u043f\u0440\u0435\u0437\u0435\u043d\u0442\u0430\u0446\u0438\u044f \u043e \u043c\u043e\u0435\u043c \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0438 \u0438 \u043e \u0442\u043e\u043c, \u043a\u0430\u043a \u044f \u0441\u043f\u0440\u0430\u0432\u043b\u044f\u044e\u0441\u044c \u0441 \u0431\u043e\u043b\u0435\u0437\u043d\u044c\u044e, \u0434\u043b\u044f \u043f\u0440\u0438\u043c\u0435\u0440\u043d\u043e 500 \u0441\u0442\u0443\u0434\u0435\u043d\u0442\u043e\u0432-\u043c\u0435\u0434\u0438\u043a\u043e\u0432.<\/p>\n

\u041a\u0410\u041a \u0411\u041e\u041b\u0415\u0417\u041d\u042c \u041b\u0413\u041c \u041f\u041e\u0412\u041b\u0418\u042f\u041b\u0410 \u041d\u0410 \u0422\u041e, \u0427\u0422\u041e \u0412\u042b \u0421\u0422\u0410\u041b\u0418 \u0422\u0415\u041c \u0427\u0415\u041b\u041e\u0412\u0415\u041a\u041e\u041c, \u041a\u041e\u0422\u041e\u0420\u042b\u041c \u042f\u0412\u041b\u042f\u0415\u0422\u0415\u0421\u042c \u0421\u0415\u0413\u041e\u0414\u041d\u042f:<\/strong>
\nLGMD, \u0431\u0435\u0437\u0443\u0441\u043b\u043e\u0432\u043d\u043e, \u043f\u043e\u0432\u043b\u0438\u044f\u043b\u0430 \u043d\u0430 \u043c\u043e\u044e \u0436\u0438\u0437\u043d\u044c! \u041e\u043d \u0441\u0434\u0435\u043b\u0430\u043b \u043c\u0435\u043d\u044f \u0431\u043e\u043b\u0435\u0435 \u0437\u0440\u0435\u043b\u043e\u0439 \u0432\u043e \u043c\u043d\u043e\u0433\u0438\u0445 \u043e\u0442\u043d\u043e\u0448\u0435\u043d\u0438\u044f\u0445. \u0422\u043e, \u043a\u0430\u043a \u044f \u0441\u043f\u0440\u0430\u0432\u043b\u044f\u044e\u0441\u044c \u0441 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u0430\u043c\u0438 \u0438 \u043d\u0430\u0441\u043b\u0430\u0436\u0434\u0430\u044e\u0441\u044c \u0436\u0438\u0437\u043d\u044c\u044e, \u0437\u043d\u0430\u0447\u0438\u0442\u0435\u043b\u044c\u043d\u043e \u0438\u0437\u043c\u0435\u043d\u0438\u043b\u043e\u0441\u044c \u043f\u043e\u0441\u043b\u0435 \u043f\u043e\u0441\u0442\u0430\u043d\u043e\u0432\u043a\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437\u0430.<\/p>\n

\u0427\u0422\u041e \u0412\u042b \u0425\u041e\u0422\u0418\u0422\u0415, \u0427\u0422\u041e\u0411\u042b \u041c\u0418\u0420 \u0423\u0417\u041d\u0410\u041b \u041e \u041b\u0413\u041c\u0414:<\/strong>
\n\u041b\u044e\u0434\u0438 \u0441 LGMD \u0438\u043b\u0438 \u043b\u044e\u0431\u044b\u043c \u0434\u0440\u0443\u0433\u0438\u043c \u043c\u044b\u0448\u0435\u0447\u043d\u044b\u043c \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435\u043c \u043d\u0438\u0447\u0435\u043c \u043d\u0435 \u043e\u0442\u043b\u0438\u0447\u0430\u044e\u0442\u0441\u044f \u043e\u0442 \u0437\u0434\u043e\u0440\u043e\u0432\u044b\u0445 \u043b\u044e\u0434\u0435\u0439, \u043f\u0440\u043e\u0441\u0442\u043e \u0438\u043d\u043e\u0433\u0434\u0430 \u0438\u043c \u043c\u043e\u0436\u0435\u0442 \u043f\u043e\u043d\u0430\u0434\u043e\u0431\u0438\u0442\u044c\u0441\u044f \u043d\u0435\u0431\u043e\u043b\u044c\u0448\u0430\u044f \u043f\u043e\u043c\u043e\u0449\u044c. \u041a\u0440\u043e\u043c\u0435 \u0442\u043e\u0433\u043e, \u043d\u0435 \u0440\u0430\u0437\u0433\u043e\u0432\u0430\u0440\u0438\u0432\u0430\u0439\u0442\u0435 \u0441 \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u043e\u043c, \u0441\u0438\u0434\u044f\u0449\u0438\u043c \u0437\u0430 \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043d\u044b\u043c \u043a\u0440\u0435\u0441\u043b\u043e\u043c, \u0430 \u043e\u0431\u0440\u0430\u0449\u0430\u0439\u0442\u0435\u0441\u044c \u043d\u0435\u043f\u043e\u0441\u0440\u0435\u0434\u0441\u0442\u0432\u0435\u043d\u043d\u043e \u043a \u0442\u043e\u043c\u0443, \u043a\u0442\u043e \u0432 \u043d\u0435\u043c \u043d\u0430\u0445\u043e\u0434\u0438\u0442\u0441\u044f.<\/p>\n

\u0415\u0421\u041b\u0418 \u0411\u042b \u0417\u0410\u0412\u0422\u0420\u0410 \u0412\u0410\u0428 \u041b\u0413\u041c\u0414 \u041c\u041e\u0416\u041d\u041e \u0411\u042b\u041b\u041e \"\u0412\u042b\u041b\u0415\u0427\u0418\u0422\u042c\", \u0427\u0422\u041e \u0411\u042b \u0412\u042b \u0421\u0414\u0415\u041b\u0410\u041b\u0418 \u0412 \u041f\u0415\u0420\u0412\u0423\u042e \u041e\u0427\u0415\u0420\u0415\u0414\u042c:<\/strong>
\n\u042f \u0431\u044b \u0445\u043e\u0442\u0435\u043b\u0430 \u0437\u0430\u043d\u044f\u0442\u044c\u0441\u044f \u0441\u043a\u0430\u0439\u0434\u0430\u0439\u0432\u0438\u043d\u0433\u043e\u043c \u0432 \u043e\u0434\u0438\u043d\u043e\u0447\u043a\u0443!<\/p>","protected":false},"excerpt":{"rendered":"

01\/06\/2015: NAME: Martijn\u00a0\u00a0\u00a0\u00a0 AGE: 23 COUNTRY: The Netherlands LGMD Sub-Type: […]<\/p>","protected":false},"author":1,"featured_media":146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,15,17],"class_list":["post-412","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-lgmd2a","tag-netherlands"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Martijn<\/title>\n<meta name=\"description\" content=\"Martijn, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/01\/06\/138\/\" \/>\n<meta property=\"og:locale\" content=\"ru_RU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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